My son is 12, has severe obstructive sleep apnea, next week 6th surgery to correct, he has learning disabilities, seizures, large tall body pre puberty wears size 16men's shoe, large hands, head, etc. Has undiagnosed benign tumor tissue growing in esophagus. Have been tested for several genetic conditions, negative for pten gene, ext. Do not know what is wrong. He is a happy boy and just wants to be normal. He also wears a bi-level cpap machine every night since 3 years old and still wets the bed only when in deep sleep. He is growing very rapidly and always been above 100 percent height and weight since 3 months old, but not at birth, seemed completely normal. help?:confused:Reply Follow This Thread Stop Following This Thread Flag this Discussion
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