Discussions By Condition: Medical Stories

Carcinoid Syndrome

Posted In: Medical Stories 0 Replies
  • Posted By: Anonymous
  • March 20, 2009
  • 06:25 PM

I am a 20 year old male who is seemingly pretty fit and healthy. However I am being referred to a hospital for futher investigation for carcinoid syndrome.

March last year, I was admitted to hospital with cellulititis, during my stay it was determined that I had iron deficent anemina. This was treated with iron tablets but seemed to take a longer time than expected to return to normal levels.
In October, I started to flush occansionally with no obvious cause. It only occurred in the evening but has become a daily experience which has got progressively worse and now can only be discribed as severe, lasting hours. It is also no longer restricted to the evening, though it rarely occurs in the mornings.
Over the Christmas period, I developed stomach pains after a night of drinking alcohol which was fairly painful, but has since become a vague but ever present mobile ache in my lower abdominal region, accompanied by slight constipation.

A gastro and colonoscopy revealed nothing, a 24 hour 5-HIAA urine test was okay for sertonin, but borderline for creatine initally put down as overcollection.

What I've read so far on the topic of carcinoid syndrome implies that while carcinoid tumours are fairly common, carcinoid syndrome is rare and only occurs when the cancer has spread, most likely to the liver. And once this occurs the prognosis is not good, with the impression; "if you have carcinoid syndrome, your already on a ticking clock".

Obviously I'm quite worried about this, can anybody give me some reliable information on the illness and particularly on if carcinoid syndrome is present, it becomes a matter of prolonging life as opposed to trying to cure the disease?


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