Discussions By Condition: Medical Stories

cancer of the nipple (paget's disease)

Posted In: Medical Stories 2 Replies
  • Posted By: lizzysdelight
  • April 7, 2010
  • 02:41 PM

I had an itchy nipple for a few years that was driving me crazy...and embarrassing...lol... after a few years my nipple started to peel...I thought omg i have dermatitis of the nipple...I bought some lucas paw paw ointment and applied that whenever i thought of it..but a bit slack.
Next i changed my washing powder thinking it may be the washing powder causing a reaction. Didn't stop it so I tried not wearing a bra, changing my shampoo and conditioner. Then I started getting pains in my nipple...like nerve pain..but due to the fact that i have multiple sclerosis i just put it down to the m.s....after about 8 months of all this ...i thought i better check it out so i googled...."itchy, flaky nipple" it came back with the result "Paget's disease of the nipple.. so i went to the doctor and to cut a long story short she referred me to a breast surgeon...he ordered mammograms, found a few lumps that were cysts and totally ignored what i went there for...my itchy, flaky nipple..
He told me to go away and apply lucas paw paw ointment more regularly.
Eight months later my nipple was going black, still flaking and I was starting to get extremely painful shooting pains in my nipple...I went back to my GP and said I am sure I have got paget's disease of the nipple...She referred me to the most beautiful woman breast surgeon and when I saw the new Breast surgeron the very next day she took biopsies and confirmed i did indeed have paget's disease of the nipple. After hours of examinations and tests...a lot which were very embarrassing..I had surgery and a nipple reconstruction followed up by 7 weeks of radiotherapy...it was very painful due to the inflammation. I suggest anyone male or female if you have any changes in your nipple go straight to the doc and ask for a second opinion
Take care all....preventive care is better than hiding in the dark...lol xxx

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  • I had an itchy nipple for a few years that was driving me crazy...and embarrassing...lol... after a few years my nipple started to peel...I thought omg i have dermatitis of the nipple...I bought some lucas paw paw ointment and applied that whenever i thought of it..but a bit slack.Next i changed my washing powder thinking it may be the washing powder causing a reaction. Didn't stop it so I tried not wearing a bra, changing my shampoo and conditioner. Then I started getting pains in my nipple...like nerve pain..but due to the fact that i have multiple sclerosis i just put it down to the m.s....after about 8 months of all this ...i thought i better check it out so i googled...."itchy, flaky nipple" it came back with the result "Paget's disease of the nipple.. so i went to the doctor and to cut a long story short she referred me to a breast surgeon...he ordered mammograms, found a few lumps that were cysts and totally ignored what i went there for...my itchy, flaky nipple..He told me to go away and apply lucas paw paw ointment more regularly.Eight months later my nipple was going black, still flaking and I was starting to get extremely painful shooting pains in my nipple...I went back to my GP and said I am sure I have got paget's disease of the nipple...She referred me to the most beautiful woman breast surgeon and when I saw the new Breast surgeron the very next day she took biopsies and confirmed i did indeed have paget's disease of the nipple. After hours of examinations and tests...a lot which were very embarrassing..I had surgery and a nipple reconstruction followed up by 7 weeks of radiotherapy...it was very painful due to the inflammation. I suggest anyone male or female if you have any changes in your nipple go straight to the doc and ask for a second opinionTake care all....preventive care is better than hiding in the dark...lol xxx Lizzy: Great story and I am so happy for you. Amazing that your story appeared just when I am having a similar problem. For years, my right nipple has periodically itched, but now it is happening too frequently. There is no scaling, redness, swelling or change in appearance. I have carried two small fibrocystic tumors directly beneath the nipple for years, and have to believe they are the cause. Next week, I am having it thorougly checked out. I never considered it to be an allergy to detergent or bras, since BOTH nipples would be affected. Thanks again for your story.
    mitzi219 1 Replies Flag this Response
  • Lizzy: Great story and I am so happy for you. Amazing that your story appeared just when I am having a similar problem. For years, my right nipple has periodically itched, but now it is happening too frequently. There is no scaling, redness, swelling or change in appearance. I have carried two small fibrocystic tumors directly beneath the nipple for years, and have to believe they are the cause. Next week, I am having it thorougly checked out. I never considered it to be an allergy to detergent or bras, since BOTH nipples would be affected. Thanks again for your story.Dear Mitzi, I hope everything works out ok for you. I think you will be fine. But it's best to be sure. Good luck and let me know how you get on.
    Anonymous 42789 Replies Flag this Response
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