Discussions By Condition: Medical Stories

Can you share your story

Posted In: Medical Stories 1 Replies
  • Posted By: LaurLaw
  • May 2, 2007
  • 07:45 PM

I read thread after thread of people who are in search of answers or waited a very long time to receive them.

Currently I'm trying to write a book. This book is by no means a medical book but more about inspiration and hope. We personally have been down this road with my husband's own medical conditions. It pains me to see how callously the medical field suggests that the symptoms could be "All in your head." Conversion reaction is overdiagnosed. Doctors forget the guilt and depression they are causing when medically they can not find the answers so they assume it's all in your head. The good news is that I have found enough statistical and practical research to show that most patients actually have a medical disorder.

I'm looking for people willing to share their stories. Whether you are still on the long and frustrating road to a diagnosis or you have finally arrived at a better place and you want to share your encouragement with others. You do not have to expose your name if you don't want. I can go into the legalities of it one on one. I'm first looking for those who would like to inspire some hope. :D

The opening query to the book is as follows:

This book is an exploration of the trials and tribulations that patients must endure at the mercy of the medical community. Thousands of patients go undiagnosed every year. Many wait decades to find answers. The process is both degrading and humiliating. An alarming number of these patients will be told that “it’s all in their head” at some point in time. That the problem is their fault. The guilt and depression that is endured is merciless. Yet, over time, most patients receive a diagnosis. Only to find out they are not crazy. This book is set to be an inspiration to those still waiting for their answers.

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1 Replies:

  • Laura, I would be happy to share my disease with you and what I have been through....I am not one who will offer a lot of hope...but I can share with you my life of MCTD and how I was dianosed at the age of 12. You may e mail me at ccornell51@csm.edu, and then we can communicate that way..- Cheslee
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