Discussions By Condition: Medical Stories

Can anyone help me understand......

Posted In: Medical Stories 0 Replies
  • Posted By: flippingWilson
  • December 7, 2008
  • 02:54 AM

my name is rinaldo, I was born with a condition that doesn't allow my muscles to relax after they have been asked to preform. Forinstance:
eating an ice cream cone or anything frozen my mouth freezes, can't speak can't open my jaw some times for as long as thirty to forty minutes. Running up a flight of stairs, by the time I make it up my legs have completely seized up and I am on the ground whether I like it or not. I used to water ski when I was younger, grabbing the tow bar for just one pass through the course and thats the end of my hands, forearms and fingers. I would have to hold on to the bar by putting it in my elbow joint. I know I am just throwing my English down on paper, I hope I can be forgiven for this terrible... oh heck., I digress. Anyway, it would seem to me that this is a neurological issue, I always thought this was a neurological problem but the more I read about it the more I think I am off base...?

Can anyone help me.....? If anyone could give me some direction I can't tell you how grateful I would be.

muscles seize up when asked to preform normal tasks.
cold wind or cold water effect any thing exposed.
after a day of snow skiing I can't do up a zipper, turn a key
or anything that involves the manipulation of my fingers.
eating anything cold will lead to a total seizure of my mouth
can't speak, can't do anything until my circulation is restored.

I can't tell you all how much I would appreciate your help!


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