I am between doctors due to a move, but I may as well have one. Every doctor I have been to in the past five or six years doesn't seem to have a clue on how to treat me; I have had two or three doctors (I have moved several times) and each one has ignored my symptoms. It is as if I never spoke to them at all. It has been horrible. I believe each one has expected me to have some other type of specialist taking care of me that they didn't have to intervene with at all, including not obtaining my records to follow my progress. The truth is, I have no such specialist.
I have spinal stenosis and post polio syndrome and no one is following me for it. My main symptom is unbearable, excruciating daily pain, for which I take increasing doses of morphine and oxycodone. I have drop foot on both sides, which increases my falls as well as decreased sensation in both feet which doesn't help me at all. I had a fall a few days ago and thought I broke a rib. In the ER, they said I have a contusion of my ribs The pain was very, very sharp and very distracting. The morphine wasn't helping but I couldn't take anything else because I am in a contract at a pain clinic for my medications.
My most worrisome symptoms are the pain which is present in nearly every part of my body, except my head. I get a lot of migraines, however to make up for that. I have peripheral neuropathy and it has been worsening steadily in my left leg to the point that I am experiencing paralyzation in my left foot. I cannot move most of my toes even though I try to bid them to move with my mind. The sensation in that foot and leg is like a heaviness, tingling, and the feeling that it is beginning to creep up my leg. It is hard to describe but believe me it is frightening me. And, as I said,, I am always scared about what is happening to me. Will I end up paralyzed? Who should I see? Can I trust the new PCP I will pick out, or even the medical profession in general?.
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