Discussions By Condition: Medical Stories

Budd chiari

Posted In: Medical Stories 0 Replies
  • Posted By: iharaia
  • August 11, 2013
  • 11:46 PM

hi there my son is now 6yrs old when he was 1yrs old he had budd chiari sydrome since
then he has through all sorts of tests he has had a liver transplant and 7months later he had
budd chiari occur again how he lives with it has also had stent put in to hold his vein open that
still block up today he go in and out of operations to unblock every few months he has
one vein lefted work and once that block starship hospital auckland new zealand has said theres
nothing else they can do for him im sure there is someone out there that can help my son everyone
any ideas THERES NOMORE HELP IN NEW ZEALAND BUT IM SURE THAT THERES SOMEONE
OUT THERE THAT CAN HELP MY SON

CLINICAL MANAGEMENT
BACKGROUND






Probable underlying pro-thrombotic Myeloproliferative disorder Nt a candidate for stem-cell therapy
also has a very high platelett count

medications he is on are

tacrolimus
randitidine
clopidorel
hydroxyurea
wafarin

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