I was born with a deformed right hand (see attachments0, similar in many ways to several of the named birth defect syndromes. I have not been able to find Doctors interested in pursuing the diagnosis, most saying many hand defects *have* no name.
But, I was also born in 1951, before many tests were done on infants- and was called a "blue baby". Later in life (young adult) I had my first EKG and they found a Left Bundle Block. I think they surely must be connected and I want to know, if I can! I don't think it could be genetic because I am the only extended family member to be born with a handicap.
I would like to find others who share my handicap. I saw a woman around 20 years ago, in Western Pennsylvania whose hands both looked exactly like mine. I never met her and was told later that she'd died of heart disease.
I'd like to get to know any that are like me, to learn of any research that might apply to me,*and* it would be nice to find a Dr. who is *interested* in helping me purue my quest.