Discussions By Condition: Medical Stories

bi-lateral ocular scotoma with stiff neck and fatigue

Posted In: Medical Stories 0 Replies
  • Posted By: Anonymous
  • January 13, 2010
  • 05:50 PM


I have suffered from frequent (approx. 4-6 per month) episodes for 2 years now, without feeling I'm getting thoroughly tested and diagnosed to prevent these from happening.

bright white spot in EITHER left or right eye appears, followed by sense of change in circulation to my head. Usually have stiff neck before these occur but often stiff neck and shoulders happen after the "eye dot" appears. The eye dot fades away after 10 mins. I feel depleted and fatigued after the appearance, and the fatigue and neck/shoulder tension continues for several hours or until after I sleep. I often feel emotionally depleted and depressed as well. I do NOT have headache pain with these events.

3 years ago I had a TIA diagnosis after experiencing slurred speech and partial facial paralysis after much stress and dehydration during a hot summer work weekend. It was very traumatic. The speech/face stuff lasted a few minutes.

I've had a few MRI's since then, which show no stroke signs, only a small angioma, which seems "harmless" for now, according to the doctor. I had a neck x-ray which showed moderate arthritis. My kidney and liver functions are good.

Recently I had nerve twitching in my left arm which connected to my left Index finger and made the finger twitch, which I've never had before. It did that randomly for a few days but has since stopped.

The neurologist has diagnosed these scotoma and stiffness and exhaustion events as a form of migraine, but I am very skeptical. I had common migraines in my 20's and 30's a couple times a year and this feels quite different. She had me try amitriptyline for a month, as a preventative to chronic migraine, but all it did was help me sleep, made me groggy next day, but it did not reduce or prevent the episodes, so I stopped taking it.

I am scared that they just keep happening with no end in sight, and fear that other tests should be run to rule out other causes: Vascular tests? Cardio tests? Vitamin B12 or other deficiency? I really need some help! Thanks.

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