8 years ago my little girl was diagnosed with an illness that would change her life forever today she is 15 and lives with severe headaches that no one can do anything about my daughter jessica was 7 a fit and healthy girl who loved sports and the outdoors when she started complaning of bad headaches after all these tests no one could tell me what was going on they started my baby on steriods which did nothing other than make her gain a lot of wait after a lumbar puncture they found that the pressure going to her brain was so high, As time goes on and another 4 lumbar punctures they decide to put a lumbar shunt in that drains the fluid away from the brain to reduce pressure well that would be fine if we lived in a perfect world but we dont in the last 6 weeks she has had 5 operations 3 of which they put a machine called an icp monitor in her head which reads pressure that goes to the brain it stays in for 3 days its horrible then twice they have had to change her valve in her shunt because it wasn't working properly now on being released from hospital with a drug called diamox hoping that would help on monday jessica was admitted to hospital with severe side affects from the drug and her headaches are worse than ever they are now at the stage where they dont know what they are going to do they dont have any other cases like jess and are unsure how to proceed we lost count after 27 operations 14 which have come in the last 2 years if anyone knows of anyone with something simalar to this i would love to talk to you dont know where else to turn.
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