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B12/pernicious anemia self diagnosed

Posted In: Medical Stories 1 Replies
  • Posted By: joeileen
  • May 12, 2011
  • 06:18 PM

Having a parent with pernicious anemia, I thought I was in a better position to obtain help with a B12 deficiency. I initially went to the physician mentioning that my feet were cold and I was experiencing some of the same symptoms as my mother. The Dr. said "you don’t have what your mum has" and "just put that out of your mind". I had blood work and my score was 190. The doctor recommended 500 mg b12 vitamins. I went back and advised that I was not feeling any better. The doctor continued to state that I did not have a b12 deficiency. I have had tests on my heart (racing) my abdomen (loose stools), colonoscopy, gasto (loss of weight) etc etc. I have seen an internist, dermatologist, allergist and immunologist. My symptoms are: depression (on wellbutrin) shortness of breath, sore tongue, difficulty swallowing, extreme fatigue, dizziness on standing, insomnia (on sleeping meds) migraine headaches (on prescription meds), ringing ears, sore hips, swollen ankles, cold tingling feet, facial pain, itchy anus(?), thin nails, unable to concentration or carry on convesrsations, forgetfulness...... Plus 6 years ago, I developed a severe reaction to chemicals (smoke, perfume etc). That faded after several years. This summer I developed an itchy red rash and deducted that I must be allergic to fabrics. Getting rid of all the polyesters and rayons out of my wardrobe was a challenge. However, this "rash" flairs from time to time although clothing does not seem to have an effect. I have read (devoured) the book Could it be B12? And have come to the conclusion that my father was also B12 deficient from the symptoms he suffered and those of his sister. Despite my self diagnosis of pernicious anemia, I am having extreme difficulty getting any medical assistance. The specialists I have seen do not deal with b12 issues. My family doctor is adamant that B12 is NOT an issue and has basically ‘banned" me from speaking about it. I have been taking copious amounts of B12 sublingual tablets (5000 mcg B12 methylcobalamin). This has given me a lot of relief. I have been referred to yet another allergist/immunologist and am unsure how to approach the appointment. Having taken B12 supplements, is there any test that will confirm my diagnosis? Do you think I am on the right track? Any suggestions as to what I should be doing..

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  • Having a parent with pernicious anemia, I thought I was in a better position to obtain help with a B12 deficiency. I initially went to the physician mentioning that my feet were cold and I was experiencing some of the same symptoms as my mother. The Dr. said "you don’t have what your mum has" and "just put that out of your mind". I had blood work and my score was 190. The doctor recommended 500 mg b12 vitamins. I went back and advised that I was not feeling any better. The doctor continued to state that I did not have a b12 deficiency. I have had tests on my heart (racing) my abdomen (loose stools), colonoscopy, gasto (loss of weight) etc etc. I have seen an internist, dermatologist, allergist and immunologist. My symptoms are: depression (on wellbutrin) shortness of breath, sore tongue, difficulty swallowing, extreme fatigue, dizziness on standing, insomnia (on sleeping meds) migraine headaches (on prescription meds), ringing ears, sore hips, swollen ankles, cold tingling feet, facial pain, itchy anus(?), thin nails, unable to concentration or carry on convesrsations, forgetfulness...... Plus 6 years ago, I developed a severe reaction to chemicals (smoke, perfume etc). That faded after several years. This summer I developed an itchy red rash and deducted that I must be allergic to fabrics. Getting rid of all the polyesters and rayons out of my wardrobe was a challenge. However, this "rash" flairs from time to time although clothing does not seem to have an effect. I have read (devoured) the book Could it be B12? And have come to the conclusion that my father was also B12 deficient from the symptoms he suffered and those of his sister. Despite my self diagnosis of pernicious anemia, I am having extreme difficulty getting any medical assistance. The specialists I have seen do not deal with b12 issues. My family doctor is adamant that B12 is NOT an issue and has basically ‘banned" me from speaking about it. I have been taking copious amounts of B12 sublingual tablets (5000 mcg B12 methylcobalamin). This has given me a lot of relief. I have been referred to yet another allergist/immunologist and am unsure how to approach the appointment. Having taken B12 supplements, is there any test that will confirm my diagnosis? Do you think I am on the right track? Any suggestions as to what I should be doing..Hi Joeileen,Post your story over on http://forums.wrongdiagnosis.com/showthread.php?t=9948&page=410Read the BASICS at http://forums.wrongdiagnosis.com/showthread.php?t=62327 and then ask your questions having read and taken to heart the basics detailed there. Read the whole thread ignoring non-informational posts and especially paying attention to the updated pages at the end. This should change your whole understanding of the problem.With the proper supplements most every problem you have can be gone in months to a year.
    Freddd 3576 Replies Flag this Response
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