I was diagnosed with 'Probable MS' when I was 22. However upon further investigation (requested by myself) I was then diagnosed with B12 deficiency after a blood test showed a level of 63. I was given a course of injections and then nothing.....
Needless to say I started getting unwell again and had to go back to the doctors 6 months ago as I was exhibiting symptoms again, My tests showed a result of 98 (I'm 32 now) My doctor was most confused as to why I wasnt told I would need injections for life!! (me too now as I understand this can be fatal if left untreated) She was also upset as to why no-one got to the bottom of why an otherwise healthy woman was deficient.
I've now had god knows how many blood tests, and my intrinsic factor is fine so its not PA causing my problem. I've been referred to a gastroenterologist and I'm now awaiting the appointment. I've been told the second most common cause is Coeliac disease, however my bloods came back clear for that too! Currently hanging on a thread and hoping to get to the bottom of this.
I still have neuro symptems present despite a course of 6 injections followed by regular injections every 3 months, I'm still tired and lethargic and I'm still clumsy and ditzy (If you have had severe B12 deficiency you will know what I mean lol)
I haven't had a repeat B12 test done recently, I'm guessing this is down to my overloading injections and maybe they dont want a false read.
Hopeing the gastro appointment comes soon as I'm tired of feeling unwell.
I'm also deficient in B6, Iron, Folic Acid etc etc etc...
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