Discussions By Condition: Medical Stories

B12 and expressive aphasia? Heavy with worry

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • February 8, 2011
  • 01:16 AM

My boyfriend is 54 years old and over the past 8 months has almost lost his ability to speak. He has the words in his head, but can't form them. He's had vitiligo since the age of 12, vertigo for the last 6 years or so, tinitis for a year. His tongue was swollen and sore on the sides. We read the book "Could it be B12?" and found it very enlightening and curiously consistant with a lot of his symptoms and demanded B12 injections. They will only agree with cyanocobalamin, not methyl. He has had 1 week of every day injections (1,000 mcg.) and a month of weekly injections, so far. We are not seeing much in the way of improvement, yet. Before the injections, his syrum b12 was 266 and his MMA was .28 and his homocysteine was 10. He has tested negative for everything under the sun, and has an MRI that is unremarkable, yet they have diagnosed him with Frontotemporal
Dementia. I'm going out of my mind with worry.

Has anyone else experienced any sort of speech issues?

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2 Replies:

  • I can't help you specifically however there is a thread here that's very useful for those who are low in B12. I'm unable to post links yet but if you google "Active B12 Basics" you will find a lot of useful info.
    aprilk1869 126 Replies
    • February 11, 2011
    • 11:24 AM
    • 0
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  • I can't help you specifically however there is a thread here that's very useful for those who are low in B12. I'm unable to post links yet but if you google "Active B12 Basics" you will find a lot of useful info.Thank you, so much, April. Here is your link.http://forums.wrongdiagnosis.com/showthread.php?t=62327
    Anonymous 42789 Replies
    • February 14, 2011
    • 11:38 PM
    • 0
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