I'm wondering if you've come across any other patients who have had surgery for bladder cancer ..a cystectomy..in which either a neobladder or Indiana Pouch (internal pouches) with a B l2 deficiency? I was told i had a 5 yr supply of Bl2 stored in my liver..that didn't turn out to be the case..i was depleted in about 9 months. I only had the serum Bl2 assay but that was 270 at the time...NOONE has heard of the uMMA test and i live in the city where it was invented!! Go figure. I have since talked with Norman Labs and am being sent the kit for testing. I'm very active on a web site dealing with only bladder cancer and not one of these people has been tested with one exception..a patient that went to Mayo's...that used the uMMA test. All the surgeons just pooh pooh it. The terminal ilium is used in the reconstruction of the new pouch therefore you are not able to absorb Bl2. I have looked for the sublingual Bl2 with Metylcobalamin and can't find them and i hesitate to buy from a non-ethical supplier. Any comments appreciated..........PatReply Follow This Thread Stop Following This Thread Flag this Discussion
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