Discussions By Condition: Medical Stories

ataxia....Please help......

Posted In: Medical Stories 1 Replies
  • Posted By: jennygwenny
  • January 4, 2010
  • 03:57 AM

Hello everyone,
I am very new to this website and forum so please bear with me. I have some kind of ataxia, and I am desperately trying to figure out which kind and what is causing it. Not one doctor has been able to diagnose me. After doing much research on the internet, I know the name for it is "ataxia". I just don't know if it is episodic ataxia or ataxia caused by a vit b12 deficiency (444 pg/mL) or toxic copper in my system (44 ug/g as measured by hair nutrient analysis).

Since I was about 12, I have had these episodes of dizziness, uncoordination, headaches, followed by nausea and vomiting. The episodes stopped for 5 years from when I was 30-35, and then I had to have a hysterectomy, and they came back. I have now been dealing with them again for 6 years.

I have seen countless doctors and specialists, and no one has been of much help. The latest diagnosis I had was basilar migraines. And I did find out I am gluten sensitive, so in June (2009), I started a gluten-free diet. I have not noticed much difference. In fact I think the episodes have gotten worse since starting the diet. When I get these episodes, my speech is slurred as well. That is a fairly new symptom.

I am hoping someone will have an answer. I read all about episodic ataxia, and those symptoms and stories sound so familiar to me. But I have also been reading about b 12 deficiency and wondered about that. And I do have higher copper than normal, so I am wondering if that could be the cause.

Please help.....any suggestions or recommendations would be welcome.
Thanks so much,
Jennifer
jpitt@pixius.net

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  • Hello everyone,I am very new to this website and forum so please bear with me. I have some kind of ataxia, and I am desperately trying to figure out which kind and what is causing it. Not one doctor has been able to diagnose me. After doing much research on the internet, I know the name for it is "ataxia". I just don't know if it is episodic ataxia or ataxia caused by a vit b12 deficiency (444 pg/mL) or toxic copper in my system (44 ug/g as measured by hair nutrient analysis). Since I was about 12, I have had these episodes of dizziness, uncoordination, headaches, followed by nausea and vomiting. The episodes stopped for 5 years from when I was 30-35, and then I had to have a hysterectomy, and they came back. I have now been dealing with them again for 6 years. I have seen countless doctors and specialists, and no one has been of much help. The latest diagnosis I had was basilar migraines. And I did find out I am gluten sensitive, so in June (2009), I started a gluten-free diet. I have not noticed much difference. In fact I think the episodes have gotten worse since starting the diet. When I get these episodes, my speech is slurred as well. That is a fairly new symptom. I am hoping someone will have an answer. I read all about episodic ataxia, and those symptoms and stories sound so familiar to me. But I have also been reading about b 12 deficiency and wondered about that. And I do have higher copper than normal, so I am wondering if that could be the cause. Please help.....any suggestions or recommendations would be welcome. Thanks so much,Jenniferjpitt@pixius.net Hi Jennifer, I used to be ataxic. No more. It could very possibly be active b12 deficiencies. I used to have it and am cured now.Read the first link first and them over to the second link to discuss it.http://forums.wrongdiagnosis.com/sho...517#post219517http://forums.wrongdiagnosis.com/sho...519#post219519
    Freddd 3576 Replies Flag this Response
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