I have been having most of these problems for almost 20 years now and I still have no answer for much of this, I have bits and peices here and there, but over-all I have nothing.
I have had positive tests for the following:
NASH (aka- non alcohol related fatty liver)
High BP (260/160 high)
Sinus Rythm Tachycardia (160 bpm+)
Neuropathy in both arms (EMG positive)
High Normetanephrines in 24 hour urine
Borderline LVH (enlarged heart secondary to BP)
Chronic Sinus Infections
I have the following symptoms-
Sudden onset severe headaches lasting 20-30 minutes
Short of breath
Activity Intolerance (have to take a break when brushing my hair to get my breath back and slow my heart)
Short term memory issues
ringing in my ears
Ocular Migraines (no pain)
Improper Immune response (no rise in white blood count or fever even with life threatening infections)
Frequent lymph node infections resulting in bursting
Gasping (will be sitting there and all of a sudden will gasp a deep breath for no reason)
I am being tested for pheochromocytoma, but so far, other than having many of the physical symptoms the only test that has shown anything is the raised normetanephrines, but it is not considered high enough.
Lupus, Lymes, Rhumatiod arthritis, HIV, thyrioditis and fibromialgia have all been ruled out.
I am at a complete loss... my Dr just says "I don't know" but has no intention of actually LOOKING and when I search the internet I have a very hard time trying to find out about some of the things that are going on with me... the white blood cell issue might be a leukopenic response with a degerative shift to the left, but I can not find what in the world causes this and how it may relate to everything else that is going on.
My blood pressure swings severely wildly... within any 24 hour period it may shift between 230/140 to 120/70 and anywhere in between, changing as much as 40 points in ten minutes. Medication has slowed this and my heart rate down, but I still have 'break through' episodes daily.
My carotid artery and subclavical arteries were just ultrasounded and are as clean as whistles with no abnormalities. (Checked because my BP was 229/128 in my left arm and 160/100 in my right in the Dr's office, but my arms 'switch' being the higher reading)
A Heart echo in January showed mild/borderline LVH but my EF is perfect so no active heart failure.
There is no sign of a heart attack in the past, no sign of a stroke...
I feel like I am slowly going insane from all this
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