Discussions By Condition: Medical Stories


Posted In: Medical Stories 0 Replies
  • Posted By: had_enuf
  • October 26, 2006
  • 03:06 AM

I'm 21 female and I've been diagnosed with epilepsy. More than a year ago I was diagnosed and was told that things would soon be 'managable'. 4 drugs later and a brand new diagnosis of vascular migraine as well and i'm feeling worse not better. For something that was suppost to be easy enough to treat, I can't help feeling a bit uneasy that a years past with no results. I can't work. can't drive, can't take a bus by myself! I wear info on my wrist every where i go like a dog tag and my independence is shattered.
All the EEG tests and CT scans etc came back normal and it was put down to idiopathic epilepsy. - basically meaning it has no reason what so ever! gee great.

I'm still having seizures, rigid sessions, trouble finding words,drooling and completely off the planet 'stunned mullet' style after a seizure. i'm haunted by nightmares. i feel sick all the time, i feel so tired and weak at times i'll sleep for days, and thanks to this new migraine medicine i can add hallucinations to the list. I'm (without knowing) agro towards my fiance' and have tried to hurt myself while 'playing a game' i'm starting to think i'm going insane! I feel like such a mess. my normal 'self' is being consumed by dread and drugs.
My mum keeps wanting something else to come up, since the epilepsy treatment obviously isn't working as it could be wrongly diagnosed. but the seizures are sure real.
I'm getting married in 10 months time, i just want it to all go away!

sorry to whing, just wondering if anyone had any ideas or a simular story. I trust my specialist as my own friend, - but something's obviously not right... ?:confused:

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