Discussions By Condition: Medical Stories

Arachnoiditis and Cervical DIsk Pain & Surgery

Posted In: Medical Stories 4 Replies
  • Posted By: bargainmom
  • August 30, 2008
  • 05:26 AM

I have had 2 cervial disk surgeries and so many epidurals, facet joint injections,, and 2 Radio Frequency procedures done on my neck. Even after all of this, my pain is unbearable!!! Along with this pain, I have Sjogren's Syndrome, FIbromyalgia, Right Buttock and Leg Sciatica, POTS (Postural Orthostatic Tachacardyia), and other Autoimmune Diseases.

I go to a pain clinic for the pain from these and most of all, this TERRIBLE, UNRELENTING neck pain. :( They are a really great pain clinic and have me seeing many different doctors (Psychologists, Physical Therapists, Prescription Specialist - manages medication, Vocational Rehabilitation, Biofeedback Specialist, etc.) as needed. My medication doctor has me on methadone 3 x daily, Lyrica 3 x daily, Oxycodone 2 x daily (as needed for breakthrough pain), Clonazepam, Zanaflex (as needed), and Effexor of which I take all of these 1 x daily.

As you can see, I am on a lot of medication, but the pain in my neck is SO BAD!! I was researching on the internet the other night to see if there was anything new to help or to see if I could find out if the pain could possible be something else when I came across Arachnoiditis, its symptoms, etc. I felt like I was reading a story about myself. The only thing that I did not read is if Arachnoditis can occur in your neck. It seems as if it can because the neck is part of the spinal cord system. :confused:

Can anyone tell me if I am on the right track with this and if I am thinking things that really could be causing my neck pain? I would appreciate any advice, thoughts, or help you could give me for this. Also, if you know of someone in Alababma that I could go to so that I can find out what is going on with my neck. My current pain center is fabulous, but I am not sure if they are where I need to be or who I need to see if Arachnoiditis is what is going on.

Please help me with this if you can. I don't know how much longer I can handle this pain without the hope of it either going away or at least lessening to a level that I can tolerate it.



As I was rese

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  • I have Acute Lymphoblastic Leukemia. In remission for 11 years.I had intrathecal injections (through a port called an Omaya Resevoir in my head). My Oncologist injected Methotrexate into it. I have had unbearable pain such as yours since then. I discovered Chemical Arachnoiditis just last year on my own. My neurosurgeon confirmed it. It manifested in the base of my brain and in my Neck. I have been given most all the meds you said, but the only thing that lets me function day to day is high doses of Oxycontin and Neurontin. Paul
    allasarc 4 Replies
    • September 3, 2008
    • 06:29 AM
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  • There is a great support group on Yahoo.com called Cofwa. (circle of friends with Arachnoiditis). Go there and check it out. It helps knowing you're not alone. Paul
    allasarc 4 Replies
    • September 3, 2008
    • 06:32 AM
    • 0
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  • Paul,Thank you so much for the information. I had already found the Cofa and they are a wonderful group of people and help so much. They have answered many of my questions and one of them told me that another person on there has the cervical arachnoiditis like I do, but I haven't met them yet. I look forward to doing that. I wish you well and I am so sorry that you hurt. Believe me, I DO understand and sympathize. This pain is awful and until someone has gone through it, they don't have a clue.bargainmom
    bargainmom 1 Replies
    • September 3, 2008
    • 00:53 PM
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  • I have too been struggling with very strange and recently severe symptoms of tingling, numbness in extremities, burning pains in some muscles, very stiff neck, some imbalance, brain fog, memory problems, a feeling of creepy crawlies in head and on body, hot feet/hands, extreme persperation and more x 6 years. 19 years ago, I had an epidural in my lower spine and I too have been to doctors who don't take me seriously because they cant get answers through their labs and they treat me like its in my head. I have had to do research and push to see specialists. The first thing that seemed similar was reynauds syndroms/chronic fatigue syndrome. After doing more research on the epidural, I found this wonderful article that gave me that eureka moment! Arachnoiditis completely described all the funky symptoms and the link to the other syndroms can come from Arachnoiditis. Here is the links I found helpful. It seems a neurologist/rheumatologist would be the doctors to see but, not every one is determined to find the root cause. I am not big on treating the symptoms vs. the source. My only advice is search for the right doctor who will listen to you and don't give up.http://www.arachnoiditis.info/info_patients_main.htmlhttp://www.arachnoiditis.co.uk/symptoms.htmthe below link is a good sounding board on other peoples experiences:http://arachnoiditissupport.yuku.com/topic/369I hope I was of some help to you.I have had 2 cervial disk surgeries and so many epidurals, facet joint injections,, and 2 Radio Frequency procedures done on my neck. Even after all of this, my pain is unbearable!!! Along with this pain, I have Sjogren's Syndrome, FIbromyalgia, Right Buttock and Leg Sciatica, POTS (Postural Orthostatic Tachacardyia), and other Autoimmune Diseases. I go to a pain clinic for the pain from these and most of all, this TERRIBLE, UNRELENTING neck pain. :( They are a really great pain clinic and have me seeing many different doctors (Psychologists, Physical Therapists, Prescription Specialist - manages medication, Vocational Rehabilitation, Biofeedback Specialist, etc.) as needed. My medication doctor has me on methadone 3 x daily, Lyrica 3 x daily, Oxycodone 2 x daily (as needed for breakthrough pain), Clonazepam, Zanaflex (as needed), and Effexor of which I take all of these 1 x daily. As you can see, I am on a lot of medication, but the pain in my neck is SO BAD!! I was researching on the internet the other night to see if there was anything new to help or to see if I could find out if the pain could possible be something else when I came across Arachnoiditis, its symptoms, etc. I felt like I was reading a story about myself. The only thing that I did not read is if Arachnoditis can occur in your neck. It seems as if it can because the neck is part of the spinal cord system. :confused: Can anyone tell me if I am on the right track with this and if I am thinking things that really could be causing my neck pain? I would appreciate any advice, thoughts, or help you could give me for this. Also, if you know of someone in Alababma that I could go to so that I can find out what is going on with my neck. My current pain center is fabulous, but I am not sure if they are where I need to be or who I need to see if Arachnoiditis is what is going on. Please help me with this if you can. I don't know how much longer I can handle this pain without the hope of it either going away or at least lessening to a level that I can tolerate it. As I was rese
    Anonymous 42789 Replies
    • December 8, 2010
    • 06:24 PM
    • 0
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