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Anyone have a clue as to what could be wrong?

Posted In: Medical Stories 1 Replies
  • Posted By: gabbi4god
  • January 16, 2010
  • 01:37 AM

Hi there. I wanted to post this because my friends are so tired of me always talking about me feeling bad or being sick. So, I thought id wear out some strangers ;)

I have had no luck in getting a diagnosis other then fibromyalgia. I feel like this isnt the case because my dr was just at a loss as to what it is so wrote it off as fibromyalgia.

I have body pain and swelling in my legs, abdomen, and sometimes face. I bruise so easily and often, mostly on my legs. I have petichae( little purple red spots all over skin), fatigue, tired, forgetful, headaches they sometimes wake me from sleep. I have loss of coordination on my left side. I am constantly dropping things! My hip on same side just hurts so severely at times I can hardly walk. Shoulders are so sore. Im not sure if it is my muscles or joints I can't tell. I just know I hurt and am much weaker in my arms now. My toes turn blue on the same left side at times. Nausea, stomach cramps. Gums bleed had blood in my stool a couple times not reguarly though. Just constant pain. Newest thing and the reason I have decided to write this is my eye on that same left side. It is bulging out slightly and feels odd like my eyelid gets stuck on it or something.

I am at the point where I feel like a hyperchondriac and everyone just thinks im a complainer by nature or crazy..probably both. I just want to feel good again! I want to not be on all these meds that they "try" on me to see if it gets me better. I just want to know whats wrong and fix it. I am sure there are others out there that understand this feeling.

If anyone has any idea Id love to hear their thoughts or suggestions ect...
Thank you in advance...

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  • Hi there. I wanted to post this because my friends are so tired of me always talking about me feeling bad or being sick. So, I thought id wear out some strangers ;) I have had no luck in getting a diagnosis other then fibromyalgia. I feel like this isnt the case because my dr was just at a loss as to what it is so wrote it off as fibromyalgia. I have body pain and swelling in my legs, abdomen, and sometimes face. I bruise so easily and often, mostly on my legs. I have petichae( little purple red spots all over skin), fatigue, tired, forgetful, headaches they sometimes wake me from sleep. I have loss of coordination on my left side. I am constantly dropping things! My hip on same side just hurts so severely at times I can hardly walk. Shoulders are so sore. Im not sure if it is my muscles or joints I can't tell. I just know I hurt and am much weaker in my arms now. My toes turn blue on the same left side at times. Nausea, stomach cramps. Gums bleed had blood in my stool a couple times not reguarly though. Just constant pain. Newest thing and the reason I have decided to write this is my eye on that same left side. It is bulging out slightly and feels odd like my eyelid gets stuck on it or something. I am at the point where I feel like a hyperchondriac and everyone just thinks im a complainer by nature or crazy..probably both. I just want to feel good again! I want to not be on all these meds that they "try" on me to see if it gets me better. I just want to know whats wrong and fix it. I am sure there are others out there that understand this feeling. If anyone has any idea Id love to hear their thoughts or suggestions ect...Thank you in advance... Fibromyalgia is a "rule out" diagnosis....in other words, we've ruled out everything else, so we'll call it fibromyalgia (which literally translates to muscle/nerve pain). Like you, I had a lot of pain everywhere, especially on my right side. I got tired of talking about it to my friends, no-one understood at all. My family thought I was a whiner. I researched a lot, diagnosed myself with fibromyalgia (because I didn't want the official label), and stumbled across this site while looking up something else. I posted my story (like you did), and someone came and said - you know, it sounds a lot like a vitamin deficiency. Take a look at the Could it be B12 on this page, and you'll find a lot of the same symptoms. So I looked, and posted, and went to my doctor, only to find out I was deficient in several diferent things, including b12. This is the same dr that I've gone to for over 10 years! What I found out is that most doctor's don't really understand nutritional problems.....And that the processed food that most people eat is lacking the proper balance of nutrients! I'm not a crazy vitamin person, I hate taking pills. I do it because it really works. I'm mostly pain free with the vitamins as supplements I take, another girl has reduced her fibromyalgia symptoms drastically, 1 guy was able to get out of a wheelchair! Take a look, but start at the last couple of pages -- the first ones are very out of date!
    Anonymous 42789 Replies
    • January 20, 2010
    • 04:51 PM
    • 0
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