Discussions By Condition: Medical Stories

ankylosin and stiff muscle's

Posted In: Medical Stories 2 Replies
  • Posted By: myBlue Moon
  • May 29, 2007
  • 04:02 PM

I'm looking for some true answers to this..i have ankylosinspondilitis, and my muscle's are very stiff. i would consider my self in a stage 3 of this from 1-5
i have 2 new hips, now 10 yrs old and my back is curved. as well as a stiff neck, for i cant move it but maybe 2 degrees. i have lost almost the use of my left arm(meaning) i cant extend it out or up and to comb the hair is almost impossible, now my right arm was not so bad, i could at least get a cup from the cabinet. well i when to the doc the other day and he wanted to see how far i could move my arms..in doing so my right arm has allot of muscle pain that goes right to the neck. its so pain full that i cant sleep in my bed. i can feel the pain(throbbing) deep in the shoulder. i have yet to have a doc, do any test on why I'm so stiff and why my muscles are very sensitive to the touch.. IE: a pat on the back will make me cringe with pain or to lift a gallon of milk, i need 2 hands to do so. ,any way this has been going on for over 3 years and I'm looking for some help on this. any ideas

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2 Replies:

  • Hi:My son, 40, has this, it has moved from the hips to the back and neck now, his Dr. is in the process of giving him Cachfxia injections, a new breakthrough drug, the Insurance Co. claims they will cover it, Sun Life. The cost of injections ranges around $20,000. a year, but check your Insurance Co., it may be covered. That would be awesome.:)All the bestF.
    fransan77 1 Replies Flag this Response
  • hello, and thank you for the reply on this.First I'm sorry to here that your son has this, i know the pain.....my doc told me about cortisone it also is a shot, but when i called my ins. for the coverage it would still Cost me $250 a shot per month, sad to say i cant even get $30.00 a month to put away for when me and the wife get older.i was told of some docs in Chicago that have an interest in this. so when i get my disability card I'm going to take the train their so see if they can help in some way.how long has your son had this? for me this started in 89 and no one detected it till 96 when i had my hips replaced.I'm interested in other peoples story's on this. i know I'm not alone but some times it feels like you are.
    myBlue Moon 3 Replies Flag this Response
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