I was diagnosed with a brain Angioma. I have had severe head pain for almost two years in the front part of my head and in the right center, also consisting of the feeling of my head to be asleep at times or the feeling of "crawling" to the point where I itch my head. I also have right facial pressure that includes my eye which recently started having muscle spasms. My lips also tingle, but only the right side. I have also lost hearing in my right hear and have a constant feeling of pressure and sometimes severe pain. I at times lose my balance, my ability to speak and often hesitate when trying to talk as if my speaking pattern is momentarily interrupted. These days seem to come in "episodes". I am exhausted everyday. Recently I have started to experience clear drainage from my right nostril, very tiny amounts, most days I wake up not being able to breath out of my right nostril. I am also experiencing dizziness, memory loss and vision loss. I have black spots in my vision, only out of my right eye. I have also experienced momentary feelings of my "brain" spasaming..as if being on a roller-coaster for about 20 seconds. There has been occasional feelings of burning sensations on the right side of my face as well. I have recently also noticed fluid collecting in the right upper area of my eye socket. I do experience pain throughout my body, arms and legs....at times either the next day or several days later there will be a fingerprint sized bruise usually yellow in color in the areas where the pain was. At times when my head will hurt the most, a 12 on a scale of 1-10, I feel constricted in the ride side of my neck as if my airways are being closed. I have had swollen neck glands for about a year. My MRI stated my nasal passages were clear. I have no sign of a cold or infection. I am not under any stress and have no allergies. I have mood swings also. I have a hard time concentrating.
I was tested for MS and Lupus, both negative. However the neurosurgeon suggested I still may have MS.
I am hoping that someone can offer me some light of hope. I have tried researching the best I could and I come up with nothing. I am the only patient my regular Dr has ever seen with this and offers no information.
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