I hope this helps at least one other chronic fatiguer out there. I have been suffering from something horrible for eight years now, all while trying to finish up medical school of all things, and along the way, being fed Paxil like they were tic tacs.
My symptoms began as subtle problems with my balance, tingling in my extremities, fatigue which would leave me wiped out, headaches- would get migraines at the drop of a hat, swollen lymph nodes in my neck, sore throat, dizziness, lightheadedness.
The symptoms were so disabling! I thought I was headed for a wheelchair, and a motorized one at that because I didn't think I'd have the strength to push my own... and I used to be an avid hiker- 10 mile hike? -no problem. That was a thing of the past...
Due to all the subtle neuro symptoms (fast reflexes, problems walking heal to toe), I've been repeatedly worked up for MS- including the spinal tap- ouch! There's nothing more frustrating than being an udiagnosed neuro case when your symptoms are subtle and fleeting and look so much like "chronic fatigue syndrome"...
In the mean time, it kind of felt like my neck was getting fuller and fuller.The lymph nodes seemed to be growing and eventually my voice got hoarse and I had a hard time swallowing. These symptoms should have been raising all kinds of red flags for my primary doc, but she was asleep on the job, thinking that the specialists would diganose me and she didn't have to think about it or put all the numerous clues together.
Well, eventually I got routed to a movement disorder neurologist who ordered up thyroid antibodies (thyroglobulin antibody and thyroperoxidase antibody), even though my thyroid hormones had always checked normal.
Sure enough, they were positive. I have something called Hashimoto's Encephalopathy, also known as SREAT (steroid responsive encephalopathy associated with autoimmune thyroiditis). It's kind of rare, but is related to a much more common disease, Hashimoto's thyroiditis. Because of the neck swelling, a thyroid ultrasound was done and it showed nodules in my gland, indicating that I am in the process of losing my thyroid function and have the thyroiditis, too (Hashimoto's thyroiditis can progress through several stages- the first one is where your gland is being destroyed and dumps a lot of thyroid hormone into your bloodstream making you jittery and your heart race, etc. then you pass through what can be a long period where your gland is still under attack but your hormone levels are normal, eventually you lose your gland function and become hypothyroid). The thyroid hormones are usually normal in SREAT.
The treatment for the encephalopathy part is steroids, and the prognosis is good. I'm still on the steroid taper and I think that once I get my thyroid hormones straightened out (I started having worsening symptoms of hypothyroidism before starting treatment, which is bad because steroids can suppress your thyroid function, hee hee), I'll be cured!
I hope my story helps someone out there with all my crazy symptoms. Don't let them feed you antidepressants if you know deep inside that you are chronically ill.
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