Discussions By Condition: Medical Stories

Am I Going Nuts

Posted In: Medical Stories 7 Replies
  • Posted By: dorricki
  • January 9, 2007
  • 01:28 AM

In september of 2005 I had a laporoscopy and then a hystorectomy. Very shortly after I developed whels or welts. they can appear anywhere on my body and even in my mouth, eyes, etc. they can be the size of a dime to large enough to cover a thigh. When the occur they are red, raised and angry looking. they are hot to the touch. But not only are they raised on the outside, they also are raised inside. this puts preasure on the nerves surrounding the area they are at. causing loss of feeling.I have been on steroids for almost a year now as well as anti depressants and even a drug that is used for treating malaria. what is this? Is it maybe caused by the hystorectomy? To really make matters worse, I 2 months after the surgery I had a suture start to absess inside me which the dr, removed ok thats over right. nope in a couple more months a suture fell out while I was showering. still tied and fully intact. so I got a ultasound and they tell me my ovaries cant be seen. what?

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  • The next thing I would do is see another doctor. Something just doesn't sound right here. You need another opinion. And make sure to get ALL of your records right down to any bloodwork, tests, hospital records. And don't take "no" for an answer. They are YOUR records. You are definitely not going nuts. I get such a kick out of how some doctors can make us feel this way. YOU know what you are going through. I will keep you in my prayers. Know that you are not alone. I would not be on this forum if I didn't have my own issues to deal with. You take care and please do not give up. God Bless.
    wpbabydoll 6 Replies
    • January 11, 2007
    • 02:01 AM
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  • Thank you and I did see another dr yesterday. he said he had no idea. he was at a loss. but of course he charged me for a visit. the only thing he did tell me was to go to the national institute of health website and serach urticaria,hives,mast cell. crazy huh
    dorricki 2 Replies
    • January 11, 2007
    • 00:38 PM
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  • Hmmmmmm. How about seeing a female doctor? I have found that female doctors are much more open to listen and check the troubles of other females. Men just don't have the same emotions that we have. I had a male doctor. He kept telling me not to worry about things. I had a urinary tract infection that he never tested until I asked him to. When he did, it was positive, yet his office never called me. I saw him a month later and asked about the results and when he checked he said, "we treated you for that". I said, NO YOU DID NOT! He gave me Bactrim. I took it the next day and had an allergic reaction. I called to tell him about it and he insisted it was not an allergic reaction. I ended up in the hospital that night and again the next day. They said it WAS an allergic reaction. They treated me with several medications. I have since seen an allergist (female) who did a battery of test which show no allergies and she said it could be a fluke thing, but just to be safe, she gave me an epi-pen. At least she didn't leave me hanging. she said to call her for ANY strange symptoms and she will be happy to do more testing. Just to give you an idea of the difference. I have now changed my PCM doctor to a female also. We'll see, I have to see her next month for a complete workup and physical. I am having another problem right now that I hope she can help with. Anyway, whatever you do, don't give up. Out there, there is someone who will at least TRY to help you. Sometimes, we cannot find the absolute answers. This I am finding out myself. But to just brush you off, or send you elsewhere says a lot about the doctor. Sounds like he is in the wrong business if he doesn't care about his patients. That is what really counts. If you need an ear, email me again. Till then, you remain in my prayers.
    wpbabydoll 6 Replies
    • January 11, 2007
    • 05:32 PM
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  • True I also like female Dr, and my family physician is a female. she is great but is at a loss. she says if I put a gun to her head and made her give a diagnoses she would say its vasculitis. but she isn't sure. since I live about 45 min from most specialists, she does my biopsies and such to keep the travel cost down. But see a rheumatologist also. he is the one that is giving me all the drugs. In his office its like a group effort with a dermatologist , allergist etc. they all look over the chart and give opinion's of what the next step should be. They don't feel its exterior in nature. I even went to a physic(sp), and a healer. they also think its interior in nature. but no-one can tell me what it is. I also have an epi-pen which is what makes life easier because the closest Dr. office is 20 min from my house and the welts get in my throat. as long as I take the prednisone though I am fine. Thank you
    dorricki 2 Replies
    • January 12, 2007
    • 00:55 AM
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  • I will definitely keep praying for you. Sounds like you are doing everything you can think of. I really feel for you. I'm going through something right now that no one seems to know what is causing either. If you could keep me in your prayers too, I'll appreciate it. You take care. God Bless.
    wpbabydoll 6 Replies
    • January 12, 2007
    • 03:00 PM
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  • I just have a question because it sounds like what happened to me.I too had a complete emergency hysterectomy in 2001. This had its own problems but my question is:Do you drink coffee?I had hives all over and my lips swelled (really liked that part) and had the wheels on my hips, arms, legs...I was alergic to the decaf process of instant coffee. Not all coffees have this process there are many different kinds. I bought a no name brand to save a buck!If this is not it I hope you find out what it is soon.
    Nicole Santillanes 3 Replies
    • January 12, 2007
    • 04:34 PM
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  • Hi there, It could possibly be Porphyria, which can be tested. Just a suggestion. I hope you get an answer and a cure.
    Anonymous 42789 Replies
    • January 13, 2007
    • 09:14 AM
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