Hi, I am looking for suggestions to discuss @ my next appt.
I have been sick for 5 years (3 months after having my baby).
Fatigue- constant, severe enough to limit walking from one room to another.
Vertigo, Headaches, enlarged rock hard occipital lymph nodes, weight loss (severe) with HUGE appetite (weight managed with Duocal). Shaking, transient numbness of the legs, now arms as well. Poor proprioception and clumsiness. intolerance to cold maybe related to my Temperature that has been 99.9 at its lowest, average around 101 (yup, all 5 years) 'brain fog' if that makes sense. Difficulty expressing thoughts. nausea (rarely vomiting anymore). my skin is like paper (i'm only 31) tinitus, vision changes, loss of clarity of sound with intolerance to loud sounds, difficulty concentrating. Upper back pain (some swelling between shoulderblades) frequent sore throats, enlarged liver (I don't drink and rarely take anything metabolized in the liver because of the swelling/ occaisional pain. High white count, blood clots. *stiff neck new -in the last 2 months
Have discussed or been tested for.....
Non-hodgkins, MS, Lyme Disease, Lupus,Epstein Barr, CMV (+ in convalescent phase 2 yrs ago) Vitamin D deficiency, Magnesiium, potassium, B's (serum), MRI head x 2 1yr apart, both ok. Also tested for HIV, RPH, etc. Have seen pshych who said not depression etc (which would not have explained the physical signs anyway) have taken a few rounds of various antibiotics with no change. Allergies (found some but with things I don't come into contact with)
I would really appreciate suggestions, I am having to go to a new doc now (we move every 2 years) Thanks for reading my rambling thoughts!