Discussions By Condition: Medical Stories

3yr daughter has Lupus?

Posted In: Medical Stories 1 Replies
  • Posted By: Anonymous
  • July 15, 2007
  • 02:55 AM

My three year old may have Lupus, but my doctor has not comfirmed that yet. We are going to have a biopsy in 3 weeks, along with a list of blood work. She has fair skin, blond hair, brown eyes and a "butterfly" rash on her face. It was first seen on her left cheek, and then her right cheek, and now parts of her nose is now red. She has had this rash since the end of April. My skin specialist states he doesn't know, and he has not mentioned the word "Lupus" but when I got the order for blood work, I looked up the meanings and now I am freaked out of my mind. I also have a 4 month old too! I just want to find the best doctor out there, and my doctor doesn't have the best bedside manners. He has spent 6 minutes with us, and has said nothing to help me feel better. I would travel anywhere to get the best care for my daughter.

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  • Sometimes local universities have good Rhuematologists that are also professors that keep up to date on newer studies. Dont know what area your from but might want to look online at your local hospitals and research the Rheumatologist to find one that specializes in pediatric lupus only - that way you know they are focusing all thier efforts on what ails your daughter. I know its scarey but it is VERY treatable with the right combination of medications. Be thankful she got a diagnosis and didnt end up very ill while the Doctors sat and scratched their heads. The sooner the diagnosis the better the outcome.
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