Discussions By Condition: Medical Stories

3 yrs 12 specialists ten consultants forty scans no diagnosis

Posted In: Medical Stories 9 Replies
  • Posted By: historian
  • June 7, 2011
  • 05:21 PM

as well as over twenty procedures, It started with a lump at the back of the clitoris inside the body, urology did the first lot of scans and cystoscopy but nothing was found....over 3 yrs this lump has moved from the original place to now, (with gravity) into the vagina...it feels like someone has poured acid into the vagina if I continue to stand. I have had 15 infections in 3 yrs and had an unnessary hysterectomy as I thought this was a prolapse., Every scan, mri, ct and more has not shown this lump. I suggested it retracted when laying flat but was laughed out of the surgery..I have a different gp now but I am still a mystery, the amount of pain control I take is enough to kill a horse, (I love animals) but I still have tremendous pain my life is slipping away someone please help I can't be the only one in the world to have these symptoms.
love from
Historian

Reply Flag this Discussion

9 Replies:

  • Hi. Sorry, your info is not well-structured, so there are many questions. What is the state of your urogenital system? urinary bladder, kidneys, ovaries, etc.? What kind of infections? urinary infections, STD? What kind of pain? vaginal pain or like inflammation process in vagina? kidneys pain? Did you check your peripheral nervous system, may be your "lumb" feeling is connected with nervous problem? What's the state of your spinal cord which controls PNS? Do you have additional symptoms? It's necessary to see full picture of your health state. Very poor information you provided, insufficient info to make reliable diagnostics.
    alltimatehelp 128 Replies Flag this Response
  • Hello and thank you so much for your reply ..you are right of course I haven't been specific as the story is so long and didn't want to bore any one so wanted to tell in parts...It started one morning 3yrs + my body couldn't support itself and the pain felt like a labour pain and my abdomen was burning.I was 58yrs then. Went to bed and thought the pain would go as quick as it had come. It didn't two days later I was in Aand E having been sent there by out of hours doctor who thought I needed my bladder drained,,,Urology thought different. At this time a lump I could feel had settled itself behind the clitoris in the inside of the body and it was embarrasing for me to say it was giving me unwanted sexual arousal. I was at the gps almost everyday I was experiencing things new every day..my GP said he was concerned at how many times I was visiting the surgery . I never saw him again I was frightened and lonely even though I have a great partner we had been having good times both retired him from the RAF and me retired from animal welfare ...we had jst passed our diving test in Maldives life was looking good after some crappy times and hard work.I stayed in bed for five weeks it hurt to walk my abdomen hurt I couldn't eat . We paid to see an abdomen specialist he advised thet we saw an orthopedic surgeon a Mri was don L4 AND L5 was not good but he couldn't see how the pain as bad as it was could come from that area. I was put onto 100 MCG FENTANLY pain patches and amytriptlyn. I had an intolerance to Tramadol and nsaids sorry if the spelling not right .The "Lump` shifted from behind the clitoris and things seemed a little better, it was difficult going places as having been housebound for five months my confidence went. I joined a craft class and I looked forward to ecvery sat. Then one morning I had been standing for twenty mins and felt something hot and burning drop into the vagina...this is still my problem except the lump drops after five minutes...my legs give way and my knees hurt I was called into hospital on a sat cause my pottasium level was high the lump in the vagina is the issue I had a hysterectomy although I was advised agaist it they were right it made things worse. the pain is on a scale of 1-10 an 8 most days on a lucky day it is a 7 and I can manage a 6 but they don't come often. This thing is gravity oriantated but cannot be seen by any scan mri ct nuclea and all other investigations it cannot be seen or felt I cannot go far the pain doesn't allow it and my vagina feels like some one has thrown acid in ...I have done the usual thing the docs want you tp do and thew psyciatrist says it's real and told the gp to deaL with it....I am going compleatly depressed and feel useless and so scared cause each day a little worse I have now been put on cymbalta/duloxatin and infections have been uti and blood in urine thank you for listening I am concerned about time span given to posting so thank you so muc I do have lower back prebs now I suppose I could tell a lot more and will answer questions .bless you thanks for your time
    historian 8 Replies Flag this Response
  • Hello I wrote a very informative answer to the questions I was asked What happenned to that post please? this keeps happenning to me and I don't want to be considered rude in not answering...please help
    historian 8 Replies Flag this Response
  • Hello! Yes, that is a specific operation of this forum. When you post a large text, especially with carriage returns, your post goes to moderator. I dont know how many time it takes to check the posts, maybe several days, maybe several weeks, but it's very inconvenient. My advice is: first, type your message in any text editor (like Notepad, MSWord, etc.). Second, try to post short message with one line of the text. Next, try to edit post (press appropriate button after posting) and insert (paste) full text copied from your text editor. Avoid empty lines and paragraphs. Hope this helps
    alltimatehelp 128 Replies Flag this Response
  • historian.. your post should turn up at some point (sometimes they can take quite a while to show up at the site) ... obviously it went to the mods for some reason.
    taniaaust1 2267 Replies Flag this Response
  • Hello I wrote a very informative answer to the questions I was asked What happenned to that post please? this keeps happenning to me and I don't want to be considered rude in not answering...please helpThe first 10 posts go through the moderators based on certain criteria.
    Freddd 3576 Replies Flag this Response
  • as well as over twenty procedures, It started with a lump at the back of the clitoris inside the body, urology did the first lot of scans and cystoscopy but nothing was found....over 3 yrs this lump has moved from the original place to now, (with gravity) into the vagina...it feels like someone has poured acid into the vagina if I continue to stand. I have had 15 infections in 3 yrs and had an unnessary hysterectomy as I thought this was a prolapse., Every scan, mri, ct and more has not shown this lump. I suggested it retracted when laying flat but was laughed out of the surgery..I have a different gp now but I am still a mystery, the amount of pain control I take is enough to kill a horse, (I love animals) but I still have tremendous pain my life is slipping away someone please help I can't be the only one in the world to have these symptoms.love from HistorianHi Historian,It's possible the pain is neurological and/or inflammatory. I have had major pain problems for decades and am in pain management. I have had a 90% or more reduction of pain with the right brand and usage of methylb12 and Metafolin and was able to significantly reduce morphine and still have better pain control. Mb12 and Metafolin can reduce both neurological pain and inflammatory pain.
    Freddd 3576 Replies Flag this Response
  • Hi Historian, It's possible the pain is neurological and/or inflammatory. I have had major pain problems for decades and am in pain management. I have had a 90% or more reduction of pain with the right brand and usage of methylb12 and Metafolin and was able to significantly reduce morphine and still have better pain control. Mb12 and Metafolin can reduce both neurological pain and inflammatory pain.thank you Freddd for youre reply, I would try anything to become better..where would a person get those items you mentioned? I have an intolerence to anti inflamatory's. thanks for reply
    historian 8 Replies Flag this Response
  • thank you Freddd for youre reply, I would try anything to become better..where would a person get those items you mentioned? I have an intolerence to anti inflamatory's. thanks for replyHi Historian,Read the basics here > http://forums.wrongdiagnosis.com/showthread.php?t=62327Towards the end of the thread are some updated versions of earlier posts with newer information.So as to have a better idea of what is going on would you also go through the symptoms list identifying all the symptoms you have or have had from the list. Some symptoms are part of progression sequences so the older version disappears as the newer ones come on. The immune system is impaired by lack of mb12 and methylfolate causing lots of infections.Unfortunately the usual tests of b12 are not predictive of response or lack of response to active b12s (mb12, adb12). Also, research indicates that many neurological repairs can occur even if the problem was caused by toxins or injury. It isn't just a matter of taking these two items either. Sometimes there are other things that need to be discontinued because they can cause certain problems. For instance some people can have folate deficiency caused by whey, NAC, glutathione, folic acid, folinic acid and vegetable food folate. When a "hard" folate deficiency occurs because of these items widespread inflammatory pain can occur.
    Freddd 3576 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.