Discussions By Condition: Medical Stories

3 siblings born with pnuemothorax

Posted In: Medical Stories 0 Replies
  • Posted By: momof3girls
  • June 30, 2007
  • 02:19 AM

I have 3 daughters ages 9, 5 & 15 months. All 3 were born with spontaneous pnuemothorax at birth, two were bilateral. My oldest daughter has severe asthma. The doctors are going to send her for Cystic Fibrosis (CF) testing. She has only the lung symptoms of the disease. She also has been diagnosed with Hypermobility Syndrome (HMS). IEverytime we go to a new doctor or thr ER and I give their medical history the doctors say how rare it is that they were born with spon. pnuemos. They make comments about getting studied for hereditary disorders. Never has been too big a deal just interesting, until now. The docs don't really think my daughter has CF, just want to rule it out. But I'm scared to death and wondering what else it could be or if we can get help for her lungs and joint pain. Please help if you can!!!!!


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