Discussions By Condition: Medical Stories

15 and sick ...for life...tear...!!!

Posted In: Medical Stories 15 Replies
  • Posted By: excilla
  • February 2, 2007
  • 03:50 PM

helllo everyone-------

okay i have something to say...................???????

here it is.......

my name is excilla ramirez,15, attending my freshman year at industrial high and for about 3 years now i have been suffuring with this pain in my chest and dizzy spells and swelling in my joints and i also lose all my strength and i become a diffrent person for 2 weeks at a time were it is like for 2 weeks i cant hold anything down (vomiting) well it used to be 2 weeks but now its happening a lot more closer together than usual and i get really bad head aches ---- myigranes really ---- but and were i just sit im my room well hospital room all day and cry i am like this most of the time but for about 2 weeks out of a month is when it is really bad ...unbarable...i missed a total of 107 days of school last year becaues of it........:eek:
at this point i really just wish i could die because nobody understands me ....people tell me all the time that im faking it how can someone tell a child that there faking it ...ya i just choose to live a life with no friends because everyone is scared of me....plus im never there to make good friends in the first place my closest friend would be my mom ... at times i think she is the only one who believes me ...doctors tell me that its nothing ...that its all in my head...i cry everynight hoping that someone one day could help me....or not even that just believe me

about 3 months ago i was to go see this doctor and i was told by others that he was goin to heal me and everything was going to be better and that he was goin to dignose me with lupus and give me a medicine that would cure me ......but i go in that day and he tells me he doesnt know whats wrong and that its not lupus that is something else and he just doesnt know ....................

To me that just really KILLED :confused: me because i thought i was going to be better after all that time and it even kills me to talk about it because as you go through all the doctors and medicines i go through i dont know what to do (TEAR)
( i basicly give up on all hope )
see people i have heard this for 3 years that they just didnt know and i thought so badly today that he was gonna heal me and i was gonna be better and live a normal life but it turns out not...........

this is what i suffer with i am gonna list them and tell me if u can come up with anything b/c so far doctors have told me...there not dignoses just quesses

- fybromyalgia
- lupus
- ciliac

thats what they think is wrong but this doc says no that i have none of that ....that its something else .........

these are symtoms.....

* contant vomiting ( cant even hold down water to take a pill
* hair loss
* cronic chest pain
* tingling in hands and arms and feet and legs
* tired all the time
* myagrains
* dry eyes
* I have a skin rash on face and arms well threw out my whole body but that just stays there it doesnt come and go like everything else
* fainting /dizzy spells

To talk about the fainting/dizzy spells see I think that its really getting serious cause my last one caused me to have a major concusion well it basicly put me out for 3 days.......so this IS my life im dealing with and doctors and nurses have the nerve to ask my mom..............

do u think she is faking it

like omg people are u for real...........

last year i missed a 107 days:o of school and i passed to the next grade b/c a i have good grades and im really smart and i know when somethings wrong with me and nobody wants to believe me


I cry all the time when people say they cant help me and tell me im faking it that there is really nothing wrong with me .....b/c i know there is and idk what to do about it

so plz if u know anything tell me or talk to me .......

i would praise u if u could telll me something :)
i wanna be a kid i wanna be able to go out with friends to dances and be at school to actully learn ......but im gettin home school now because of this .... but my m om says as soon as they can find out whats wrong then i can go back to regular school......
plz help it u can............

THANKS FOR LISTENING


Excilla Marie Ramirez

Reply Flag this Discussion

15 Replies:

  • DEFINATELY follow up on Celiac - find a doctor who is educated in it. For your age group I think its the most likely culprit of the ones you listed. There is also the possibility of non-gluten food intolerence. It looks/acts like Celiac but it isn't studied much in the medical journals. I totally understand what you're going through. I missed about an average of 3 days a week in high school and only managed to get by on being smart, learning quickly, and reading while I was sick in bed. Everyone thought I was just upset because my grades weren't good enough for me or because I was putting myself under too much pressure?? No one would believe me when I said I really believed I was sick. "Oh your stomach hurts because your nervous about the test" "Oh you're tired because you probably stayed up late studying" "Oh maybe you should take these depression meds so you don't feel so sad." Eventually at some point the doctors did decide my body was in stress and said they should take out my tonsils and my adenoids. I got the tonsils out but it only helped for a short time. Why did it take five years for the doctors to believe me that I was always sick? I don't know. For me it was Celiac. I haven't been to a doctor in six years, but I cured myself last year. My life is totally different now. Getting better is possible.
    Azaral 152 Replies
    • February 2, 2007
    • 06:25 PM
    • 0
    Flag this Response
  • Please read this pagehttp://users.mrbean.net.au/~wlast/lupus.html and also get the books: "Never Be Sick Again" (Raymond Francis) and "Eat Right for your Type". (Dr. D'Adamo).Have your care takers to follow closely the instructions in those books. All of this has helped me very much to connect the dots, since doctors don't care to try.I send you a Hug.For now start by*stop consuming dairy products, red meat, turkey, wheat, sugar, bakes, all processed foods.When you read all the sources you'll find out why you need to stop eating those.Take Care.
    Anonymous 42789 Replies
    • February 2, 2007
    • 06:47 PM
    • 0
    Flag this Response
  • hi everyone this is excilla just wanted to tell yall that this one stupid doctor as said i have fybromyagia and i will never be able to get better that i will be like this for the rest of my life....and of course that is upseting ...upsetting enough at that point were i said i wanted to die to kill myself....stupid me said that infront of the doctor who stuck me in a instutution...god i hate doctors...well not all just the ones i have...except for doctor pathiconda...i love her she is the only one that believes me......tootles...excilla
    Anonymous 42789 Replies Flag this Response
  • Don't give up and don't settle for a doctor who says you can't get better! IMO those are the doctors who may have a lot of book smarts, but they have no concept of what its like to actually be sick. Honestly, a lot of doctors are just in it for the money, and they make less if you get a true cure. "Most practicing physicians and researchers alike will tell you that the chronic pain diagnosis a person first receives is often colored by their chief symptom complaint. -For example, widespread muscular pain is often diagnosed by rheumatologists as fibromyalgia syndrome. -A person who is overcome by extreme fatigue and flu-like symptoms might consult an infectious disease expert and receive the diagnosis of chronic fatigue syndrome. -A person who has severe jaw pain might see a dentist and be told that they have temporomandibular joint dysfunction (TMJD). -People who appear to have allergic-type symptoms to a number of chemicals, foods, or odors may be informed by an allergist that they have MCS. "www.fmnetnews.com/basics-overlap.php You have serious digestive issues and symptoms pointing to malnutrition. These are the symptoms you mentioned that are all signs of your body rejecting food: * contant vomiting * hair loss* tingling in hands and arms and feet and legs* tired all the time * myagrains* dry eyesWhat we eat is incredibly important and a lot of people out there are sick because they don't understand what types of food are good for them and which ones they cannot have at all because of the uniqueness of each person. You should have your b12 and iron levels checked out, I suspect they are probably low. Talk to a gastrointerologist about what might be causing your digestion to work improperly. Expiriment with foods until you find a diet that makes you not want to throw up. Very tiny amounts of aggresive foods can cause serious digestion over long periods of time.
    Azaral 152 Replies Flag this Response
  • Don't give up and don't settle for a doctor who says you can't get better! IMO those are the doctors who may have a lot of book smarts, but they have no concept of what its like to actually be sick. Honestly, a lot of doctors are just in it for the money, and they make less if you get a true cure. "Most practicing physicians and researchers alike will tell you that the chronic pain diagnosis a person first receives is often colored by their chief symptom complaint. -For example, widespread muscular pain is often diagnosed by rheumatologists as fibromyalgia syndrome. -A person who is overcome by extreme fatigue and flu-like symptoms might consult an infectious disease expert and receive the diagnosis of chronic fatigue syndrome. -A person who has severe jaw pain might see a dentist and be told that they have temporomandibular joint dysfunction (TMJD). -People who appear to have allergic-type symptoms to a number of chemicals, foods, or odors may be informed by an allergist that they have MCS. "www.fmnetnews.com/basics-overlap.php You have serious digestive issues and symptoms pointing to malnutrition. These are the symptoms you mentioned that are all signs of your body rejecting food: * contant vomiting * hair loss* tingling in hands and arms and feet and legs* tired all the time * myagrains* dry eyesWhat we eat is incredibly important and a lot of people out there are sick because they don't understand what types of food are good for them and which ones they cannot have at all because of the uniqueness of each person. You should have your b12 and iron levels checked out, I suspect they are probably low. Talk to a gastrointerologist about what might be causing your digestion to work improperly. Expiriment with foods until you find a diet that makes you not want to throw up. Very tiny amounts of aggresive foods can cause serious digestion over long periods of time.I agree with the previous poster.Excilla, don't turn deaf ear to my previous suggestion.The doctor does not have "boca de santo", what he says does not have to be an unavoidable truth. You have to do some work on your own so you can get better- don't expect a doctor to "heal" you. It does ot work like that.Even you had fibro, there are truck loads of alternative books and doctors of alternative medicine who can help you balance your system and coach you into great wellness habits.Be good to yourself- search for answers Corazon.Best.Eatafruit78.Arlington, VA.
    Anonymous 42789 Replies Flag this Response
  • I am sorry you have had such difficulties with your docs, but I am not surprised. Why not take a break and try an alternative practitioner? I guarantee they will not tell you it is "all in your head" or due to "stress" but they might come up with answers Western docs don'[t have. A good naturopath or acupuncturist or even homeopathic doctor could really help you. I agee that you sound very malnourished. That much vomiting is causing an extreme imbalance. Most Western docs just don't treat this successfully, in my opinion. Lastly, what meds are you currently taking?Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Please do not listen to anything Shula or Acuann tell you. My sister just passed away because Shula and Acuann told her that her doctor was wrong and she did not have a serious condition. Acuann even told her to get acupuncture to get healed. These people are going to be investigated for practicing medicine without a license. Shula and Acuann are specifically wanted in connection with my sisters homocide. Thats right homocide. If she would have listened to her doctor instead of these internet quacks she would still be here today. Rest assured I will do everything in my power to put these two behind bars and shut this website down for good.
    Anonymous 42789 Replies Flag this Response
  • Hello, My 15 year old son was diagnosed with fibro a year ago. After five years of dragging him to different doctors. They thought we were crazy too. Just don't give up keep looking and doing research but never give up!!! I am currently homeschooling him because the schools do not care about sick children. I wish you well. Lori
    Anonymous 42789 Replies Flag this Response
  • hello everyone. its excilla. people are tell me about a chemical off balance. what is that can anyone tell me its deals with the brain.
    Anonymous 42789 Replies Flag this Response
  • Excilla Marie Ramirez, 10/28/2008 Some of the most common symptoms of celiac disease include: Bloating or Gas DiarrheaConstipation Fatigue Itchy Skin RashTingling/NumbnessPale Mouth Sores Joint PainDelayed Growth Poor Weight GainThin BonesInfertilityHeadachesDepressionIrritabilityDiscolored Teeth A physician should order the following blood tests:Total IgA IgA antitissue transglutaminase (tTG) IgA antiendomysial antibody immunofluorescence (EMA) If IgA is deficient, IgG tTG test should also be ordered. At the discretion of the doctor, antigliaden IgG can also be ordered. **It is important to continue eating a normal, gluten-containing diet before being tested for celiac. If the blood tests and symptoms indicate celiac, a physician may suggest a biopsy of the lining of the small intestine to confirm the diagnosis. My teenage son had many of the same symptoms as you and it went on and on for months with X-Rays, MRI’s and CT scans all showing nothing! Then I consulted with a surgeon that knew our family well and had done surgeries on me. His suggestion was to do laparoscopic surgery, where you have 2 to 3 tiny incisions on your abdomen and a light with a camera is inserted so the surgeon can see everything from top to bottom and take multiple pictures if needed. In my sons case his gallbladder was enormous and diseased along with a slight irregular appendix. The organs were removed during that procedure and he was like a changed person. His passion for life returned, he loved sports, church lock group activities and many other things all teens should enjoy. Do not let these doctors dismiss your illness as something mental you know your body and what you physically feel, and yes everything you have gone through has probably led to depression. You could be having a serious reaction to your environment or the foods you eat, possibly the pesticides or preservatives used on these foods. Your home should be tested for mold, it is in places between walls under flooring, in bathrooms and kitchens and above some ceilings. There is a simple test to check for this. Mold can cause multiple symptoms, some that you are having and some more severe like neurological damage if exposed for a certain amount of time and people have become very ill due to this and literally abandoned their homes because the exposure was astronomical. Your medication can be causing more harm than good. It could be as simple as sensitivity to latex, sunlight, laundry detergent, dryer sheets,soaps. You and your parents have to take control of this situation and multiple opinions from specialists and don’t let them push you around!! You or your insurance are paying thousands of dollars, they work for you! They are your EMPLOYEE!!! Demand what you pay for, doctors have this know it all GOD syndrome but you can get past that. I sincerely hope you the best helllo everyone------- okay i have something to say...................??????? here it is....... my name is excilla ramirez,15, attending my freshman year at industrial high and for about 3 years now i have been suffuring with this pain in my chest and dizzy spells and swelling in my joints and i also lose all my strength and i become a diffrent person for 2 weeks at a time were it is like for 2 weeks i cant hold anything down (vomiting) well it used to be 2 weeks but now its happening a lot more closer together than usual and i get really bad head aches ---- myigranes really ---- but and were i just sit im my room well hospital room all day and cry i am like this most of the time but for about 2 weeks out of a month is when it is really bad ...unbarable...i missed a total of 107 days of school last year becaues of it........:eek: at this point i really just wish i could die because nobody understands me ....people tell me all the time that im faking it how can someone tell a child that there faking it ...ya i just choose to live a life with no friends because everyone is scared of me....plus im never there to make good friends in the first place my closest friend would be my mom ... at times i think she is the only one who believes me ...doctors tell me that its nothing ...that its all in my head...i cry everynight hoping that someone one day could help me....or not even that just believe me about 3 months ago i was to go see this doctor and i was told by others that he was goin to heal me and everything was going to be better and that he was goin to dignose me with lupus and give me a medicine that would cure me ......but i go in that day and he tells me he doesnt know whats wrong and that its not lupus that is something else and he just doesnt know .................... To me that just really KILLED :confused: me because i thought i was going to be better after all that time and it even kills me to talk about it because as you go through all the doctors and medicines i go through i dont know what to do (TEAR)( i basicly give up on all hope ) see people i have heard this for 3 years that they just didnt know and i thought so badly today that he was gonna heal me and i was gonna be better and live a normal life but it turns out not........... this is what i suffer with i am gonna list them and tell me if u can come up with anything b/c so far doctors have told me...there not dignoses just quesses - fybromyalgia- lupus- ciliac thats what they think is wrong but this doc says no that i have none of that ....that its something else ......... these are symtoms..... * contant vomiting ( cant even hold down water to take a pill* hair loss* cronic chest pain* tingling in hands and arms and feet and legs* tired all the time * myagrains* dry eyes* I have a skin rash on face and arms well threw out my whole body but that just stays there it doesnt come and go like everything else* fainting /dizzy spells To talk about the fainting/dizzy spells see I think that its really getting serious cause my last one caused me to have a major concusion well it basicly put me out for 3 days.......so this IS my life im dealing with and doctors and nurses have the nerve to ask my mom.............. do u think she is faking it like omg people are u for real........... last year i missed a 107 days:o of school and i passed to the next grade b/c a i have good grades and im really smart and i know when somethings wrong with me and nobody wants to believe me I cry all the time when people say they cant help me and tell me im faking it that there is really nothing wrong with me .....b/c i know there is and idk what to do about it so plz if u know anything tell me or talk to me ....... i would praise u if u could telll me something :) i wanna be a kid i wanna be able to go out with friends to dances and be at school to actully learn ......but im gettin home school now because of this .... but my m om says as soon as they can find out whats wrong then i can go back to regular school......plz help it u can............ THANKS FOR LISTENING Excilla Marie Ramirez
    LAB2103 1 Replies
    • October 28, 2008
    • 08:51 PM
    • 0
    Flag this Response
  • you might try them looking for scelorderma...
    Anonymous 42789 Replies
    • January 29, 2009
    • 02:51 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Oh!!so sorry hearing that as i can understand your pain...coz i have beenn giong through this situation for last 5 and half years...Beside the problem u have...i also have high asthema,hypertension,joint hypermobility,less strength in left side of the body,Inclusion body myosities,neuropathy,IBS,REflux Esophagitis...bla bla bla...there are more than one guesses...1.Scleroderma Sine Scleroderma2.Lupus3.Multiple Sclerosis4.Fibromyalgia5.Chronic Fatigue Syndromei went through Chemotheraputic drugs,Steroids Therapy,Immune-Suppressive therapy and lots of...but there is no improvements!!i don't know why doctors just love to say that it's all in ur head!!trust me...i'm fighting against me in every single second!!
    Anonymous 42789 Replies
    • August 16, 2009
    • 01:32 PM
    • 0
    Flag this Response
  • helllo everyone------- okay i have something to say...................??????? here it is....... my name is excilla ramirez,15, attending my freshman year at industrial high and for about 3 years now i have been suffuring with this pain in my chest and dizzy spells and swelling in my joints and i also lose all my strength and i become a diffrent person for 2 weeks at a time were it is like for 2 weeks i cant hold anything down (vomiting) well it used to be 2 weeks but now its happening a lot more closer together than usual and i get really bad head aches ---- myigranes really ---- but and were i just sit im my room well hospital room all day and cry i am like this most of the time but for about 2 weeks out of a month is when it is really bad ...unbarable...i missed a total of 107 days of school last year becaues of it........:eek: at this point i really just wish i could die because nobody understands me ....people tell me all the time that im faking it how can someone tell a child that there faking it ...ya i just choose to live a life with no friends because everyone is scared of me....plus im never there to make good friends in the first place my closest friend would be my mom ... at times i think she is the only one who believes me ...doctors tell me that its nothing ...that its all in my head...i cry everynight hoping that someone one day could help me....or not even that just believe me about 3 months ago i was to go see this doctor and i was told by others that he was goin to heal me and everything was going to be better and that he was goin to dignose me with lupus and give me a medicine that would cure me ......but i go in that day and he tells me he doesnt know whats wrong and that its not lupus that is something else and he just doesnt know .................... To me that just really KILLED :confused: me because i thought i was going to be better after all that time and it even kills me to talk about it because as you go through all the doctors and medicines i go through i dont know what to do (TEAR)( i basicly give up on all hope ) see people i have heard this for 3 years that they just didnt know and i thought so badly today that he was gonna heal me and i was gonna be better and live a normal life but it turns out not........... this is what i suffer with i am gonna list them and tell me if u can come up with anything b/c so far doctors have told me...there not dignoses just quesses - fybromyalgia- lupus- ciliac thats what they think is wrong but this doc says no that i have none of that ....that its something else ......... these are symtoms..... * contant vomiting ( cant even hold down water to take a pill* hair loss* cronic chest pain* tingling in hands and arms and feet and legs* tired all the time * myagrains* dry eyes* I have a skin rash on face and arms well threw out my whole body but that just stays there it doesnt come and go like everything else* fainting /dizzy spells To talk about the fainting/dizzy spells see I think that its really getting serious cause my last one caused me to have a major concusion well it basicly put me out for 3 days.......so this IS my life im dealing with and doctors and nurses have the nerve to ask my mom.............. do u think she is faking it like omg people are u for real........... last year i missed a 107 days:o of school and i passed to the next grade b/c a i have good grades and im really smart and i know when somethings wrong with me and nobody wants to believe me I cry all the time when people say they cant help me and tell me im faking it that there is really nothing wrong with me .....b/c i know there is and idk what to do about it so plz if u know anything tell me or talk to me ....... i would praise u if u could telll me something :) i wanna be a kid i wanna be able to go out with friends to dances and be at school to actully learn ......but im gettin home school now because of this .... but my m om says as soon as they can find out whats wrong then i can go back to regular school......plz help it u can............ THANKS FOR LISTENING Excilla Marie Ramirez Hi Excilla, 100% 0f the things you mention could be a specific kind of b12 deficiency. http://forums.wrongdiagnosis.com/showthread.php?t=62327 Check here for the symptoms list then come to http://forums.wrongdiagnosis.com/showthread.php?t=9948&page=241 and let's discuss it.
    Freddd 3576 Replies
    • August 17, 2009
    • 06:24 PM
    • 0
    Flag this Response
  • Hi,I think you should look into Lyme Disease. This is a very serious disease that is carried by ticks. Anyone can get this and doctors always ignore this disease. Google it.LYME Disease. It is in the U.S. and Canada and many other countries.Good luck.
    Anonymous 42789 Replies
    • January 8, 2010
    • 04:37 AM
    • 0
    Flag this Response
  • Excilla, I second what Freddd wrote - please check out the link he pointed you to. There are many people there who have gone through exactly what you have - with doctors telling them it is all in their heads. If your problem is a B12 deficiency, the information at that link can help!!Velha
    velha508 321 Replies
    • January 9, 2010
    • 08:04 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.