This is Fanny Lu, female, a young woman with oncongenic hyphphosphatemic osteomalacia, who lives in Guangzhou China Mainland & is suffering from this strange disease for almost seven years. Before that, I was a lovely girl with excellent health and even seldom to have a fever or catch a cold.
I have been suffering this disease for nearly seven years since this disease is often disappear in Europe, but seldom in Asia, especially in China. So I haven’t got a definite diagnosis until at the end of year 2003 & did not obtain the suitable medication for further treatment.
My physicians here also highly betting TIO cause my lower phosphors and FGF23 is higher than normal range. So I have been informed to do more and more exactitude whole body check to see if any tumors in my body to cause it. But unfortunately they also haven’t found any tumors again in my body.They’re nail-biting of my strange disease.
I feel so painful. Now I have to walk on crutch very slowly & stay at home everyday to wait for God coming. This disease is not cancer & would be treatable. It’s so melancholy to being handicapped as so young by a treatable disease.
It’s become a strange disease here. NO any equipments to find this tiny tumors in my body in China. and NO any organization or foundation would help me to seek any help from worldwide. I know there is a foundation which concern this disease in USA and do more exercises with this disease. Could you please help me to find it out? I don’t want to being the third handicapped in my family.
Though it sounds an uncertain thought, but if there is any a little chance for me, I still want to have a try since I am still younger & full of desiring to live in this world.
Any information would be appreciatate.You could reach me by: FannyLu2004@hotmail.com at your convience time.