Discussions By Condition: Medical Errors

When you're unsure get a second opinion

Posted In: Medical Errors 10 Replies
  • Posted By: auntie_biotic
  • May 12, 2008
  • 00:41 AM

Like many people writing in this forum. I was not happy with my diagnosis.
I was first diagnosed with tuberculosis. Prescribed tb medication
This changed to mdr (multidrug resistant tuberculosis). Prescribed more medication.
This changed to atypical (a rare form of) tuberculosis. more meds

Then I needed to have part of my lung removed
Then I needed a whole lung removed.

I was actually feeling very ill, but I had a hunch something was not right.
I asked for my medical records and couldnt understand much, so asked for help via internet. I actually researched the top 10 in the field of atypical tb and sent them my lab reports. I was willing to travel from UK to US if neccesary for treatment. Nine doctors replied to me, Six told me to seek 2nd opinions. One doctor put me in touch with a specialist in the UK. On my first visit armed with medical records he told me I did not have disease in fact I did not have any disease.
He advised me to stop medication immediately as it was tabs that were making me feel ill.
I was in shock. To confirm his diagnosis he asked me to visit another specialist in neighbouring town. Who confirmed I would stop being ill once I stopped meds as I did not have tb or any other illness.

The good thing about my story is I am now well informed about tb and set up my website "Tuberculosis and you". TB and U http://www.tbandu.co.uk
So if in doubt PLEASE get a 2nd opinion.
PS Cheer yourselves up on the message board (funny bones section) and add any funny stories of your own.

Reply Flag this Discussion

10 Replies:

  • praise the lord you story gives me hope about my own situation
    pooh38635 15 Replies Flag this Response
  • What your story pooh?
    auntie_biotic 7 Replies Flag this Response
  • its different from yours i had a scare with hsv1...
    pooh38635 15 Replies Flag this Response
  • hope your ok now:)
    auntie_biotic 7 Replies Flag this Response
  • thank you i have faith in ***********t..i have prayed to God and put it in his hands...im going back to the docor so keep me in yo prayers and ill keep you in mind because i know how it feels to not know whats going on my sister has been suffering for four years...
    pooh38635 15 Replies Flag this Response
  • I wish I had faith. The only faith I have is the answers are out there on the internet. Do your research and double check what doctors tell you.My doctors were out to make a name for themselves by diagnosing me with a very rare and practically uncurable disease.If you email me privately I can do some research for you so you are better informed and will be able to ask your doctor correct questions.
    auntie_biotic 7 Replies Flag this Response
  • ive been there the doctor i have is no where to be found and they didnt even call me wit the result have had to hunt them down and when i did get in touch with them they acted clueless as if they had no idea what i was talking bout..... go read my thread and you will understand its call im done im putting it in God's hands.. and thank you for wanting to help me and i believe you do have faith because if you didnt you would have gave up on yourself along time ago..your a strong person and i dont want you to think differently...i would love for you to help me
    pooh38635 15 Replies Flag this Response
  • We all need to help each other pooh.Be happy to help another auntie_biotic @ tbandu.co.uk(Just close the gaps in above email address, I put gaps in to stop robot scammers).
    auntie_biotic 7 Replies Flag this Response
  • i cant send you a message can you message me instead
    pooh38635 15 Replies Flag this Response
  • We all need to help each other pooh.Be happy to help another auntie_biotic @ tbandu.co.uk(Just close the gaps in above email address, I put gaps in to stop robot scammers).ok i just emailed you...
    pooh38635 15 Replies Flag this Response
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