Like many people writing in this forum. I was not happy with my diagnosis.
I was first diagnosed with tuberculosis. Prescribed tb medication
This changed to mdr (multidrug resistant tuberculosis). Prescribed more medication.
This changed to atypical (a rare form of) tuberculosis. more meds
Then I needed to have part of my lung removed
Then I needed a whole lung removed.
I was actually feeling very ill, but I had a hunch something was not right.
I asked for my medical records and couldnt understand much, so asked for help via internet. I actually researched the top 10 in the field of atypical tb and sent them my lab reports. I was willing to travel from UK to US if neccesary for treatment. Nine doctors replied to me, Six told me to seek 2nd opinions. One doctor put me in touch with a specialist in the UK. On my first visit armed with medical records he told me I did not have disease in fact I did not have any disease.
He advised me to stop medication immediately as it was tabs that were making me feel ill.
I was in shock. To confirm his diagnosis he asked me to visit another specialist in neighbouring town. Who confirmed I would stop being ill once I stopped meds as I did not have tb or any other illness.
The good thing about my story is I am now well informed about tb and set up my website "Tuberculosis and you". TB and U http://www.tbandu.co.uk
So if in doubt PLEASE get a 2nd opinion.
PS Cheer yourselves up on the message board (funny bones section) and add any funny stories of your own.
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