Discussions By Condition: Medical Errors

Vasculitis or what???

Posted In: Medical Errors 2 Replies
  • Posted By: Danieller
  • August 13, 2007
  • 05:54 PM

I was hospitalized in april with a debilatizing headache, high blood pressure and severe rash on my back. They did a spinal tap, MRI, Cat scan and angiogram. They think it may be vasculitis. They sent me home with a perscription fo Desipramine. I have very bad headaches everyday. There is very little relief with pain meds. I am exhausted, difficulty sleeping, brownish rash on my back, left side of my head hurts.My left eye gets blurry. The doctor said I had a subarachnoid hemhorrage. Fingers and feet swell all of a sudden for no reason. I have a lot of confusion and my memory sucks. Too many other symptoms to list. Any replies would be appreciated. Thanks Danielle

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  • Danielle,...Hi There, YES I am a bit late in reading your post as I am busy researching the strange things happening to me and as I can see you were doing the same. My memory sucks also...On jan 27th 2005, in the middle of the night, I had a subarachnoid hemmorage, It required surgery....I am now being led to the vasculitis dept (not by the drs, but my research, since almost 200 drs in 3 states do not know), anyway...For me now...the drug for migraine is FROVA 2 mg, it works great although sometimes, I must take 2 within 1 hr and no more than that in 24 hrs, and I do know that the high blood pressure can and will cause migraine... NOW......HAVE YOU BEEN EXPOSED TO ANY TYPE OF CHEMICALS, EITHER FROM; NEW REHAB OF BUILDINGS SUPPLIES, PAINT, EXCESSIVE DUST FROM SANDING WALLS, GLUES USED IN MANFACTURING, MOLDS, NEARBY PLANT WITH EXAUST STACK, CREAMATORY, METHANE EITHER FROM LANDFILL, PROPANE, OR NATURAL GAS IN HOME OR OFFICE?????????? I AM FINDING ALOT OF THINGS IN MY HEALTH SITUATIONS THAT ARE A DIRECT CAUSE OF MY EXPOSURE, AND IT IS NOT AS YET IN THE KNOWLEDGE OF THE WHOLE MEDICAL COMMUNITY, WE ARE TESTING LEARNING AND THEN NAMING...I WILL KEEP ALL FORUMS UPDATED AS WE LEARN, AND THIS IS ONE OF THEM... SYSTEMIC VASCULITIS......HOW IS THE RIGHT SIDE OF YOUR BODY DOING? I FOUND OUT THIS PAST WED THAT MY LUNG TISSUE IS DISSOLVING...INTERESTING..... IF THE PROBLEMS ARE STILL AROUND, I WOULD LIKE TO HELP YOU FIND THE ANSWERS, JUST EMAIL ME OR POST HERE. GOD BLESS!!!!! MARY (still alive)
    still alive 20 Replies Flag this Response
  • I was hospitalized in april with a debilatizing headache, high blood pressure and severe rash on my back. They did a spinal tap, MRI, Cat scan and angiogram. They think it may be vasculitis. They sent me home with a perscription fo Desipramine. I have very bad headaches everyday. There is very little relief with pain meds. I am exhausted, difficulty sleeping, brownish rash on my back, left side of my head hurts.My left eye gets blurry. The doctor said I had a subarachnoid hemhorrage. Fingers and feet swell all of a sudden for no reason. I have a lot of confusion and my memory sucks. Too many other symptoms to list. Any replies would be appreciated. Thanks DanielleHave your drs checked you for Wegeners Granulomatosis? It is a rare vasculitis disease.
    Anonymous 42789 Replies Flag this Response
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