Discussions By Condition: Medical Errors

Unexplained Seizures

Posted In: Medical Errors 6 Replies
  • Posted By: Clueless
  • February 5, 2008
  • 11:53 AM

My 17 year old brother has had seizures since he was 11 months old. For 15 years he has been treated for Epilepsy but despite the medication the seizures contined and ranged from one once a year until it was one once a week. For a week he was in hospital and they monitored his brain waves after giving him caffeine, chocolate, alcohol and depriving him of sleep. His brain waves did not vary and thus they have virtually ruled out Epiliepsy. From here he went to Caridiologist and they took him off the Epilim and have treated him with heart medication as his heart rate sometime ranges from 37 bpm to 170 bpm. Although he is now on the heart medication the seizures have still continued. He had a loop monitor inserted in his chest in January last year and there was no seizure from January last year but in January this year they have started again. I’m sure there is a problem with the heart but do not think this is the cause of the seizures because the loop monitor did not record when he had one thus indicating the heart didn’t change out the set parameters of the loop monitor. His seizures vary and for the first time ever he felt it coming on with his last seizure. There is no consistency as to when they occur or any obvious things that trigger it. To describe his seizures he appears to be staring into space and is in what appears to be a catatonic state. He tends to get stuck in a repetitive motion normally his hand twitching. After the seizures he normally has a huge head ache, throws up and then sleeps for a few hours. It’s been 16 years and no-one seems to have any idea what it can be but there is obviously something amiss to be causing these for 16 years now. Is there anyone who has a similar symptoms or any explanation as to what this could be or what other avenue we can explore to find a possible answer?

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  • i have had the same syptoms and more for the past 3 years after having a q-fever test at workdoes your family come from a farming backgroundi also get a high fever and severe headache just before collapsing and having seizures also nausea and diarrea, i also feel tired all of the time and cannot do much around the house anymorejulianMy 17 year old brother has had seizures since he was 11 months old. For 15 years he has been treated for Epilepsy but despite the medication the seizures contined and ranged from one once a year until it was one once a week. For a week he was in hospital and they monitored his brain waves after giving him caffeine, chocolate, alcohol and depriving him of sleep. His brain waves did not vary and thus they have virtually ruled out Epiliepsy. From here he went to Caridiologist and they took him off the Epilim and have treated him with heart medication as his heart rate sometime ranges from 37 bpm to 170 bpm. Although he is now on the heart medication the seizures have still continued. He had a loop monitor inserted in his chest in January last year and there was no seizure from January last year but in January this year they have started again. I’m sure there is a problem with the heart but do not think this is the cause of the seizures because the loop monitor did not record when he had one thus indicating the heart didn’t change out the set parameters of the loop monitor. His seizures vary and for the first time ever he felt it coming on with his last seizure. There is no consistency as to when they occur or any obvious things that trigger it. To describe his seizures he appears to be staring into space and is in what appears to be a catatonic state. He tends to get stuck in a repetitive motion normally his hand twitching. After the seizures he normally has a huge head ache, throws up and then sleeps for a few hours. It’s been 16 years and no-one seems to have any idea what it can be but there is obviously something amiss to be causing these for 16 years now. Is there anyone who has a similar symptoms or any explanation as to what this could be or what other avenue we can explore to find a possible answer?
    julian42 3 Replies
    • February 18, 2008
    • 08:30 AM
    • 0
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  • This may sound strange but my dog had those symptoms, though I can't verify the headache. What you are describing is a catapletic attack. In humans, it is related to narcolepsy. Research that and see if you can find some help in that direction.
    Anonymous 42789 Replies
    • February 28, 2008
    • 11:04 PM
    • 0
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  • My daughter has the exact symtoms and also is wearing the loop..We thought at first that she was having hypoxic seizures..(lack of O2 to the brain.)Her heart rate is almost the exact same as your brothers..She had a seizure recently and nothing showed on the loop monitor..As with you we are at a loss as to the cause..She is 26 and the seizure activity seems to be more frequent..She also does the trance like stare..She use to have seizures every 1-2 years ,now they are happening every 2-4 months..She also knows days in advance that a seizure is immimnent..If anyone can help please do so..Her seizures are always when she is sleeping or at complete rest..
    Fazzie 2 Replies
    • September 22, 2008
    • 04:07 AM
    • 0
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  • I'm new to site & to seizures myself so... but I did have a couple of questions for you. If you say your daughter is having them at rest or during her sleep how are you sure it's a seizure? Does her MRI show brain lesions? Does she take regular medication? What kinds of behaviors does she notice before the seizures begin?If these are too many questions I understand. Good luck to you & your daughter.:)
    tbfree 6 Replies
    • September 22, 2008
    • 00:42 PM
    • 0
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  • My 17 year old brother has had seizures since he was 11 months old. For 15 years he has been treated for Epilepsy but despite the medication the seizures contined and ranged from one once a year until it was one once a week. For a week he was in hospital and they monitored his brain waves after giving him caffeine, chocolate, alcohol and depriving him of sleep. His brain waves did not vary and thus they have virtually ruled out Epiliepsy. From here he went to Caridiologist and they took him off the Epilim and have treated him with heart medication as his heart rate sometime ranges from 37 bpm to 170 bpm. Although he is now on the heart medication the seizures have still continued. He had a loop monitor inserted in his chest in January last year and there was no seizure from January last year but in January this year they have started again. I’m sure there is a problem with the heart but do not think this is the cause of the seizures because the loop monitor did not record when he had one thus indicating the heart didn’t change out the set parameters of the loop monitor. His seizures vary and for the first time ever he felt it coming on with his last seizure. There is no consistency as to when they occur or any obvious things that trigger it. To describe his seizures he appears to be staring into space and is in what appears to be a catatonic state. He tends to get stuck in a repetitive motion normally his hand twitching. After the seizures he normally has a huge head ache, throws up and then sleeps for a few hours. It’s been 16 years and no-one seems to have any idea what it can be but there is obviously something amiss to be causing these for 16 years now. Is there anyone who has a similar symptoms or any explanation as to what this could be or what other avenue we can explore to find a possible answer? I'm new to site & to seizures myself so... but I did have a couple of questions for you. If you say your daughter is having them at rest or during her sleep how are you sure it's a seizure? Does her MRI show brain lesions? Does she take regular medication? What kinds of behaviors does she notice before the seizures begin?If these are too many questions I understand. Good luck to you & your daughter.:) My daughter's seizures have been witnessed numerous time's,by myself her husband and medical Dr's. Being a nurse ,I have seen countless seizures..Her MRI and ct scans are all normal..As well as the EEG's that have been performed..She describes her feelings prior to a seizure as a euphoria type feeling..There is no history of seizures in either side of her family.The Dr's are still scratching their heads trying to find the cause..I am researching how a lack of certain vitamins and minerals have been know to cause seizure activity..On medical mysteries they found the cause of one ladies seizures to be a simple lack of calcium..If you find any additional info please share with the site and I will do the same..Good luck to you as well...
    Fazzie 2 Replies
    • September 22, 2008
    • 04:17 PM
    • 0
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  • My daughter's seizures have been witnessed numerous time's,by myself her husband and medical Dr's. Being a nurse ,I have seen countless seizures..Her MRI and ct scans are all normal..As well as the EEG's that have been performed..She describes her feelings prior to a seizure as a euphoria type feeling..There is no history of seizures in either side of her family.The Dr's are still scratching their heads trying to find the cause..I am researching how a lack of certain vitamins and minerals have been know to cause seizure activity..On medical mysteries they found the cause of one ladies seizures to be a simple lack of calcium..If you find any additional info please share with the site and I will do the same..Good luck to you as well...My son is 20 and has had a similar thing that just started happening November 2009 and he has now had a total of 3 grand mal tonic clinic seizures. They only happen in his sleep in the morning with no regard as to whether he was up late the night before or not. Luckily his girlfriend shares his bed so she is always there to look for these and alert us and or call emergency services while we race home from work. He has no abnormal tests. He has been checked out at ucla neurology and a neuroogist there is the one who follows him but he has no answers, just medication. He has had his most recent seizure a month ago after being on the med for a month so the dr increased the dose. We are stumped. He is totally healthy and is kind of frustrated with this as are we and he is started to get irritated with our intensely watchful eyes on him but what can we do? I can't seem to comprehend that this is just unexplainable. He has a busy life and doesn't deserve this.
    Anonymous 42789 Replies Flag this Response
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