Discussions By Condition: Medical Errors

Swollen lymph nodes

Posted In: Medical Errors 15 Replies
  • Posted By: notcrazylikethat
  • October 31, 2006
  • 11:41 PM

In January of 2005 I was working in the middle of the night and rubbed my collar bone - a habit I have. I was surprised when I felt a couple small lumps just behind my collar bone. I called and made an appt to see my doc and he said they were swollen lymph nodes and should go away or be greatly reduced within three weeks. I've got a good doc and he even said, "If you're worried I can schedule an ultrasound." But I wasn't worried and figured he was right and went on my merry way. Three weeks and one day later I happened to rub my collar bone again and felt them again so I looked on my calendar to see when I'd been at the doc. Hmm, just over three weeks. I called and left a message. He called me back and we decided to go with an ultrasound and, depending on how that came back, a biopsy to confirm might be needed. At this point, I'm still not really worried. The day after the ultrasound, I decided to look online. I put in "swollen lymph nodes in neck" and Googled. Very scary since most of my symptoms leaned towards lymphoma rather than an infection. But I surfed some more and came up with Hodgkin's Lymphoma. That really scared me because one of the symptoms was "deep itching". I'd been scratching for a few weeks - mostly my thighs but also my joints. I called his office on Monday, explained I'd looked online and was probably being silly but wanted to tell him about one thing I'd forgotten to mention. He called me back and I told him, adding "but it's winter so it's probably just dry skin". Then he told me what the head of radiology had called to tell him that Friday after I left...that they suspected Hodgkin's.

I was lucky. It WAS Hodgkin's. But I caught it early - stage 1A. Hodgkin's Lymphoma generally starts in the lymph nodes behind the collar bone, in the arm pits or in the groin area. I joked with my oncologist about how lucky it was that I rubbed my collar bone when I was tired and that it chose to start there...wouldn't have found it until much later otherwise since I don't rub my pits or groin. :-)

Reply Flag this Discussion

15 Replies:

  • It'd be great if you could post followup to your diagnosis. I just had a biopsy and was diagnosed with Hodgkin's, but I have not yet met with an oncologist who would finish up staging. From what I've read online, I believe I have stage 1B, and would love to hear more about your experiences with treatment.I'm 25, very scared, and I planned on proposing to my girlfriend of 5 years this year, and I'd like to live long enough to make her as happy as she has me. I'd like to think positive, and your experiences would greatly aid that, especially if you achieve remission.
    Anonymous 42789 Replies Flag this Response
  • ive just been diagnosed with hodgkin's.... unfortunately stage 3B, and im only 17. please be strong, i know how you feel... the thing ive been told constantly is think positive... at first i laughed at the statement... but it has been proved you can fight whatever it is better if you feel you will be ok and be strong.ive been told by many people, that if you've got to have a cancer, hosgkin's is the one to have, as chemo works really well on it. i don't know how true this is, but just thought id share it with you.keep us posted on how ur treatment goes... ive only just had my first chemo, and don't worry, it's tough, but you'll be fine after a few days. get married, live life to the full.... and THINK POSITIVE.we can do it !
    Anonymous 42789 Replies Flag this Response
  • Hello,Im sorry to hear about your situation be strong my friend, we are all here to help you. Im not sure what is going on with my body. I have swollen lymph nodes from my neck to my collar bone. I have been to the doctors about 5 times. Ive had 2 untrasounds and they tell me it's nothing to worry about. But, I've read and read, and usually swollen lymph nodes near the collar bone typically indicate serious disease or infection, I'm hoping it's just that and not cancer. What should I do? They told me I dont need a biopsy, but they have not requested any other tests and frankly im upset. I switched my insurance to a PPO and I'm hoping the chance to find a good doctor. What should I do? Cany anyone help me please? If this is cancer I want to catch it early, I am only 20 years old and I want to someday have a wife and children!Best,Michael
    Anonymous 42789 Replies Flag this Response
  • I have swollen lymph nodes on the left side, that came right after a tick bite. The bite was on the back of the head. First symptom, was lower section of head near neck on left was sore to touch and for a week was really irritating. In one day, we discovered the tick and removed it. In six days, I found a swollen lymph node and called doctor. They gave me antibiotics and the lump on my head and soreness disappeared, but not the lymph node. During this time, I went to Italy for two weeks and ran around very physical trip and got a few more swollen lymph nodes. I got home last Sunday night and went in for blood test Monday. They said blood test was normal, except just mild elevated seds (shows inflammation). I get a CT scan on Monday.I am not too worried because at least I know the swollen lymph node began within days of the tick bite that was clearly infected. What is a little upsetting is these increased swollen lymph nodes. I feel like the infection never really disappeared. I have no other symptoms. No fever, no fatigue, no night sweats. The lymph nodes do hurt, and move around. I feel best in a.m. and in the evening if I'm running around all day, they hurt more.I'll keep you all posted.Angela
    angeladoug 5 Replies Flag this Response
  • I just got the results of CT scan. Only thing that showed was what we already know...two swollen lymph nodes. Such a relief.I go back to the doctor's in four weeks for a follow-up, just to make sure they are down.
    angeladoug 5 Replies Flag this Response
  • I had a tick bite several years ago on my ear. It got very red and itchy then my lymph nodes swelled just below and behind my ear and my neck hurt. A couple of weeks ago I pulled a tick out of my hair behind my left ear. It swelled up like a big egg and when swelling went down I noticed the lumps on the side of my neck, and my ear aches and it is difficult to swallow on that side of my throat. Is that normal to have that kind of reaction to tick bites?
    Anonymous 42789 Replies Flag this Response
  • I would be very interested in this. This is almost an identical scenario to my 6 year old. We are going in today to see the dr for the first time. I have swollen lymph nodes on the left side, that came right after a tick bite. The bite was on the back of the head. First symptom, was lower section of head near neck on left was sore to touch and for a week was really irritating. In one day, we discovered the tick and removed it. In six days, I found a swollen lymph node and called doctor. They gave me antibiotics and the lump on my head and soreness disappeared, but not the lymph node. During this time, I went to Italy for two weeks and ran around very physical trip and got a few more swollen lymph nodes. I got home last Sunday night and went in for blood test Monday. They said blood test was normal, except just mild elevated seds (shows inflammation). I get a CT scan on Monday.I am not too worried because at least I know the swollen lymph node began within days of the tick bite that was clearly infected. What is a little upsetting is these increased swollen lymph nodes. I feel like the infection never really disappeared. I have no other symptoms. No fever, no fatigue, no night sweats. The lymph nodes do hurt, and move around. I feel best in a.m. and in the evening if I'm running around all day, they hurt more.I'll keep you all posted.Angela
    Anonymous 42789 Replies
    • August 17, 2009
    • 10:32 PM
    • 0
    Flag this Response
  • I was diagnosed with hodgkin's stage 2b last year on my 19th birthday (really my diagnosis date was on my birthday) and I just had my 20th birthday last week and I have been in 100% remission since March 18th 09. It definitely is the "good" kind of cancer. I went to chemo knowing it was getting rid of the cancer and I would most likely never get it again. I couldn't imagine going through chemo/radiation and not know if it would work or not. Don't worry everyone!!! Give yourself 6 months and it will all be over! You'll just be left with a cute pixie hair cut, and some battle wounds. No biggy :cool:
    tielledirge 20 Replies
    • August 20, 2009
    • 01:49 AM
    • 0
    Flag this Response
  • In January of 2005 I was working in the middle of the night and rubbed my collar bone - a habit I have. I was surprised when I felt a couple small lumps just behind my collar bone. I called and made an appt to see my doc and he said they were swollen lymph nodes and should go away or be greatly reduced within three weeks. I've got a good doc and he even said, "If you're worried I can schedule an ultrasound." But I wasn't worried and figured he was right and went on my merry way. Three weeks and one day later I happened to rub my collar bone again and felt them again so I looked on my calendar to see when I'd been at the doc. Hmm, just over three weeks. I called and left a message. He called me back and we decided to go with an ultrasound and, depending on how that came back, a biopsy to confirm might be needed. At this point, I'm still not really worried. The day after the ultrasound, I decided to look online. I put in "swollen lymph nodes in neck" and Googled. Very scary since most of my symptoms leaned towards lymphoma rather than an infection. But I surfed some more and came up with Hodgkin's Lymphoma. That really scared me because one of the symptoms was "deep itching". I'd been scratching for a few weeks - mostly my thighs but also my joints. I called his office on Monday, explained I'd looked online and was probably being silly but wanted to tell him about one thing I'd forgotten to mention. He called me back and I told him, adding "but it's winter so it's probably just dry skin". Then he told me what the head of radiology had called to tell him that Friday after I left...that they suspected Hodgkin's. I was lucky. It WAS Hodgkin's. But I caught it early - stage 1A. Hodgkin's Lymphoma generally starts in the lymph nodes behind the collar bone, in the arm pits or in the groin area. I joked with my oncologist about how lucky it was that I rubbed my collar bone when I was tired and that it chose to start there...wouldn't have found it until much later otherwise since I don't rub my pits or groin. :-)Should i be concerned about my son. He is only about to be 2 and has had the same lymph nodes popped out on the back of his neck just under his head and on the left side of his neck. And they have been there for months and the dr just hasnt done anything i finally went and got him another appt with a different dr just not sure what to ask them for. I mean now they are the size of adult lymph nodes when we get sick, any ideas?
    Anonymous 42789 Replies
    • September 2, 2009
    • 10:33 PM
    • 0
    Flag this Response
  • Should i be concerned about my son. He is only about to be 2 and has had the same lymph nodes popped out on the back of his neck just under his head and on the left side of his neck. And they have been there for months and the dr just hasnt done anything i finally went and got him another appt with a different dr just not sure what to ask them for. I mean now they are the size of adult lymph nodes when we get sick, any ideas? I had hodgkin's and I would not be concerned at all if I was you. Being diagnosed with hodgkin's under the age of 15 is extremely rare. The youngest I have ever heard of anyone being diagnosed was a 10 year old and that was so rare that all these doctors did these studies on her to see why in the world she had this disease. Your son probably just has an infection or the nodes are swollen due to allergies.
    tielledirge 20 Replies
    • September 4, 2009
    • 05:03 PM
    • 0
    Flag this Response
  • I was diagnosed with hodgkin's stage 2b last year on my 19th birthday (really my diagnosis date was on my birthday) and I just had my 20th birthday last week and I have been in 100% remission since March 18th 09. It definitely is the "good" kind of cancer. I went to chemo knowing it was getting rid of the cancer and I would most likely never get it again. I couldn't imagine going through chemo/radiation and not know if it would work or not. Don't worry everyone!!! Give yourself 6 months and it will all be over! You'll just be left with a cute pixie hair cut, and some battle wounds. No biggy :cool:did u lose your hair? i have had three swolen lymphnodes n my neck for a while and im only 13 so im really scared the doctor has no idea whats wrong and im really scared i wannna go back to school its not fair!
    Anonymous 42789 Replies
    • September 22, 2009
    • 09:28 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • did u lose your hair? i have had three swolen lymphnodes n my neck for a while and im only 13 so im really scared the doctor has no idea whats wrong and im really scared i wannna go back to school its not fair! Of course I lost my hair. It's CHEMO. Only a very rare few don't loose their hair with ABVD chemo. Do you have any night sweats and/or itchy skin, weight loss, unusual tiredness ?? Those are the main symptoms of Hodgkin's. In your age it's very unlikly to get this form of lymphoma. It's more common in ages 20-35 and the 50s. I wouldn't worry about it if you don't have any symptoms like the ones mentioned.
    tielledirge 20 Replies
    • September 22, 2009
    • 11:12 PM
    • 0
    Flag this Response
  • I have swollen lymph nodes on the left side, that came right after a tick bite. The bite was on the back of the head. First symptom, was lower section of head near neck on left was sore to touch and for a week was really irritating. In one day, we discovered the tick and removed it. In six days, I found a swollen lymph node and called doctor. They gave me antibiotics and the lump on my head and soreness disappeared, but not the lymph node. During this time, I went to Italy for two weeks and ran around very physical trip and got a few more swollen lymph nodes. I got home last Sunday night and went in for blood test Monday. They said blood test was normal, except just mild elevated seds (shows inflammation). I get a CT scan on Monday.I am not too worried because at least I know the swollen lymph node began within days of the tick bite that was clearly infected. What is a little upsetting is these increased swollen lymph nodes. I feel like the infection never really disappeared. I have no other symptoms. No fever, no fatigue, no night sweats. The lymph nodes do hurt, and move around. I feel best in a.m. and in the evening if I'm running around all day, they hurt more.I'll keep you all posted.AngelaThank you so much for posting this! 3 days ago, I found a tick on the back of my head. It must have bit me sometime in the middle of the night, because I know it wasn't there the previous morning. I pulled it out immediately and used a q-tip with alcohol at the site of the bite, hoping to prevent any infection etc. Later that day, a lump formed around the bite and it became very sore and itchy at the same time. That lasted about 24 hrs but improved somewhat. Last night, I was rubbing my neck and noticed the lymph node in the back left side of my neck was hard and swollen to about the size of a pea. It's a little sore, but not that bad. Because I've had a lot of health issues recently, I was unusually nervous about the lymph node, so I got online and found your post. Finding that someone else had the same thing happen put my mind at ease. So, I thank you. I will keep an eye on it, but don't think it's anything serious now.
    Anonymous 42789 Replies Flag this Response
  • Thank you so much for posting this! 3 days ago, I found a tick on the back of my head. It must have bit me sometime in the middle of the night, because I know it wasn't there the previous morning. I pulled it out immediately and used a q-tip with alcohol at the site of the bite, hoping to prevent any infection etc. Later that day, a lump formed around the bite and it became very sore and itchy at the same time. That lasted about 24 hrs but improved somewhat. Last night, I was rubbing my neck and noticed the lymph node in the back left side of my neck was hard and swollen to about the size of a pea. It's a little sore, but not that bad. Because I've had a lot of health issues recently, I was unusually nervous about the lymph node, so I got online and found your post. Finding that someone else had the same thing happen put my mind at ease. So, I thank you. I will keep an eye on it, but don't think it's anything serious now.I am super worried. Same exact situation with my daughter...are you all better yet? What did doctor say??? I can't sleep. Just found swollen lymphnodes tonight:(
    Anonymous 42789 Replies Flag this Response
  • I have a swollen gland i think under my chin, i have gained a massive weight gain. My blood tests cam back normal but i'm concerend
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.