Discussions By Condition: Medical Errors

seizures I have questions

Posted In: Medical Errors 6 Replies
  • Posted By: destinyrk2
  • December 31, 2010
  • 09:30 PM

I have had symptoms while I'm at work where air blows in my face, I more times than not smell aroma's such as disinfectants or a sweet smell, then I pass out for about 3 to 4 minutes when I wake up I'm confused and disoriented. Sometimes after these episodes I'm fine and continue as normal but sometimes I have to go home and go to sleep and when I wake up I'm normal again.

I went to my family physician starting 7years ago, being sent to neurologist, cardiologist, having drug testing, sleep test, mri, eeg etc every test showing nothing is wrong with me.

I finally had my physician refer me to a research neurologist which while I was in his office the symptoms occurred there, first time for everything. And he said I am having seizures. He stated he didnt understand why this wasn't detected sooner.

I'm waiting for another visit with him but again I have had an MRI and an eeg and am now taking medication. As disruptive as I'm finding out seizures are I actually cried when he told me I had seizures because all this time I was honestly thinking I was just crazy or maybe I was just imagining I was having symptoms.

This has affected my life for so long in so many directions....anyway
I have been placed on short term disability until I guess we can decide what I have to do because I can't drive and when I go to work its guaranteed this is going to happen to me at least two to three times a week.

Recently a friend of mine took me to a quick stop store and there was this car directly in front of us.....and the carborator or something wasn't working properly and there was this odor like a petrolium smell and instantly I passed out.....it was cold outside, which is always one thing I feel is cold air when it starts at work. Anyway I instantly passed out.....my friend said its petrolium and the air has to be a certain temperature (cold) and I was in a confined space. As where I work....today I had another friend go to take me to my home to get somethings...and she had car trouble, again I smelt that smell and I passed out again....again its colder than my normal temperature, I was inside the vehicle when it occurred and I smelt the same thing. Again I passed out immediately.

I have a few questions to anyone out there who might know, please respond. Like I said this has affected my life in every way for seven years.

I am so angry that my physician didn't or couldn't determine what this was, nor the neurologist he originally sent me to. Is this something that one would consider malpractice or is this a common mistake....second, this is the first experience in my life I have ever experienced with seizures, it is possible for those three elements to be present for seizures to be triggered or is this just a coincidence....and third does anyone out there know if this can be treated and if so is it possible that the treatment could stop the seizures if I go back to work in the same conditions.

I really really would appreciate any information anyone has on this and if you have seizures, can you live a normal life or am I going to have to depend on people the rest of my life?

Please anyone let me know any information you might have concerning this

Thanks

destinyrk2

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6 Replies:

  • I have to say i really wish i could help you. I have a lot of similar medical problems going on in my life that really mess with living as a whole and i wonder the same thing, if they will be forever. Oe of them are my seizures.I do know though seizures, for what ever reason are different for everyone. I as well have had every test done in the book. Even a VEG. The results say i dont have any sign of having seizures which is funny, because i do. I have heard of your kind of seizures many times. of people getting an "aroma" people who can sense it before it happens. who can literall SMELL it. i was taken a back and thought doctors were silly for asking me if i had this symptom but i guess it really is one. By your description it kind of sounds like when guys drug girls with putting the alcohol on the cloth over there mouths and pass out. i know that sounds weird. but anyway.My siezures are more random. Sometimes i just faint. which happens alot. and sometimes i actually full out spazz flail all over uncontrollably. i dont bite my tongue or pee my pants though. but i do know when im about to have one though. only cause i get, dizzy ,start breathing heaving, my head starts spinning and my knees get weak.
    Elizabeth Rose 3 Replies
    • January 9, 2011
    • 08:55 AM
    • 0
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  • I have to say i really wish i could help you. I have a lot of similar medical problems going on in my life that really mess with living as a whole and i wonder the same thing, if they will be forever. Oe of them are my seizures.I do know though seizures, for what ever reason are different for everyone. I as well have had every test done in the book. Even a VEG. The results say i dont have any sign of having seizures which is funny, because i do. I have heard of your kind of seizures many times. of people getting an "aroma" people who can sense it before it happens. who can literall SMELL it. i was taken a back and thought doctors were silly for asking me if i had this symptom but i guess it really is one. By your description it kind of sounds like when guys drug girls with putting the alcohol on the cloth over there mouths and pass out. i know that sounds weird. but anyway.My siezures are more random. Sometimes i just faint. which happens alot. and sometimes i actually full out spazz flail all over uncontrollably. i dont bite my tongue or pee my pants though. but i do know when im about to have one though. only cause i get, dizzy ,start breathing heaving, my head starts spinning and my knees get weak. Elizabeth I'm sorry to hear about your seizures, and at this point nothing seems weird....I did go to the doctor and my test results show nothing is wrong with me......I wanted to reply to you because you made a statement about that date rape stuff or the stuff guys put over a girls nose and they pass out. I actually early on into this thought something might have been put in my water or something and I that tested....the test showed a positive reaction but I was told the test I used wasn't very accurate. I'm taking the medication I was given, I have returned to work I still cant drive and I have had a couple days of the same symptoms I described but this medication does seem to help. I seriously don't wish this type of problem on anyone....I hope you can get something for yours. If you or anyone out there know any thing else that can identify or any other information I appreciate it if you can keep me up on any ideas thanks
    destinyrk2 3 Replies
    • January 9, 2011
    • 05:31 PM
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  • That is very interesting...I find it very interesting that many people i have met have had spontanious seizures with no family history. what are you taking exactly? Aparently im takeing something that helps a lot of eople with your symptoms but does absolutly nothing for me. its topamax (topiramate).It symptoms of slowness sometimes i guess and tingling for some people when you first get on it as well as weight loss. But i guess its the best? Perhaps your already on it though. So did your start right after you think you drank something funny? it sounds pretty suspicious.
    Elizabeth Rose 3 Replies
    • January 9, 2011
    • 09:37 PM
    • 0
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  • That is very interesting...I find it very interesting that many people i have met have had spontanious seizures with no family history. what are you taking exactly? Aparently im takeing something that helps a lot of eople with your symptoms but does absolutly nothing for me. its topamax (topiramate).It symptoms of slowness sometimes i guess and tingling for some people when you first get on it as well as weight loss. But i guess its the best? Perhaps your already on it though. So did your start right after you think you drank something funny? it sounds pretty suspicious. The mediation my Dr has me on is Levetiracetam 500 mg I take one in the morning and two at night. I've had no side effects from the medication so I guess thats a good thing and since I've been on it I've only had like two episodes so I assume it's working. And actually when I finally decided to have the water tested for that date rape drug I had had the same symptoms for like three years prior to that. There hasn't been a test I havent had done, from regularThe drug testing to having my hair tested DNA to having my blood tested for diabetic to hypoglicemic mri sleep studies eeg's ekg's a heart mri with and without dye its just unbelievable. The only thing that ever showed up in my system was that I had way to much carbon dioxide in one of my blood testing however the next time I had it done after one of these episodes it was normal. This doctor told me there are ways to find out whats causing it, its just not his in his field. I'm so grateful these pills are working....and if I dont have any more seizures within the 6 months I can drive again but I still need to know what it is thats causing it. All I know is something doesnt effect you this much and it doesnt show up some where Again any help from anyone any answers suggestions I;m pretty desperate at this point I would appreciate anything
    destinyrk2 3 Replies
    • January 10, 2011
    • 00:10 AM
    • 0
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  • That is very interesting...I find it very interesting that many people i have met have had spontanious seizures with no family history. what are you taking exactly? Aparently im takeing something that helps a lot of eople with your symptoms but does absolutly nothing for me. its topamax (topiramate).It symptoms of slowness sometimes i guess and tingling for some people when you first get on it as well as weight loss. But i guess its the best? Perhaps your already on it though. So did your start right after you think you drank something funny? it sounds pretty suspicious. Well I thought I replied to this but I dont see it so if it comes up twice I apologize, My Dr has me on Levetiracetam 500 mg one in the morning and two at night. It does seems to be helping and I appreciate that so much. Actually before I had had the water tested the symptoms had occurred for about 3 to 4 years prior to that....I had had every test I could think of by that time....from numerous drug screens, eegs, ekgs my blood tested for hypoglycemic, diabetic.....but it would seem that I would be fine in the mornings and after lunch the symptoms would start. I couldnt understand why that was always the case....and I had heard of this date rape drug and my symptoms seemed to be the same. So I ordered a date rape drug test and I tested the water. It showed up positive and I called the company that I bought the test from and they told me to call the police. I did, by that time I was at my home, and when the cop came to my home I showed her and she thought it showed up positive too but said I would need to call the police of the county I worked in. I did and they pretty much told me the test wasn't accurate. After this test I had an mri, eeg, psychologist, sleep test, heart mri, ekg you name it I've had it. I had my hair cut and sent off for DNA testing hoping maybe something would show up there. Absolutely nothing. The only thing that ever showed up was on one of the blood testing it showed me having a higher than normal carbon dioxide in my system than normal, however, the next time it was normal. Aw don't get me wrong I appreciate these symptoms are not as they were it was getting to where it was every day....but I also know something doesnt affect you this strongly without there being something going on. Any thoughts idea's from you any one on trying to figure out what this is I would be more than greatful Thanks
    destinyrk2 3 Replies
    • January 10, 2011
    • 00:22 AM
    • 0
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  • Here's a link to look at. Hope it helps some. http://www.neurologychannel.com/epilepsy/causes.shtml
    gr8tful 175 Replies
    • January 27, 2011
    • 09:51 AM
    • 0
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