I am a 31 year old female from Indiana. The last 6 months have been some of the roughest I have been through health wise. I started out going to my doctor for what I thought were thyroid related symptoms (due to the fact that I only have half of my thyroid gland). I was experiencing; skin rashes, hot flashes, headaches daily, vertigo, dizziness, extreme muscle fatigue and tiredness, and horrible nausea daily. She ran quite a bit of blood work and tests, all of which came back normal. Two months later I was hit with my first debilitating migraine. Doc ordered an MRI which came back showing a 3x5mm cystic structure in the anterior/posterior junction of my pituitary gland. She referred me to a local endo.
My endo upon seeing me assured me that he did not think my cyst was the cause of all my symptoms but that they were separate issues. He ran a mulitiude of blood tests and a saliva tests. The blood work was normal but the saliva test came back showing high levels of cortisol indicating Cushings Disease caused by the pituitary andenoma. I was ordered to run a 24 hour urine test to check for cushings disease. My urine test came back normal. I questioned the results asking if it is possible that the cortisol may not show up in early stages of the disease? He recommended another MRI and urine tests in 6 months to check. I am not feeling well as it is and I have to wait another 6 months? I then asked for further urine testing to see if it is intermitent. My doctor said he didn't recommend it due to the probability of a false positive. Is he for real? What does it take to get diagnosed for Cushings. He already knows I have a cyst in my pituitary gland and high cortisol in my saliva. How many tests does it take before I can get this treated. Today I am going to ask for a referral to a specialist. I am afraid he is going to try and refer me to a friend of his out of Indianapolis when I want to see someone who deals with pituitary tumors and the diagnosis of Cushings.
If anyone out there knows of a great doctor to help me around the Indiana area please let me know. I am willing to travel out of state. I would also love to hear any advice or personal experiences. Truly, Frustrated!