Discussions By Condition: Medical Errors

please tell me I am not crazy... part2

Posted In: Medical Errors 15 Replies
  • Posted By: jharsen
  • October 18, 2007
  • 06:31 PM

New symptoms since summer: Nearly-constant diarrhea, watery and bright green with undigested waste passed. Occasionally greasy thick greenish brown waste but then immediately back to watery and emerald green. This has been going on since MID JUNE. Drs say I need to consider antidepressants again as this is a sign I am "stressed". (BTW - I volunteer at the school, we sponsor a needy family every fall and care for them for an entire year, I am a twenty six year member of a 12 step program and work the 12 steps daily. I have a pretty good attitude, I feel physically like CRAP and there is "nothing medically wrong with me" or so the tests say. If I am not down on myself for my symptoms and buying into the idea that it is a choice that I live like this, then I am *****d off that I am so sick and I am suffering! If I was an animal at least I would have been put down rather than forced to suffer like this! I am not suicidal, I am out of options and being driven crazy with pain dammit!)

I have always wanted salt, but now (due to the problem with having to be near a bathroom maybe?) I crave salty, salty crackers, I try to eat fruit or veggies and they taste awful without salt. I worry about eating so much salt. My cholesterol numbers are high now and I am sure it is from so much salt. Eating meat makes me feel ill. If I eat salty crackers (like Chicken in a Biscut - or uigh I am ashamed to admit I will make my own! dip saltines into chicken boullion in a jar, what is wrong with me?) but I wake up craving salt so badly, I can barely stand it and that is when I usually just give up and eat something really really salty. I do crave chocolate sometimes, but usually I can divert my own cravings (offer myself chocolate if I eat an apple for example) but what works for sweets is salty things and when I begin to eat salty stuff I crave more and more salt!

I run a fever, 99-99.5, sometimes even higher 100.5-101. Unexpectedly the temp will veer down to 96.5-and even all the way down to 95.9. The worst part of this is that it is disconnected from my experience of temperature, I can feel cold and have a "normal" 98.4 reading, or a "normal" 97.5 reading, then check again later on and be running a 100 degree fever. I am almost always extremely tired, so exhausted that it requires a running internal cheerleader to keep going. Of course occasionally I have a fever at the Drs and it is discounted as a "bug", often in the am I have a 100 deg fever but by mid afternoon it is down and vice versa. For myself, I do not care what anyone says, being at 97-96 degrees is almost as bad as feverish in terms of weakness and dizziness.

Oh yes, dizziness. I have Meniere's now, at least I was diagnosed with it as of last spring. According to one of my Drs who does seem to believe me, I may have a whacky autoimmune system and this might be one more way my autoimmune system is attacking me, same as my thyroid, but nothing can be done to change it. (When I'm dizzy it feels truly like i am on an amusement park ride, it is bad and it is **always** sudden). My hearing is supposedly not affected, the audiologist said that the high and low notes do not register right, but otherwise my hearing is in the normal range. I turned to writing music as an alternative to retail as my second career. (Now that my pitch is gone I am looking for a way to start over again, but what kind of career can I have when I am sitting on the pot for fifteen, twenty times or more a day?) Meniere's is what they decided I have, but due to the way that I heal I do not want them to try tubes in my ears and risk losing hearing altogether. I don't heal right.

I had my uterus removed and a tumor removed from the fascia between the uterus and bladder in 2001 - and then they cauterized and recauterized the incision site because it was painful and kept bleeding. The cauterizing was agony. I could barely stand after about sixteen of these outpatient visits. After 10 months I insisted that my old OBGYN examine me, and had laporoscopy to investigate... he discovered they had cauterized away almost my entire right ovary. WITH NO ANESTHETIC, OVER AND OVER. The Ob GYN removed the other ovary (caught in the mass of cauterized tissue) and most of the "granular" tissue. The site still bleeds when I walk too much or overdo, but at least I am not being tortured If I let a Dr examine me now.

I am blessed with great kids and although I am whining right now usually I try to say only nice and happy things so most people do not realize that something is wrong with me. I am worried though, there are times when I realize that I cannot sustain more than two days of being up and around anymore, what would I do if my dear husband ever got tired of this and left me? I am sick of me and I know that I would do anything to change this, I live in this body and I still think that it is a matter of willpower.

It isn't, or this would be gone. It has taken me many many hours to write this, but I managed. I get dinner on the table every night and I am told it tastes awesome. When my pitch started to go and the dizziness had not really begun to be disabling I began writing recipes and I am told they are good tasting so I have a way to support myself. I am just so frustrated with medicine! Acupuncturists say I have extreme wind sickness and must completely start over and that my adrenal glands are completely spent, but surely if my adrenals were spent I would be in hospital. We do not have the $$ to spend on alternative therapy anymore, but I do Reiki every moprning and night and I am willing to try anything at this point that makes sense.

Does this sound like anything anyone has ever heard of? I am very very stiff, esp in the neck and hips, but only take flexeril when I cannot turn doorknobs, etc - maybe ten times a month at most. I do take tylenol most days, but I make sure that I do not take it more then eight days or so in a row, usually I just crawl into bed and try to be still for a few hours until the pain eases up, so that my system has a rest. My hubby is constyantly yelling at me that I do not reach for medicine more, but honestly it doews very little good so why bother? On a scale from 1 to 10 I would rate it most days this month at an 8, but the last few nights I'd rate it a nine, nine point 3, I knew it was making it worse but I had to make noise it hurt so bad so I went to the garage to sleep.


At this point I feel like a stray animal. Seriously. I have claws, not hands, I endure my life I don't live it. Please tell me what test they have missed. I am hoping against hope that this sounds like something to one of you.


JH NY

PS - I realize that there are much worse off people than me, and I apologize if this offends anyone. I know that I can see, have the ability to eventually get where I want without help, and I can function with effort. So I know many more have it much worse. Wanted to add my sed rate is 18 last time, it was hi the past two times, 38 and then 40 or 41. My dr thought that was important but we did nothing new. Help!!

Thanks for listening.

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15 Replies:

  • I am so sorry to hear that you are having such problems... I am trying to put the pieces of my puzzle together as well and I know how frustrating it can be... I have studied so many different things on my journey and the symptoms you describe sound like Addisons disease or adrenal insufficency. Addison’s disease is not usually apparent until over 90% of the adrenal cortex has been destroyed, so that very little adrenal capacity is left. This can take months to years and is known as primary adrenal insufficiency. Symptoms of the disease, once advanced, can include severe fatigue and weakness, loss of weight, diarreah, increased pigmentation of the skin, faintness and low blood pressure, nausea, vomiting, salt cravings and painful muscles and joints. Because of the rather non-specific nature of these symptoms and their slow progression, they are often missed or ignored until, for example, a relatively minor infection leads to an abnormally long convalescence which prompts an investigation. Frequently, it is not until a crisis is precipitated that attention is turned to the adrenals. Also along with it goes thyroid problems. Know that you can be told that your thyroid is normal when it isn't. Meaning that many people are symptomatic even with results in normal range for Thyroid stimulating hormone as well as T4. Ask for these tests.... TSHT4T3Anti-TPOAnti -TGCortisolAldosteroneRenin When you get the results you need to post them on a forum where they discuss adrenal and thyroid problems. Just do a google on it an you will find one or visit www.stopthethyroidmadness.com Hope this helps and if anything at least points you in a direction that hasn't already been looked into. Good luck...
    Anonymous 42789 Replies
    • October 18, 2007
    • 09:33 PM
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  • First, thanks so much for the reply, I was worried that people would think I was making this up or exaggerating. I'M NOT. I promise to check out the link after I reply. Had labs done in late Aug: checked some of what you said-TSH Thyroxine T4 8.9T3 Uptake 31.1T3 Thyronine tot 320Antinuclear AB negCRP 0.3E. Sedimentation 18 cholesterol 225triglycerides 273HDL chol, direct 56HDL as % of Chol 25Chol/LDL 4.02LDL/HDL 2.05LDL 115 WBC 7.3RBC 4.7 There was a high glucose reading of 112. The Dr noted that he wants me on hi cholesterol meds next time we meet, my hubby is very worried, he took these and they made HIM tired, he is certain that I will be drained beyond help if I take them. What can I do? I have no degree and Drs act like I am not reporting accurately what I am experiencing because the book says it can't happen like that. I am proof it can happen like this. Dr also spoke to me once before about another very low TSH reading, that it is "impossible" for me to be taking meds as prescribed and have this low # for my TSH. So I pray and pray before a test that the results are within what he finds acceptable. This is crazy! I am HOPING that my cells do what the dr wants?? how is this rational in even a little way? At least an alternative therapist does not lecture me for not performing better on their tests. Sorry, I'm rantibng again. Last night was a long one, had to sleep in the garage again, I kept waking myself up with my own moaning, Lord knows what poor hubby would have done with me in the house waking him up too. I had three boys via natural childbirth, did not take any meds at all and gritted and breathed thru over a day of labor with one of them. All were tough labors, each birth labor stopped and they gave me pit. That I am told is a tough drug to take using Lamaze but I was okay, just so exhausted afterwards. No OB Gyn would allow me to have another Lamaze birth with them twice, all advocated using drugs so I would switch to another GYN, eventually going with a midwife. I can be stubborn! All my kids were born perfect, my first died of SIDS at four months, but I am assured it was not because I had a hard labor with him. But the point is I did not complain about the pain. This joint and muscle pain is WORSE than transition, I swear to you. It is sharp, unexpected, relentless. It worries me, and labor did not, but like labor did it carries me with it sometimes. I have developed these bizarre coping mechanisms, I begin rocking a part that does not hurt (like wiggling my legs just so), or I do a repetitive motion with my hands, now this keening has started happening. It is like being possessed but by PAIN. Just pure pain taking over. I am living this and even so, I feel nuts. The drs office cannot see me until mid November. I have asked to speak with Dr before then to try to have blood tests you suggested performed before that visit. I am so frightened that I will anger another Dr, at least this man believed I had something wrong and I do take Armor Thyrotab every day, it helped in the beginning but I wish I could take MORE of it, I am certain it is part of the puzzle. I will check back from time to time, hopefully with help I can unravel this puzzle. JH
    jharsen 9 Replies
    • October 19, 2007
    • 00:09 PM
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  • http://www.endocrine.niddk.nih.gov/pubs/addison/addison.htmAddison's Disease:SymptomsThe symptoms of adrenal insufficiency usually begin gradually. Characteristics of the disease arechronic, worsening fatiguemuscle weaknessloss of appetiteweight lossAbout 50 percent of the time, one will noticenauseavomitingdiarrheaOther symptoms includelow blood pressure that falls further when standing, causing dizziness or faintingskin changes in Addison's disease, with areas of hyperpigmentation, or dark tanning, covering exposed and nonexposed parts of the body; this darkening of the skin is most visible on scars; skin folds; pressure points such as the elbows, knees, knuckles, and toes; lips; and mucous membranesAddison's disease can cause irritability and depression. Because of salt loss, a craving for salty foods also is common. Hypoglycemia, or low blood glucose, is more severe in children than in adults. In women, menstrual periods may become irregular or stop.Because the symptoms progress slowly, they are usually ignored until a stressful event like an illness or an accident causes them to become worse. This is called an addisonian crisis, or acute adrenal insufficiency. In most cases, symptoms are severe enough that patients seek medical treatment before a crisis occurs. However, in about 25 percent of patients, symptoms first appear during an addisonian crisis.Symptoms of an addisonian crisis includesudden penetrating pain in the lower back, abdomen, or legssevere vomiting and diarrheadehydrationlow blood pressureloss of consciousnessLeft untreated, an addisonian crisis can be fatal.My mother has this condition and when she first started getting sick she had diarrhea and craved salt.The color of your diarrhea is because of it mostly consisting of bile salts. They are green.In its early stages, adrenal insufficiency can be difficult to diagnose. A review of a patient's medical history based on the symptoms, especially the dark tanning of the skin, will lead a doctor to suspect Addison's disease.A diagnosis of Addison's disease is made by laboratory tests. The aim of these tests is first to determine whether levels of cortisol are insufficient and then to establish the cause. X-ray exams of the adrenal and pituitary glands also are useful in helping to establish the cause.ACTH Stimulation TestThis is the most specific test for diagnosing Addison's disease. In this test, blood cortisol, urine cortisol, or both are measured before and after a synthetic form of ACTH is given by injection. In the so-called short, or rapid, ACTH test, measurement of cortisol in blood is repeated 30 to 60 minutes after an intravenous ACTH injection. The normal response after an injection of ACTH is a rise in blood and urine cortisol levels. Patients with either form of adrenal insufficiency respond poorly or do not respond at all.CRH Stimulation TestWhen the response to the short ACTH test is abnormal, a "long" CRH stimulation test is required to determine the cause of adrenal insufficiency. In this test, synthetic CRH is injected intravenously and blood cortisol is measured before and 30, 60, 90, and 120 minutes after the injection. Patients with primary adrenal insufficiency have high ACTHs but do not produce cortisol. Patients with secondary adrenal insufficiency have deficient cortisol responses but absent or delayed ACTH responses. Absent ACTH response points to the pituitary as the cause; a delayed ACTH response points to the hypothalamus as the cause.In patients suspected of having an addisonian crisis, the doctor must begin treatment with injections of salt, fluids, and glucocorticoid hormones immediately. Although a reliable diagnosis is not possible while the patient is being treated for the crisis, measurement of blood ACTH and cortisol during the crisis and before glucocorticoids are given is enough to make the diagnosis. Once the crisis is controlled and medication has been stopped, the doctor will delay further testing for up to 1 month to obtain an accurate diagnosis.
    Anonymous 42789 Replies
    • October 19, 2007
    • 10:45 PM
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  • Ok.. sorry I haven't gotten back to you sooner. I just took a quick look at your blood tests and the low TSH caught my eye. It's very hard to say anything but general stuff about these tests, since I don't have the referance ranges. So I am only going to comment on the tests you mentioned were out of range. A low TSH is most likely due to secondary hypothyroidism. (read more here: http://www.nlm.nih.gov/medlineplus/ency/article/000324.htm) It is du to a failure of the pituitary gland. Most likely a small tumour. These tumours are benign 95% of the time. The increased cholesterol and glucose makes me think that you do have something going on with your pituitary gland. Making me think you need to have the tests I mentioned in my first reply. In addition you should ask for these tests: Prolactin (esp. if you are having any kind of breast discharge)LHFSH (both of these if you are having any changes in your period)Testesterone (If you have alot of acne, or unwanted hairgrowth)Liver enzymesSodiumPotassiumCalciumACTH You should aslo ask for a referral to an endocrinologist. With all this said I want you to know that you should not accept any bad explanations about your TSH. It is NOT normal to have such low values. The reason it is low is because your pituitary gland isn't releasing enough TSH to stimulate your thyroid gland to produce T4. This is often seen with hypopituitarism. You can read more here: http://www.mayoclinic.com/health/hypopituitarism/DS00479 Hope this helps... Keep us posted! Kiera
    Anonymous 42789 Replies
    • November 2, 2007
    • 07:26 AM
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  • (post removed) I was just asking God for a positive thing about this ***l I am living and You are it! LOL I used to question myself and fret when someone like you spoke to me but no more. I don't have munchhausen's and my kids have a great family at home and extended family should anything happen to me. The Drs cauterized my surgucal wound while I was awake and when I yelped they dismissed me like I was making it up! -- ten months later I had a laporoscopy in the hospital of course and when I woke up the surgeon told me about all the things they had cauterized away. I belive he told my husband that if he had his left testicle stapled to his foot it might betgin to approximate my pain. I did not take much of anything for that post surgery. I point out my tolerance for pain because I cvan usually ride whatever is going on until it passes, this time it is not getting better. I am seriously thankful that I am steadily getting different stymptoms. I can't fake green diarrhea, or the bizarre tiny bumps, like baby acne all over my body. I have no way of causing myself to spin like I am on an amusement park ride. There are drs and nurses like you iout there, I used to allow them to treat me!! lol but now I know that I have to be patient and demand that they take the time to help me figure this out. I am fortunate to have a Dr like that, he knows I am not "looking for attention" -- and if I were an administrator of this site I would remove you. Just because I know that sometimes people are correctly complaining even when that puzzles the medical establishment.
    jharsen 9 Replies
    • November 5, 2007
    • 00:55 AM
    • 0
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  • Ok.. sorry I haven't gotten back to you sooner. I just took a quick look at your blood tests and the low TSH caught my eye. It's very hard to say anything but general stuff about these tests, since I don't have the referance ranges. So I am only going to comment on the tests you mentioned were out of range. A low TSH is most likely due to secondary hypothyroidism. (read more here: http://www.nlm.nih.gov/medlineplus/ency/article/000324.htm) It is du to a failure of the pituitary gland. Most likely a small tumour. These tumours are benign 95% of the time. The increased cholesterol and glucose makes me think that you do have something going on with your pituitary gland. Making me think you need to have the tests I mentioned in my first reply. In addition you should ask for these tests: Prolactin (esp. if you are having any kind of breast discharge)LHFSH (both of these if you are having any changes in your period)Testesterone (If you have alot of acne, or unwanted hairgrowth)Liver enzymesSodiumPotassiumCalciumACTH You should aslo ask for a referral to an endocrinologist. With all this said I want you to know that you should not accept any bad explanations about your TSH. It is NOT normal to have such low values. The reason it is low is because your pituitary gland isn't releasing enough TSH to stimulate your thyroid gland to produce T4. This is often seen with hypopituitarism. You can read more here: http://www.mayoclinic.com/health/hypopituitarism/DS00479 Hope this helps... Keep us posted! Kiera Hi thanks for the reply, I am seeing my Dr tomorrow and I promise to post what happens. Thought I had beaten this thing the last weekend of October, I was able to be up and my hands were working, I had enough energy to be ok from 3 to around 7 pm, that was a long time since this flu or whatever bug this is. (Dr is certain it is just a virus but we've only spoken over the phone). I was also not really eating much to have run thru my system. I have not gained nor lost weight but I am pretty puffy -- I think from all the salt I haver been eating. I was really thinking that I'd exaggerated the symptoms but then Halloween nite it hit me hard. Horrific pain, awful pain. In my hands, legs and stomach, I asked in the morning if everyone felt okay and my hubby assured me it was not food poisoning. Same symptoms as before, but since Thursday little red bumps appeared but VERY sparsely all over, teeny red bumps. Like mini acne, for example one is on the middle finger knuckle of my right hand, then there is no other bump except two on my wrist and about an inch away from each other. I have been spiking a high 100-102 fdever but then I take it and it is down to 97, even 95.7 or.8 and I feel exactly the same! I have bright red cheeks, maybe the fever? and the salt cravings are awful. The smell of chocolate makes me sick now, I had twp red hots over Halloween. I can't keep anything down, and the cramping keeps me up when I should be asleep. I am super super weak. My husband notices but tjhe kids don't. This is what is freaking me out. I cannot hide this anymore and that scares me, I jhave been a rock my whole life and I can't keep this up, I have no energy, I am so weak and in sooo much pain in my stomach, NOT my back, NOT my spine, I know arthritic pain and this is not that, it is achier and heavier. I am alarmed, I am also pretty scared. I hope that we get some answers soon. At least I did not improve so that by the time I reached the Dr I was better, now I would give anything to feel better but I try to see tghe positive in this. Also, since I first posted, it hurts to be in the shower - the force of the water hurts against my skin. I have bruised easily for at least ten years now but the pain feels like it is bruising but there is no mark later. So I take baths. :-) I can usually adapt but this time I am not adapting. I did ask my Dr about the test you mentioned and he said he did not think that I had an adrenal problem. I refuse to get upset before we meet, I know that he will look at me and know something is terribly wrong! I don't complain, honestly I am more of a martyr than that but that is something I am trying to break. I like to be the fixer and the person that everyone can count on. They can't count on me now, it freaks me out, I sleep and wake up to throw up and sometimes go to bathroom and then fall back asleep. Only a few hours until we see a Dr, longer than it took to have one of my boys. I know I can manage that. JH I will let you know what goes on.
    jharsen 9 Replies
    • November 5, 2007
    • 01:17 AM
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  • I can agree that it MIGHT not be a adrenal problem, but I wouldn't say it isn't until you had it looked into. Your aldostorone is all messed up as I mentioned in my first post. Of that I am almost 100% sure! Aldosterone is the salt-retaining hormone and is a mineralocorticoid. Excess of aldosterone leads to high blood pressure and low potassium. Deficiencies of aldosterone are much less appreciated than deficiencies of cortisol, and lead to low blood pressure and high pulse, especially on standing, the desire to eat salt (salt-craving), dizziness or lightheadedness on standing, and palpitations. Severe cases may lead to high potassium and low sodium in blood tests. When the adrenal is not making aldosterone, renin, a kidney hormone, increases. Excesses of cortisol and aldosterone may occur independently, that is a patient may have only excess aldosterone, only excess cortisol, or excesses of both. Similarly, deficiencies of cortisol and aldosterone deficiencies may be independent. Please do keep us posted. Kiera
    Anonymous 42789 Replies
    • November 5, 2007
    • 09:51 PM
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  • Update: Today I arrived at my Primary Care DO/Rheumatologist's office and he spent over an hour with me. By the time we got there the bumps were beginning to cluster and a few broke open, almost like acne but when they merge they become a brittle blister - and the hives that broke open were up against my waistband. I was afraid he would say it was leprosy or something awful like that, but he said it was "just" hives. So I have hives!... Hmmmm. I also apparently have big dark circles under my eyes. He was concerned about my stomach pain and the meds I have for migraine can be used for that he said, I will give them a try. He has ordered a cat scan of my legs to check for PAD (sp?) as a cause for the leg pain. The green diarrhea he took a sample of for testing, also he ran a full gamut of blood tests (4 vials!) to measure the thyroid (he thinks I may not be getting enough via Armour Thyroid) as well as pituitary and adrenals. He was very concerned and sort of yelled at his staff for not getting me in immediately when I called and asked to see him. He even told a lady patient complaining in the waiting room about the delay she was enduring and he offered to refer her to a new doctor if she could not wait. !! I had no idea my Dr was so awesome, he apologized over and over for not seeing us sooner. My dear hubby was very glad that he took everything so seriously. He did agree that all the tests I thought were important to run should be checked, as well as a few I didn't mention. He also insisted upon a sedative for me to take every night, even though I told him several times that I was sleeping too much. He wants me to be able to rest. (I did not tell him I was spending some nights in the garage but I think he suspected it was worse than I wanted to say in front of hubby. Dr was insistent that I get adequate rest. We must reschedule the holidays this year, he wants quiet time only. We travel next year hopefully. This year is about recuperating and getting better. I did mention to him that I had gone to an Internet site and a person calling themselves a nurse had said that I sounded like I had Munchhausen's. He dismissed that idea out of hand, since I tend to ignore my symptoms until they are difficult to ignore, and I don't insist I am sick when I am not. I also do not have every disease that people I know are diagnosed with. He also said he thought that it is possible that since we moved to a new home it might be mold (lead/asbestos poisoning is not possible) although that would not cause the salt cravings or diarrhea, and that the flashlight test on the pupil in the dark would not have reacted as it did (the pupil dialated but after about 40 seconds began to open and close like the lens on a camera - he performed the test again today and he said "that's wild". I assume he got the same result that we did). He thinks it is an autoimmune problem, Cushings or Addisons or "something similar". He was not open to the idea that this was hysterical in nature. So he is taking it seriously and we are glad for that. I'd say that today was a solid 6, I did not feel good at all but I was able to hold it together until I went to my room for bed. Fever is back tonight but only 99.9 I am hoping that the sedative will help tonight for the stomach/leg pain, I am to go to hospital if the pain worsens, but we are hoping it stays relatively the same. He is rushing lab results and with luck we will have answers by end of the week. Thanks to all of you who are holding my hand metaphorically, it helped sooo much today. Dr even said that it sounded like all in all the Internet really helped us. He even asked me to do Reiki in front of him so he could see what I was doing - when I arrived in the exam room my BP was high - 150/115, I was able to get calm and centered and when she retook it it went down - 130/80. That was a huge difference, Dr wants me to start exchanging healings with others if I can find someone in my area to trade with. He assured me that I am not crazy, this is just a complicated set of symptoms. I was able to laugh at myself and i was very honest and open about everything. We are attacking it little piece by little piece... thanks for listening. Jean
    jharsen 9 Replies
    • November 6, 2007
    • 01:06 AM
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  • Hey Jean! I am so pleased to hear that your doctor is taking you seriously, and I agree with him. Most likely something autoimmune, but could be adrenals or cushings. Addisons is an autoimmune disease and I am not 100% sure, but I think it can cause problems with your aldosterone. Aldosterone is a hormone thatt does affect your blood pressure, and it can fluctate, so you should try to keep track of it. You can purchace a small device that you put on your wrist that you can measure both BP and pulse with. It might be a good idea to get one. Glad he decided to do a FeCal test too. Looking for any inflammation or other problems with your stool. This could be caused by something like Crohns or Ulcerative colitis as well. Take care and let me know what happens with those test results. Kiera
    Anonymous 42789 Replies
    • November 6, 2007
    • 06:22 AM
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  • Hi Keira, Well, I had been hopeful that most of my symptoms were due to an allergic reaction to a new medication the Doc placed me on in September... but last night was one of the worst I have had in my life. Back to absolutely craving salt but will not give in to that if I can help it. Honestly I feel like eating chicken boullion from the jar. It is that intense. Watery green waste again, almost the entire night, beginning around 11:45 pm and continuing through around 6am. I don't know what in the world I have left to pass, but I have been trying to drink water. I was very nauseous last evening and chalked it up to doing an hour or so of yardwork with the boys and making the big sunday supper for everyone (my join paint was probably a seven, maybe seven.3 and I have occasionally thrown up due to pain that will not let up), now I wonder if the nausea is part of this whatever it is. Is it possible that this is just a very very protracted case of influenza or other virus? We live in NY state so bleaching everything and hand washing every time I walk past a sink has become second nature, we have 2 cases of MSRA in our school (no connection to my kids, I checked just in case.) Also the hives are back!! And all I can think that I did differently this weekend was work in the yard and actually cook a nice meal (it took about 3.5 hrs total including dessert). I ate a small amount but honestly still no appetite. No odd foods. No dairy even, and I watched and made sure no grease, no spices. I feel like a failure, I thought this was behind me. I am so mad at myself right now, it's irrational but my stupid body is getting in the way of the holidays now. This is just taking way too long. Jean
    jharsen 9 Replies
    • November 12, 2007
    • 11:35 AM
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  • Jean, You poor girl.. I feel so sorry for you, because I know how frustrating it can be when you are as ill as you are now. I am not one to say if it is a virus or not, but I am still going to speak my mind. I think you are looking at something chronic. It will come and go until they find out what is causing it and treat it in one way or another. I read through your posts again and these are the symptoms you have: -Crave salt-Nausea-Diarreah (green bile)-Joint pain You also have a very low TSH, that can indicate something going on with the pitituary gland. Hypopituitarism maybe? It could be... Are you losing any hair on your body? (pubic, under arms, outter eyebrows?) Menstrual changes in any way? It usually causes constipation tho.. but nothing is ever the way it looks.. When do you go back to see your doc again? Hang in there, Kiera
    Anonymous 42789 Replies
    • November 12, 2007
    • 00:14 PM
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  • Hi Keira, Thanks for the kind words. I made coffee and toast for Dear Hubby and he took one look at me and decided to work from home today, he says that I have "ghastly" dark circles around my eyes. I am cold when he is warm and warm when he is freezing, so on his urging I checked - I'm running a 101 temp but did not feel "feverish" if you know what I mean? Hubby says I am very forgetful (one good side to that is that I do not stay mad or hold any kind of grudge, also constitutionally incapable of sustaining any sort of secrecy or deception, and flip side I am easily duped - which is keeping me very childlike in a good way I think, although I can get very stressed I can't get mad at kids because I don't remember day to day hour to hour whatever they did wrong, lol) but the forgetfullness while not new is easily three times as worse he says. I asked him about the hair loss and he confirms I have thinning hair, esp on my eyebrows and actual scalp. As for menses, I had a partial hysterectomy in 2001 and the ovaries were removed in Nov of 2002. I am not on any replacement hormones though I felt intuitively at the beginning that it was important to replace them - now hot flashes, etc is almost completely gone. By the way I am only 43, and until my last pregnancy I was a size 6-8, avid outdoorsperson, fit, trim, even underweight. Now I am fighting to stay at or below 190 pounds, and my husband gets frustrated when the Doctor says that I have to restrict more calories to get back to my original size as he sees what I eat and it is a fraction of what he eats. I do take Armor Thyrotab, 180mg a day. Most mornings I take it around 5am with water and then fall back to sleep until 6, this way i can drink coffee or tea as soon as i get out of the shower, the Dr insists that my low TSH is due to my eating or drinking too soon after taking the medicine. I don't think I should be able to fall back asleep if I was getting enough Thyrotab for my system, but the fact I fall asleep after taking it does not seem to bother him at all. Oh, also I fainted Saturday evening after friends went home, I was exhausted from ?!? talking ?!? I guess and I was trying to finish up the laundry before turning in and I was told I just fell straight back and my head bounced off of the concrete. My hand hurt far more than my head when i woke up, then I fainted again Sunday during the day but this time he says I crumpled onto the floor. Both times I felt very very exhausted just prior. That could be due to not eating much, I have no appetite again. For a few days in a row I was eager for something at dinner but by Thursday I was back to not wanting much but rice cereal or a handful of wilted spinach with a bit of garlic and olive oil. Back to no oils by Saturday, you know the rest. But I did have an apple Saturday, maybe that caused the watery elimnination? I have put a call into the Dr. He made me promise to call if the watery stuff began again. Esp since I am running the fever I think this might be a virus. I don't want more problems with my system! I keep telling myself that I can see, walk, enjoy life in a way that blind, lame, mute people can't. Maybe that will seem like a blessing in a few hours, right now I feel like no one would trade my health problems for their own, thank God my dear husband is not accusatory at all, even though I hate myself right now for being sick again. Sorry if I am rambling. I was just sooo happy to be better, this is just a ***n kick in the teeth. I can't stop shaking, and my stomach and legs are killing me, I am getting ready to take an epsom salt bath, maybe that will get me out of this grumpy mood. Now I'm sure that nurses deserve double the pay Drs get, if I was in hospital I would be taking it out on one of them I am sure, and that would be so unfair. I'll check back and let you know what Dr says. Jean
    jharsen 9 Replies
    • November 12, 2007
    • 01:03 PM
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  • Hey Jean Hope your day today is better then yesterday. I really do feel for you, since I kinda connect in a way. I have had stuff going on for ages that nobody is able to tell me what is. It really gets to you! I hope that something shows up in your blood. At least then they will have something to build on. I know that might sound mean, but it's not ment that way at all! It's just that when you are as sick as you sound and the doctors are unable to get any postive blood back, you are kinda stuck in a hole. After a while you start wondering if anyone will ever find out whats wrong with you. Glad your DH stayed home with you. Fainting is NOT a good thing. You really do sound like you have some adrenal stuff going on. Even if your weight issue should be the other way around. There is something called cyclic cushing as well. This causes both high and low cortisol. That could even fit into the picture. I usually read these boards daily, so if you post again I should see it soon after. In the meantime take care of yourself. Kiera
    Anonymous 42789 Replies
    • November 13, 2007
    • 07:46 PM
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  • Hi Jean, Just wanted you to know that I am thinking of you and I hope things went well with your tests. Kiera
    Anonymous 42789 Replies
    • November 24, 2007
    • 05:13 PM
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  • What a blessing and relief for you to have found a health care provider that isn't dismissing you anymore and seems to want to help you find solutions and manage your symptoms, even if they don't have an absolute diagnosis. This can help make the agony you experience more 'copeable'. In addition to all your health issues that can be due to layers of contributing disorders or diseases in progress, it might be beneficial to request being evaluated for glutton intolerance. Look this up on the internet. It can contribute to some really diverse symptoms and it could be part of what you have going on. As far as I am concerned, you are a hero. You are really going through a refining fire. And your physician also deserves accolades. I pray that you and your family receive abundant blessings that exceed your suffering. By the way, while sleeping on a couch is not recommended for support, I have found that the support I recieve from being able to 'lean' against the back of the couch helps to 'relax' my back muscles. If I am on a regular bed (and I've tried several), I wake myself with my moaning. And I will wake up with my head in the position where my feet were when I went to sleep and I won't recall moving, and I will wake up much stiffer from not being able to 'relax' my muscles. This rarely happens when I sleep on the couch. May you have refreshment and restoration and relief.
    Anonymous 42789 Replies
    • December 11, 2007
    • 07:45 AM
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