Discussions By Condition: Medical Errors

please tell me I am not crazy...

Posted In: Medical Errors 4 Replies
  • Posted By: jharsen
  • October 18, 2007
  • 06:30 PM

I'm a 43 yo mom and wife who was very active until just after my last child was born in 1996. I had a relatively normal pregnancy, I tend to push myslef and began bleeding mid pregnancy and had to remain on strict bedrest, but he was born normally. I HAD THREE CHILDREN WITH NO PAIN MEDS -- ALL NATURAL W/MIDWIFE OR OBGYN_MIDWIFE APPROACH. All my labors were over 12 hrs, my first child was born after 28 hrs of labor, my second after just under 16 hrs and my last at 12 hrs twenty six minutes. All my labors stopped midway and I had pitocin every time, still did not need pain meds, not even after a three inch perineum (sp?) tear that extended into my rectum w/child #2. So I have or at least used to have a very high tolerance for pain. Skier, golfer, even hang drywall two summers in a row. I was not a goddess but I was fit, could dance for 2 hrs at a shot and get flushed and sweaty but not collapse, ok?

So this began 11 yrs ago... I began having extremely sharp chest pains, thought I was going to die, did slow breathing took up yoga, did not help. Began having hot heavy skin patches on my thighs and face that itched very badly, was told it was rosacea, had inexplicable weight gain. As most of my life I was a size 4-6, being a size 13-14 was horrific. Dr visists were useless, I was told i was vain and too accept my weight. Tests on my heart showed nothing was wrong. They implied I was malingering since it started when I was phhysically active, so I changed jobs so I would not have to do much exertion. Took so many antidepressants I cannot name them all, each tried 4-6 months at a time. Gained another 60 lbs and basically lapsed into a cycle of losing my will to fight drs, and then rally and fight to regain my life, fail at that because something is very wrong with me and lapse back into so much fatigue that I have to drink my coffee with a straw - the glasses and cups when full are too heavy. Did I mention I used to WORK for a living, harder than most men?

Then I began having hair fall out, severe headaches that are worse in bright light, extremely cold all of the time. Drs said I had fibromyalgia, as my lymph nodes were and are usually very sore as well as areas on my back, arms, legs. Joint pain and pain in muscles above and below the joints became so bad that I began sleeping fulltime with two electric blankets. Also my body temperature dropped to a new normal of 97 - 97.5 which Drs said was normal. Yet when I finally am feeling cold it is nearly impossible to get warm again. Very sharp pain in fingers and toes, now it is also in knees and back, midback and upper back, deep sharp pain, almost like someone has a shovel and is trying to pry the bone apart. Now left thumb and both big toe joints are achy and sharply sore at least 90 percent of the time. Headaches are so bad I throw up when I have to move when they are really galloping along. In Oregon they gave me Stadol which allowed me to "sleep it off" but being a mom I hate to be drugged to sleep, esp since their dad may be home but what if in an emergency they need me and I am knocked out? Moot as NY docs consider Stadol a no no for me, they refuse to consider it so I grit my teeth and take Imitrex shots which leave me white as a sheet and very hard to breathe, I can feel it as it "hits" and it makes me clammy, have to be super still or I feel like something bad will happen, have to drink tons of water afterwards. I have these headaches in clusters, had at least seven in August, six or seven in September and only day before last had one in Oct. Weather related? seems like it.

Chest pain not as bad this summer, but still quite sore when I exert myself (I also practice biofeedback so I slow my heart rate some and completely relax within 30-60 seconds even when I am in extreme pain to help it ease off and not fight it). I have not been able to ride a bike, ski, etc since 1996. I can't even walk without a cane now (I tend to lose my balance and fall - broke my arm three times before hubby insisted on it when I leave the house) or even use the stairs without really hurting, going down stairs is far worse than up them though.

Well, Drs finally realized that although thyroid T4and T3 were low but technically normal, my total thyroxine was thru the ROOF, like a 165 or 185 when normal is like 30 or 35!! So I went on armor thyrotab and the extreme fatigue seemed better but honestly I was and am still suffering from something. What?!?

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4 Replies:

  • You can have a triad of autoimmune diseases. What is common? Addison's Disease, Hashimoto's Thyroiditis, and Diabetes Type 1.My mother has all 3 of those. She started with Addison's Disease, then got Hashimoto's, and finally Diabetes. These can occur in any order.For info on Thyroid Disease:http://www.thyroidmanager.org/See my other link for Addison's Disease in your part two.
    Anonymous 42,789 Replies
    • October 19, 2007
    • 10:53 PM
    • 0
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  • Get a new doctor. Go to a trishiary care center, with good Dr.'s. You have to be an advocate for yourself. Stay on antidepressents, and I know this sounds odd, try to get a prescription for an antacid. Good luck.
    Anonymous 42,789 Replies
    • October 22, 2007
    • 08:22 AM
    • 0
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  • Look up Cushing's & see if these symptoms match you. I saw a "Mystery Diagnosis" episode where someone had the same symptoms you describe.You aren't crazy.
    Anonymous 42,789 Replies
    • October 28, 2007
    • 11:33 PM
    • 0
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  • Look up Cushing's & see if these symptoms match you. I saw a "Mystery Diagnosis" episode where someone had the same symptoms you describe. You aren't crazy. This is spooky, I have a "hump" and I thought it was odd that I devbeloped stretch marks with my last child, the photos I found via your link look exactly like mine! I am also 185 lbs now all in my middle and upper arms, I used to be a size 4-6, even pregnant I was a size 10, now I am in a 16, lately I wear loose fitting size18 to keep pressure/pain in my abdomen tolerable. I am not a dr, I hate being sick. I just know that this is not workable, I can't soldier on anymore. There has to be some kind of help available, I don't want the holidays to be like this. Something is very very wrong, I hope they find it tomorrow. JH
    jharsen 9 Replies
    • November 5, 2007
    • 01:27 AM
    • 0
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