Discussions By Condition: Medical Errors

painful bowel movements, unable to eat and loosing wt

Posted In: Medical Errors 2 Replies
  • Posted By: Anonymous
  • June 19, 2007
  • 11:28 PM

Hi ....right now I am so frustrated its unbelievable, my dtr is 23yrs old and has been living a nightmare for several years now. She had endometriosis and had to have a hysterectomy drs told her that she would be better in about 6 weeks. Well the pain continued so she went to a GI Dr. he decides its her gall bladder function, so he puts in stints and she seems to get better. Well again she ends up back in the hospital having lost 35 lbs she is 5'4" and weighs 95 lbs because she cant eat and is still having excruciating pain when taking a "dump". They have had her in the hospital for a week and can't find anything so they set her up with a psych consult in the morning. To say the least she is very upset now she thinks she is crazy and all she wants to do is go through life w/out pain. They tested her for Crohns and found nothing..

What do we do and were do we go.........................tired and upset in ohio

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2 Replies:

  • I wonder if a piece of the endrometriosis remained & grew attaching itself to her bowel. My friend had that happen. She should hae an MRI or CT scan
    Anonymous 42789 Replies Flag this Response
  • I don't know much about endometriosis - here's a link which mentions pain in the intestines, testing: http://www.4woman.gov/faq/endomet.htm#b Sounds like an ultrasound or MRI is in order! The site also mentions a link between endo and the immune system. Could be something was triggered by the surgery which is immune-related. If her gastro system is giving her pain, she might want to start keeping a food diary...researchers have found that gluten and dairy make immune/autoimmune conditions worse. As for it being "psychological," that is surely an easy out for a doctor to take. A doctor who has obviously exhausted all his/her NORMAL diagnostic tests is obviously a doctor who will need to be replaced. She needs a proactive doctor who is willing to think outside the box. Start with these tests: lactulose-to-mannitol test to check for intestinal permeability;sucrose test to check for gastric permeability;immunoglobulin panel to check for compromised immune system;MRI or ultrasound of abdomen;C-Reactive Protein test for inflammation. Start taking a probiotic, maybe a digestive enzyme product (my son takes a Pro-Gest-Ade every day, by Enzymatic Therapy). See what her B vitamin levels are. She will need a fighter by her side to help her through this medicl labyrinth...:) We saw 22 doctors over a 2-year period when my son was 9 years old and very very sick. We too received a "medical diagnosis" of "something psychological." That is not helpful when you are suffering. from a medically-disabling illness. Karen
    Zonulin 7 Replies Flag this Response
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