My daughter was 12 at the time. She's an A plus student, some would say over achiever, and athletic. The first day back to school over christmas vacation she came home saying her back hurt and throat hurt and she feels like she is getting sick. I told her it is probably the flu and give it a couple of days. It was going around. Two days later her back hurt and she could barley move. Took her to her doctor. She had swollen glands and mucle spasms in her lowerback . Another two days. She could not stand and looked as if death warmed over. White as a ghost in her face. The Doctor sent her for bloodwork and gave her mucle relaxers. No relief. Pain was settling in ,her head was splitting with pain. Sent to the E.R. Test after test, found nothing,thought it was stress related. We set out for physical theropy,She could not walk and the Doctor never seen anything like it. He called our family doctor ,then sent her to another hospital. Test after test could not explain. My husband and I suggested Lyme disease because of were we lived and we knew people close to us that had it and that it made sense. The 1st and 2nd hospitals told us they ruled it out. They had no answer. Off home we went and my daughter was getting sicker, family doctor was shaking his head. Off to the third top ten hospital.Diagnosis..R.S.D. brought on by in her head overachiever. Doctor's words. We suggested Lyme disease.Would not hear of it. Sent home. Got records and asked around .
Got in to see a doctor who only deals in Lyme to take a look at her. Physical exam he said,"he could lay money on it. It's lyme."We will wait for the testing to come back. Mean while the records I gathered I gave to the doctor and he said,"I tought she tested negitive for lyme?" That is what they told me. She tested positive not in one hospital but by the second hospital the titter was even more elevated and Mono too boot.
She spent the first six months in a wheelchair. Could not move and was in horrible pain in which morphine did not touch.Shaking of the legs so bad she wanted us to tie her legs down. Before we found a Doctor to listen,She wanted us to let her die. Unacceptable!
She came home saying,"I don't feel good." We went through H_ _ _! I threatened at the last hospital that I was going to feed store and administer Amoxicillin myself. We begged for them to try Doxi.. They wouldn't. The 1st week on antibiotics she stopped shaking, but sick from Herxing. The weeks passed and she started to get better and better. I tried to find a lawyer to take on the case. No one would touch it.
She had Lyme Disease.... Proud to say she went from in a wheelchair and she could not count 50 cents ,too Honor Roll student and Volleyball player after 4 months of treatement. I am so thankful. The scar she has is depression and anxiety. Managed by medication, thankfully. Scared the symtoms will come back and paranoid of every illness, but alive. It was all because we did not give up and we finally found some one who listened.