Discussions By Condition: Medical Errors

neurofibromytosis or mucune albright syndrome?

Posted In: Medical Errors 0 Replies
  • Posted By: Anonymous
  • April 14, 2007
  • 02:27 PM

when my son was born he had au latte marks and the doctors said that it was a type of nf either 1 or 2 and then told us that one was harmless and the other led to tumors. recently, seven years later we found out that it was mucune albright syndrome and that he has tumors growing all throughout his body on the bones. so if anyone has either of these show up i would recomend a second or third opinion if possible. and i appologize for the mispelling of nf

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