Discussions By Condition: Medical Errors

need help please

Posted In: Medical Errors 5 Replies
  • Posted By: upset in La.
  • March 17, 2013
  • 07:32 PM

Hi, Im a 53 yr old male. I was diagnosed with pancreatic cancer alittle over three years ago. Ive spent the last year on hospice. After hospice started questioning my diagnosis, my doctor did another ct scan and there was no tumor. He did tell me but the hospice discharged me. He would even contact me after 3 yrs of treatment. I received a letter from his office stating I had 30 days to find another doc. He has me on many medications. I have been living a life waiting on death. Funeral planned, wills and everything done. I still have the same health problems as before. What is my next plan of action? I'm totally lost in this situation. Any good advice would be greatly appreciated.

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  • Hi, Im a 53 yr old male. I was diagnosed with pancreatic cancer alittle over three years ago. Ive spent the last year on hospice. After hospice started questioning my diagnosis, my doctor did another ct scan and there was no tumor. He did tell me but the hospice discharged me. He would even contact me after 3 yrs of treatment. I received a letter from his office stating I had 30 days to find another doc. He has me on many medications. I have been living a life waiting on death. Funeral planned, wills and everything done. I still have the same health problems as before. What is my next plan of action? I'm totally lost in this situation. Any good advice would be greatly appreciated.First, ask to have a copy of your ENTIRE medical file sent to YOU, even if you have to pay for it. If they hem and haw and say they want to send it to directly to your new doctor, you have a valid counterpoint. You don't HAVE that time. YOU need those records NOW so you can have them WITH you during your FIRST appt with your new dr. (Although I am suspicious as to why this dr wants to get rid of you so fast (30 days seems fast to me), it could be that he only wants to deal with people who get worse because he has no experience with people getting better.)Second, make an appt with 3 drs. At least 2 (for 2 opinions) who have the same specialty as that dr, and 1 appt with a dr whose specialty is with cancer REHABILITATION. Third, call or go to the pharmacy you used the most in the last few months and speak with a pharmacist about the medicines. Perhaps the pharmacist can suggest a dr to go to (as a dr who has prescribed teh same medications for other people) OR guide you to an "immediate: or short-term/temporary action that will not harm you. Ask if there is anything out of the ordinary for the combination you are taking, too. Remember that a pharmacist is not a dr and may not have any suggestion at all how to change taking your medicines.If you have trouble getting a dr's appt within the next 3 wks (per the 30day notice), ask the hospice refer you to doctors within the same specialty or with rehab qualificiations. A medical hospital that teaches, such as Yale does in CT, could be a good place to find a dr, too.As a shot in the dark, consider that the hospice environment changed your lifestyle via food, living conditions, and stress management. It is possible that the hospice facility's operating practices contributed to your healing. Is there anything that was significantly different from your past lifestyle that stands out? Also, did they dispense your medicine to you? If yes, perhaps their medicine manufacturer or supplier(s) should hear about your being without a tumor; after a medicine in on the market, they expand clinical trials to see how combinations with other medicines work (for better or worse). If you qualify for a clinical trial, that is a good way to get a dr's evaluation fast.
    ccurts 4 Replies Flag this Response
  • Just realized your plea was in March. I hope you found a good dr since then. If you are not satisfied with the drs, exploring other items stated above.
    ccurts 4 Replies Flag this Response
  • Be positive. Take help from other doctors as stated above and keep yourself busy in some work.
    Ammy Wats 53 Replies Flag this Response
  • Do you have any symptoms? Do you have pain? Bloody urine? Bloody stools? Weight loss? Fatigue? Muscle loss? Confusion? Depression? Has more than one doctor told you that you had cancer?
    GoldenLocks 2 Replies Flag this Response
  • Third, call or go to the pharmacy you used the most in the last few months and speak with a pharmacist about the medicines. Perhaps the pharmacist can suggest a dr to go to as a dr who has prescribed teh same medications for other people OR guide you to an "immediate: or short-term/temporary action that will not harm you. Ask if there is anything out of the ordinary for the combination you are taking, too. Remember that a pharmacist is not a dr and may not have any suggestion at all how to change taking your medicines.
    mikky7 1 Replies
    • December 2, 2013
    • 10:05 AM
    • 0
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