Discussions By Condition: Medical Errors

Mystery Illness

Posted In: Medical Errors 2 Replies
  • Posted By: lasond2471
  • May 31, 2009
  • 03:57 PM

I have been ill for unknown reasons for approximately 2 years. During this time, I have seen about 2 General Doctors, 3 Internists, 1 Cardiologist and 2 Gastro Doctors in addition to the 6 Emergency Room visits made over this period of time and all doctors have listened to my symptoms, drawn bloodwork and released me in good health. The only thing that is ever brought to my attention is that my blood pressure is low and has been as low as 50/52 when I go through these "spells". Usually I am sick for 1 or more days then feel fine. Recently (in the past week) in addition to the sudden and random drop in blood pressure my resting heart rate has gone up to 105 and even then I have been sent away from the Emergency room said to be in good health and referred to a Cardiologist who says my heart is fine but have notice some irregular heartbeats. When my symptoms started about 2 years ago they did so with very deep chills when I was not cold, extreme fatigue, weakness and a dull knawing/pulling sensation where my liver/gallbladder are. Periodically, I will get very sharp pains in this area but 2 fairly recent ultrasound tests showed "no stones". I have progressed in the past week with increased and almost constant knawing sensations where my liver/gallbladder are, heart rate and beat/irregularity problems, to near fainting and shaking/trembling as if I'm cold when I am not and slight loss of balance/dizziness off and on. I am tired of being dimissed and released by doctors to continue to detiriorate. I feel that my life is in jepordy and need help as soon as possible.

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2 Replies:

  • Hi- This sounds like my husband's story. He was just diagnosed with Amyloidosis, a rare disease where protein doesn't break down and lodges in various body orgams. He was suffering from lightheadedness, fainting, low blood pressure and every doctor said he was fine. Finally, protein in his urine was the sign that got us on the road to a diagnosis. Ask your doctor - the earlier this is caught the better. I think they can also check the bp levels in your blood as a sign. He had a catherization of the heart when a small biopsy was taken which confirmed the diagnosis. Good luck!
    suesam10 1 Replies Flag this Response
  • Thank you for the information suesam10! I will be sure to mention this disorder to my doctor.
    lasond2471 1 Replies Flag this Response
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