I have many illnesses. I have some major problems of misdiagnosis along the way that have impacted my life.
In 1991, I had a D&C for what the doctor thought was a miscarriage. He did not read the path report. For three weeks I continued to have bleeding and severe pain. Five doctors saw me and couldn't figure out what was wrong despite one of them doing a pregnancy test on me and seeing that it was still highly positive.
The doctor in charge wanted to send me home the day of my last clinic visit but one of the doctors stopped him. He sent me down to GYN for a sono. I had a ruptured tubal pregnancy and almost died.
In 1997, I underwent a laparoscopy for pelvic adhesions. The doctor accidently cut three of my abdominal nerves after she converted the surgery to a laparotomy without telling us.
I had to quit work in 1997 due to severe abdominal pain. I did not find out until 2003 that I had Complex Regional Pain Syndrome and that the doctor had cut my nerves.
I also had ongoing spells in which I would have abdominal spasms followed by vomiting for 18 hours. No one could figure out was wrong. I was finally diagnosed with abdominal migraines in 2003.
Last year I was admitted to the hospital for neurological symptoms. The neurologist said he didn't know what was wrong with me. I had the symptoms for five years.
My husband asked the doctor to order an MRI and it was consistant with Frontal Lobe Degenerative Disease which is a terminal brain degenerative illness.
The doctor told me I probably didn't have it because it was rare. My husband took me to an FTD specialist and she confirmed I did have FTD.
If you would like to know more about my journey with my illnesses feel free to visit my blog Iamdying.net. It is not my intention to promote anything. Since I have found out about my terminal illness and have lived with chronic pain for many years, I am trying to help people by writing about my experiences, sharing information and providing emotional support. Any opinions expressed on my blog are my own personal opinions.
I am not afflilated with any drug manufactoring company and I always advise people to seek medical care from their doctors.
Thanks for reading my post.
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