I have been suffering from lower and neck back pain since 2005. I went to Pain Specialist Dr V. in June 2006. She said I had DDD and OA in my back.
By July my pain got worse and now having rib pain and stomach pain and stinging in my middle back. Could not sit for 10 mins without pain.
July 28 I talked her into ordering MRI of middle back after I cried in her office.
Aug 3 I went to family dr who said I had rib out of place and Gastritis. They did order blood test at Quest for ulcer.
Aug 4 MRI showed T-8 spot on my spine and DDD of my middle back too.
Dr V. Called me Aug 5 to say , We need another MRI with contrast and full Body Bone scan immediately. Had to worry whole weekend waiting for week for insurance to approve another one.
Aug 7 I ended up in ER with pain in my Stomach so bad, I said forget my family doctor. They found Ulcers in my upper intestines. Causing inflamation in my ribs and sterum. I told the ER doctor about my spot on my spine, they said to followup with my private dr.
Aug 14 MRI- Came back T-8 Mass covering my vertabra into the sac.
Bone scan showed uptake on the t-8.
DR. V called me upset and wanted me to go to Cancer Center asap to get tested for Lymphoma , or Padgett disease.
I called Moffitt Cancer Center , who said they would call me back within 48 hrs after determining what dr I would see.
3 days later no call back, I called them, they said they had referred my paperwork to wrong dr, and now they could make me appointment with
neurosurgeon on Sept 11, 2006. We only have one neurosurgeon so you will have to wait for his opening.
Another weekend to worry, On monday I started calling neurosurgeons in Tampa, 3 to 4 week wait. So I finally called my Family dr, who know about this on Aug 7 and never called me or made me appt. I insisted he call and get me a earllier appt, SO they did it to get rid of me.
I also told him I ended up in hospital overnite because they failed to find my problem of ulcer the week before.
Another week to wait to see Dr L in Tampa. Finally get to see her Aug 28. SHe looks at my MRI and says I dont know , you shoud see a cancer doctor not me. Oh my gosh all this waiting for answer.
She suggested I start calling Cancer dr in My city until i get someone who will see me right away.
Aug 29 I got out the yellow pages in Lakeland, started calling, no one could see me for weeks. Finally I got a nurse on the line who said fax me your results and I will show them to Dr T and see what he can do.
Dr T, told me I needed to be admitted to hospital and get biopsy right away. He called my family dr and he said he had no admitting RIghts so I would have to wait until I could see DR T in week or so. Dr T only sees patients that have Cancer. So to make a long story short, He sent me to new Family Dr the next day, who put me in hospital right away.
After Cat Scan Aug 31, they determined I had T8 Hemangioma
benign tumor of blood vessels. It is growing so It must be watched it is encasing the sac.
My pain doctor Dr V, is no longer with the Spine Center.
I got rid of my family doctor. My new Family doctor has left the clinic.
So I am starting over trying to find my back problems. Still no answers to my back pain problems,
All those 4 weeks of worrying, when they could of done simple blood test to see if I had cancer. Why did everyone make me worry for over 4 weeks. insane.
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