Discussions By Condition: Medical Errors

Miserable Since Birth of my daughter; she will be 5 in May

Posted In: Medical Errors 33 Replies
  • Posted By: Anonymous
  • January 8, 2007
  • 02:35 AM

I'm sorry if this story will sound so long, but my life after my daughter has been such a long and miserable one. I've been to so many doctors and have had so many tests done, that I am absolutely sick of being sick.
First, when I had her via C-Section, they had difficulty placing the Spinal and ended up doing an Epidural. It took one whole hour to place this in my back. After the birth, my husband counted 50 holes in my back where they had tried to put the Spinal/Epidural. Not shortly after (about a week), I started to feel really strange. My face kept getting real hot, my heart was racing and my back in my upper shoulder blades started to ache. I went back to my OB/GYN and asked him to run some hormone tests, which all came back normal. He said that it could be my blood pressure. For some reason, it had gone up after the birth of my daughter. So he put me on a blood pressure pill. And so the pills began........ And so didn't the trips to my Primary Care Doctor. And from there....to Specialists who tell me that something is def. wrong, but that they are not the doctor for me. My PCP first went in the direction of my 'female' hormones because it happened right after the birth of my daughter. He sent me to another Gyno. and had testing done, but nothing showed. That was when the antidepressants were given to me. Yuck! Then my PCP went in the direction that "maybe" something happened when the Spinal/Epidural was trying to be given to me. He then sent me to a neurologist. There I had an MRI of my back and blood work. MRI showed mild arthritis (normal for my age) and blood work showed that my calcium was high (Hypercalimia). My PCP sent me to an Endocrynologist who tested my Calcium levels again and everything was normal. Also had a bone scan which was normal. Had a lot of chest pain and right sided abdominal pain during all of this. I kept telling my PCP that it was my gallbladder so he sent me for an ultrasound....normal. Sent me for a Hydascan...normal. Had a horrible gall bladder attack after eating a fish sandwhich and ended up in the ER talking to a surgeon. He did what they called the "gall bladder technique" where he shoved his hands up under my right lower rib cage. I about hit him. He said he def. wanted to go in with exploratory and look around. I had surgery the next day and sure enough...."I was right". He said it was the worst looking gall bladder he had ever seen. The chest pain and right sided pain vanished. But I still felt yucky. My heart raced; I was very sensitive to heat; my face would get hot and then go back to normal; I was gittery; real nervous; and agitated; forgetful; I was constipated; low grade fever; flu-like symptoms; my back ached; my headaches became daily. My PCP tested my Thyroid levels again and again. He kept telling me I was a textbook for hyperthyroid. My levels kept coming back .1 away from being hyperthyroid. Also had an ultrasound done of my thyroid which showed a nodule about 1 cm. We thought we had hit the jackpot...Hot nodule producing too much hormone. But a Thyroid Uptake Scan showed it to be a cold nodule producing nothing. This Uptake came back at 29%. 30% is diagnosed as hyperthyroid. My PCP also sent me to have allergy testing done. I have difficulty breathing and my heart races very easily; even resting. He thought maybe I was allergic to something. Everything came back normal. I flunked my Pulmonary Testing, and diagnosed with mild asthma. I was given an inhaler (which I dont' think helps anything). My PCP also sent me to a Cardiologist for my rapid heart rate. I had a Stress test (fine); wore a heart monitor (just showed a rapid heart rate); had EKG's which were fine; had an Echo done to test for leakage of the valve (my dad has this)...mine was a tiny bit but nothing to cause these symptoms. The cardiologist told me that he felt that in his opinion with my rapid heart rate and the other symptoms that it was hypyerthyroidism. He put me on Lopressor to slow my heart rate down. It has helped. Went back to my PCP and told him what the heart dr. said about the hyper. and so he sent me to another ENDO. This dr. tested other things as well as my throid hormones. He believed that it was adrenaline related. He tested my adrenal glands and my corisol levels. Everything was normal. Including my thyroid levels. So my PCP sent me away from this area to a University Hospital to see another ENDO for a third opinion. This guy seemed very convinced just by examining me that it was hyperthyroidism. My reflexes were very exaggerated. Bad hand tremor. But when my blood levels came back in the "normal range" he sent me away. After this visit, my low grade fever became a little higher. The nurse at work kept track of it. It ran daily around 100 to 102. They also called from the University Hospital and explained that something did show abnormal on my blood work but had nothing to do with them. For the first time ever, a SED Rate was ran and it came back as 32. I called my PCP but he seemed to blow me off. I think that he was actually getting sick of me at this point. I called a friend who was a nurse of the surgeon who took my gall bladder out and she said that if it was her, she would go to an Infectious Disease Dr. So there I went. He looked at my blood work and he said I looked very healthy. Except for the SED Rate...which meant really nothing to him. Upon examination, he pushed in on my right side, which hurt terribly. He asked me how long it had been hurting and I said for a few years, but that I had just chalked it up to being constipated. He said that in his opinion I had Chronic Appendicitis. I called the surgeon's nurse and she made an appointment for me to see the surgeon. He said that it was very unlikely that I had Chronic Appendicitis because if it was, it would have burst by now, but that if I agreed, he would go in and take a look around. I had surgery the next day....and guess what? I was almost on the right track. I had two appendix. Only 2% of the population has this. It is a birth defect where the imbilical cord from my mother to me should have dissolved, but instead, it formed another appendix behind my "good" appendix. So when I would have a belly CT, they would see my "good" appendix and send me on my merry way. The surgeon sent me on my way and said that he was almost 99% sure that this was my entire problem and that he didn't want to even test my blood for two months. He wanted to wait for the poison to get out of my system. It has been 3 1/2 months and I just had my levels tested again. MY SED Rate was 46. So what the heck is going on??? I dont' feel better. The only thing that is gone are the fevers and my right side does not hurt anymore. I still think it has something to do with my thyroid. My heart is still racing; I'm nervous even with zanax and Lopressor. Oh....and the constipation is totally gone. The surgeon says that the second appendix was blocking my bowels which was causing the constipation. Now all I have is diaherraha. Another symptom of Hyperthyroid. I'm not sure that I should push this thyroid issue anymore or not. I know it is so hard to diagnose. But I have been right two times in my life now about what was wrong with me. Even when the tests said otherwise. And I am so sick and depressed of feeling like this. I've been finding myself crying all the time now. And all these doctors want to do is give me another pill to try to "fix" or "mask" a symptom I have. I don't want to do that. I feel that something is "causing" me to feel the way I am. I don't want another pill. I want to know what is wrong. Is that so much to ask. Obviously a SED RAte of 46 is showing something is going on. My PCP Dr. wants to send me to a Rhematoidologist next. But he did a general panel and all my RH and ANA was normal. I'm so lost and dont' know what to do. I know that this is so long and if you have taken the time to read the entire thing, could you please respond. Or even email me at dgreenlee11@sbcglobal.net. I am desperate and slowly sinking into this depressive state that I am very scared of. Thank you. Danielle

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33 Replies:

  • I'm so sorry you're going through this. I just posted my story two days ago.I candefinately relate.I had three normal ultrasounds,a normal hyda-scan,a normalct-scan, only to be told I had 'billary dyskenesia',or gallbladder attacks w/no stones.During surgery theyfound I have cirrhosis. I correctly guessed this back in june 100 lbs,and several thousand dollars ago. I currently have an enlarged spleen, AND lowtsh,which would seem to indicate hyper-thyroid. I have palpitations,tremors,weakness,i'm in a fog,my eyes burn,and I have fluttery vision.And guess what... more pain than before the surgery. I'm at my wits end. MyPC knows about the tsh but isnt doing anything about it. Any way, my prayers go out to you, good luck, Bobby.
    Anonymous 42789 Replies
    • January 8, 2007
    • 06:20 AM
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  • Boy do I hear where youare coming from,Almost 4 years ago after the birth if my daughter and having an epidural(not easily put in) I started having migraines 4-5 times a week for 3 months and then just stopped suddenly. I then began having episodes of flushing, rapid heart beat, dizziness, uneasiness as well as continual fatigue.My episodes were once amonth then once a week then everyday. Iwent to a neurologist i had white spots on my brain which led to extensive testing for MS and epilepsy nothing...Then to an autolarinologist with tons of testing nothing.By this time my GP said Idon't know what to do with you. So I went to an accupuncturist and naturopath where we found out that my cortisol levels were high. The first clue maybe... Nothing we tried seemed to help. So with all normal blood work ups everyone just thought it was anxiety. Then lat summer I got stung by a bee and had an anaphalaxic shock, never had I been allergic to bees, after that I had what felt like anaphalaxic attacks many times after and ended up in the emergency room with the "nothings wrong with you" line. Finally to a new GP who has already given up on even trying to help me figure this out. But I did go to a dermatologist who thought I might have pheochromocytoma or some kind of carcinoid tumor. So we did an MRI and CT which turned up 5 tumors on my liver but again everyone is saying that this is common and these would not produce the symptoms that I am experiencing. I decided that maybe an endocronologist may be the next path so I go to see her next week. Sorry for the long story but I feel for you and you are not crazy don't give up looking. Let me know how things go for you! Natalie
    natalie 8 Replies
    • January 8, 2007
    • 07:07 AM
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  • I don't have any clear thoughts on a western diagnosis, and am sorry you are in such pain. I do feel that acupuncture and chinese herbs would be very helpful for you and suggest you find an acupuncturist who is also a trained Chinese herbalist. A naturopath, unless they also went to TCM (Traditional Chinese Medicine) school doesn't have the same kind of training... I agree it may be adrenal related. In Chinese medicine, this is related to the Kidneys and the Heart is also involved. After your problems with the C section this can cause Qi and Blood deficiency and is exasperated by blood stagnation from the surgery. How old is your daughter now? Are you taking supplements? Are you nursing? What medications are you currently taking? Depending on how long you have been experiencing symptoms, it may take a while before you see results with an acupuncturist. Please give it at least 4 treatments and you should see results. It is especially helpful for postpartum problems, upper respiratory and emotional disorders. I think it would really help you! Best of luck to you.Doctor of Oriental Medicine
    acuann 3080 Replies
    • January 9, 2007
    • 04:07 PM
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  • Sorry - just read the title of your post again! So you have been going through this for five years, how frustrating it must be. Another thought I have is to get a complete nutritional assessment as certain nutritional deficiencies will affect your hormone levels and thyroid levels. Copper deficiency may cause hyperthyroidism and depression for instance. Go to www.vitacost.com and look for a good quality vitamin/mineral supplement. They are one of the best and cheapest places around. Also, to find an acupuncturist near you, please go to www.acufinder.com and type in your zip code.All the best.Doctor of ORiental Medicine
    acuann 3080 Replies
    • January 9, 2007
    • 04:12 PM
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  • I am a nurse--maybe you have gastric problems--I did i had reflux and a hiaital hernia,which caused my pulse to race and asthma like conditions--I take nexxium and apple cider vinegar(this saved me from the painful asthma like pain andpalpitations)u take 2 teaspoons before a meal and a cup of water-this works better for me than those other reflux pills !!! I also take asthma medication and with the help of a great allergist(I had seen a pulmonologist-he sucked)the symptoms r under control. U should prolly find a new pcp and start over--I have seen many doctros until i met this wonderful allergist who helped me more than any of them put together. Also,for the face flushes u could have an ovarian cyst or Perimenopause I have both even tho the tests for my hormones came back normal I started taking remifemin and i feel better! Good luck!!!
    Anonymous 42789 Replies
    • January 10, 2007
    • 03:40 AM
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  • i am so sorry you feel so bad.I am in the same boat.I have been sick for 13 years and i just found out i have a vitamin deficiency.and i cant take the supplement.Good luck hope you find out your problem
    Anonymous 42789 Replies
    • January 13, 2007
    • 09:45 PM
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  • I feel for you also. I started having symptoms after my 1st pregnancy and worse after my 2nd. Going to a rhuematologist is great. I found out that after having a child a womans chance of having an autoimmune disorder goes up significantly. Also through my own research on issues that I've had I found out that an elevated SED rate can be a sign of an autoimmune vascular disease. Try reasearching those with your symptoms. There's even an autoimmune vascular disease called POEMS syndrome that has vascular and endocrine symptoms. It's hard to find much info on it though. I think it's what I have.
    Anonymous 42789 Replies
    • January 16, 2007
    • 00:09 AM
    • 0
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  • Thanks for all of your replies. I went back to my PCP doctor feeling horrible that day. I had a fever of 100 and my bp was up a bit. He put me on a diuretic pill (which has sulfa in it); which I am allergic to; along with my beta blocker. And he also put me on Lexapro thinking I'm too anxious. I kept telling him that I'm anxious because of something going on inside, but he still gave them to me. Well...I had a reaction to both of the meds. The one of course because I'm allergic to and the other because I've become very sensitive to anti-depressants since I had my daughter. What is very strange about this is that I used to take Lexapro before the birth of my daughter just fine. The other meds I'm on are: Lopressor (my beta blocker); Topamax (for my headaches); and Zanax (as needed). I called him and told his nurse to give him the message and if he wanted to see me. They called back two days later and told me that I needed to take more zanax, that it sounded like I was going through withdrawal symptoms (I had started weaning myself from the zanax). He doesn't know what he is talking about. First he gives me a med. that I'm allergic to....and I know my body. But....I continued the zanax and the Lexapro and it was still horrible....so I called him back and told him that it was indeed the Lexapro. They never called me back. My husband found us a new PCP doctor that is supposed to be very good who specializes in internal medicine. We called and they were very concerned about the SED rate being so high and are getting me in on Tuesday. I'll keep in touch. I don't know if I should tell this doctor this entire story, or just let him start from scratch and go with it? What does anyone else think??P.S. My other PCP didn't tell me anything more than what I knew when I went in to see him. I asked for a referral to go and see a rheumatologist and that was two weeks ago. I call every other day to see if they have made the appointment and they tell me that I am on their "to do list." We def. need a change.
    Anonymous 42789 Replies
    • January 26, 2007
    • 01:26 PM
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  • Lexapro withdrawal (oops, the "medical" term used is "discontinuation syndrome" - what a joke) is one of the worst experiences imaginable. I have had several patients just stop taking it (doctors don't always inform their patients NOT to do this) and had SEVERE symptoms! It is a very dangerous drug. I hope your next doctor is more compassionate. And if he/she recommends a drug to you - please visit www.drugs.com and research before you take it. We all need to be informed consumers when it comes to our healthcare and what we put in our bodies. Western pharmaceuticals can be helpful, but they can also cause us a lot of harm - Be Informed! good luck!Doctor of Oriental Medicine
    acuann 3080 Replies
    • January 26, 2007
    • 04:11 PM
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  • hi there my name is Romona. The only thing i can tell you is to believe in GOD. You have to pray everyday which i am sure you haev but also you have to attend churches. It is very important. One of the member that attend my church had that same problem but now she is healed because she is a woman of god right now. I understand you think there is no hope but there is. Just have faith in god he will answer your prayer if you do the right thing.
    Anonymous 42789 Replies
    • February 5, 2007
    • 03:51 PM
    • 0
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  • I pray everyday. And I have been praying very hard these last couple of weeks and I think that God just might have answered my prayers. My husband decided that it was time to find us a new PCP so he called a new doctor and explained that I had an elevated SED Rate and they wanted to see me right away. (P.S. I have a great husband). I went up on Tuesday and he was so wonderful. He listened to all I had to say. Of course he didn't have all of my paperwork from my previous doctor, but he listened to all of my smyptoms and he actually said that he is not going to mess around with me...he is going to refer me to the Cleveland Clinic. My husband and I about fell to the floor. All of these doctors that I have been to for the past five years just looked at me and said, "there is something wrong, but we're not the doctor for you." But now someone was actually listening to me. This doctor said that he is almost 100 percent positive that I have an adrenaline disorder. He called it: Hyperbeta Adrenergic Syndrome. He told me to go home and look it up. Which I was suprised...most doctors tell you to stay away from the interent. He explained that he wanted me to be very informed of the disease. There isn't much information on it, but from what he told me, it sounds a lot like me. I am hypersensitive to my own adrenaline, even though my cortisol levels come back "normal". I explained to him that every morning I wake up feeling like I just drank 20 cups of coffee. My heart is racing, my face is hot, my hands and feet are cold, and I'm dizzy. Then I take my Lopressor (my beta blocker) and a xanax, and I calm down a bit. He used the analogy of horses in a stable. He said that from 2 a.m. until 10 a.m horses are very restless in their stable because their adrenaline and cortisol levels are very high, and then by afternoon and late evening, they lower. He said that my fight and flight response is being effected and my sympathetic and parasympathetic nervous system is being effected as well. He said that this syndrome will effect the brain (making me dizzy and feeling like I'm in a fog), effect my eyesight (my eyes get blurry), effect my heart (I have high blood pressure and a fast heart rate now), effect my kidneys (I have continuous UTI's and difficulty urinating), effect my lungs (I've developed asthma which I've never had before), and effect my bowels (I've had terrible constipation). He did not chalk it up as me being crazy or me being 'stressed'. He actually listened. One of the maine causes of this syndrome is guess what???? CHILDBIRTH!!!!! Go Figure. Either I've found a good doctor, or I've had a terrible one for five years. :)He explained that the best in the world for this syndrome is at the Cleveland Clinic and that is where he wants to send me. I cried all the way home. Five years I fooled around with a doctor who just medicated me to suffice me. Hopefully now...I've found the right path. I'll keep in touch.Thanks for listening.Danielle
    Anonymous 42789 Replies
    • February 7, 2007
    • 04:26 AM
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  • I visited the rheumotolgist today about my SED Rate and elevated C-Reactive Protein. He did almost an hours worth of clinical observation and had me do many strength/exercise tests. He checked my reflexes and had me do some stretches. That was pretty much it. Then he had me go back into his office for a consultation. He said that just by observing me, he felt that I did not have any rheumatoid disease or any other kind of Auto Immune Disease upon observation. He explained that with my symptoms going on for about five years now, that I would be showing some sort of muscle/bone loss and that I was very strong for my age of 31 years. After listing all of my symptoms for the "umpteenth" time to another doctor, he actually looked at me and said, "you are very sick, but I'm not the doctor who can fix you." How depressing is that??? I cried almost the whole way home.But he did concurr with my new PCP that I needed to go to the Cleveland Clinic. But his recommendation was to see a medical internist there that would point me in the right direction instead of seeing an actual specialist when I go there.So I go again and see my PCP on Tuesday of next week.
    Anonymous 42789 Replies
    • February 9, 2007
    • 10:33 PM
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  • I went to the Rheumatologist today and he did about an hours worth of clinical testing on me and had a very lenthy discussion of my symptoms. The only thing that my "old PCP" (who was the original referring physician) sent him was the blood work that showed that I had a SED Rate of 46. He had nothing to go on except my word and the SED Rate. My old PCP didn't even send down where it showed my elevated C-Reactive Protein. They told me that their office was very rude to them and said that I was no longer their patient and that "they" could not release any information. So I gave the Rheumatologist the number and name of my new PCP and they called them. And guess what??? It has been two weeks and they have been unsuccessful at getting my medical records as well. The secretary has made several attempts and gotten no response. Anyhow...I thought it was a law that they had so long to hand over your medical records. I'm not very happy with their office. :mad: So I'm not sure if this Rheumatologist had enough to go on or not. But he had me do a lot of different strength and muscle exercises and he also looked over me more than my husband has :D . Then we had a consultation in his office and he said that he saw no signs of any rheumatoid disease nor did he say any signs of any autoimmune disease such as Lupus, Lymes, etc. He actually concurred with my new PCP that I needed to go to the Cleveland Clinic, but see a medical internist when I first go there. He was sending my new PCP a letter recommending this. I go back to my PCP on Tuesday, Feb. 13, so I'll keep you in touch. I also go and see my cardiologist that day as well. I'm curious to see what he has to say about this "adrenaline syndrome."I'm getting worse too. The xanax isn't helping with my anxity "at all". I'm even taking more than I'm supposed to be taking. I can't even walk up my basement steps and it feels like my heart is at 180 bpm. I hate that feeling. And I love to walk on my treadmill, but I'm scared too. You would think the Lopressor would be taking control of that heart rate? I def. have something going on. The rheumatologist concurred with that as well. He actually looked at me and said, "You are very sick, but I am not the doctor for you." How depressing is that???:(
    dgreenlee11 2 Replies
    • February 11, 2007
    • 06:59 PM
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  • So sorry about all you are going thru...I am going on 2yrs with pain on my right side, that radiates to my back....Have been to my pc and have done 2 ultra sounds , blood work.....nothing shows......I am going soon for a Hida Scan....I hope it shows something b/c the pain is so bad. I have family that are Drs in different states and they have been telling me that i need my gall bladder out...hopefully it is that easy. These Drs make you think that you are crazy...and even had one tell me that there is pain that we sometimes don't know what or why we have it....ummmmmm ok do not see her now. She will get an ear full if it is my gall bladder. I too have had back pain, across shoulders and headaches and had esophogeal surgery for poor motility since my daughter was born 4 yrs ago...i relate to all of you and i hope we can all get on the right track soon....best of luck with everything
    Anonymous 42789 Replies
    • February 23, 2007
    • 06:55 PM
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  • I went back to my PCP and also went to my cardiologist. They are both in the process of getting the referral to Cleveland Clinic. My doc wants to run a lot of blood work once again as my new dr. wants to have his own lab results. I figure they'll take like 7 tubes for the amount of stuff he wants tested. I'm def. going to fast. My other doctor told me that it didn't matter with the thyroid or cortisol levels, but I've read other posts and websites that say it makes a difference. What's it going to hurt. My dr. is still leaning towards the adrenaline/nervous system disorder. He loaded me up on my xanax. He wants me to take four a day. Not on an as needed basis; but four a day. And he also consulted with my cardio. before my appointment and they increased my beta blocker at night before bedtime. My heart rate seems to be doing well. But I still feel like I'm pumped full of adrenaline and my face is still so hot. The only things I've noticed that trigger it are heat, stress, spicy foods, and caffeine. I go for an Echo this Thurs. My PCP wants my Cardio. to look at the right side of the heart. I'm not sure why. I had an Echo last year and everything was normal. My EKG this week was good as well. My Cardio. said that he wants to rule out something to do with Carcinoid. I don't know what that is. Any thoughts? P.S. You know what sucks about being pumped full of this adrenaline??? You would think I would be losing weight....but no.....I have to be hungry all the time....and so I eat. :mad: And in turn.....gain weight. :(
    dgreenlee11 2 Replies
    • February 27, 2007
    • 03:35 AM
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  • Please ask all of your doctors about the supplement called INTRAMAX. It is only sold to physicians and other practitioners. This is simply the best nutritional supplement ever made. Please visit www.druckerlabs.com for information you can print out to show your doctors. I have just recently found out about this and have been taking it. It is fantastic. It is expensive, but worth every penny in my opinion. I have a patient with Hep C, severe asthma, Chronic fatigue and fibro. She started taking it and two days later called me AT HOME and said " I just vacuumed my home! Do you know how long it's been since I've been able to do that?" It is worth considering that chronic disease may sometimes be due to severe nutritional deficiencies. Nobel laureate Linus Pauling thought this was true. Best wishes.DOM
    acuann 3080 Replies
    • February 27, 2007
    • 04:17 AM
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  • I understand exactly what you are going through. I have been miserable since the birth of my twins in June 06. I have had so many test done and they cannot figure out what is wrong with me. I have random drops and spikes in my blood pressure. My heart races, dizzy, light headed, passing out. They have found a tumor on my pituitary - but are not concerned. I have seen a endocrinologist and am getting ready to see a cardiologist. They think that my heart has to much "spark" in the electrical part. I am so tired of being tired and feeling horrible. Good luck to you and god bless.
    Anonymous 42789 Replies
    • February 27, 2007
    • 03:13 PM
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  • have you had hormone tests
    forgetlee 11 Replies
    • August 24, 2008
    • 02:43 AM
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  • im a 37 yr old male with symptoms of ra. i was at my rhuematolagist awile back and there 23 year old female wandering what was wrong with her she said alls she did was have a baby.i talked with her as i am sick all the time joint pain etc as a result of a hernia repair,i told her trauma seems to open a can of worms sometimes and im still myself looking for answers.
    Anonymous 42789 Replies
    • September 3, 2008
    • 02:57 PM
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  • I'm sorry if this story will sound so long, but my life after my daughter has been such a long and miserable one. I've been to so many doctors and have had so many tests done, that I am absolutely sick of being sick.First, when I had her via C-Section, they had difficulty placing the Spinal and ended up doing an Epidural. It took one whole hour to place this in my back. After the birth, my husband counted 50 holes in my back where they had tried to put the Spinal/Epidural. Not shortly after (about a week), I started to feel really strange. My face kept getting real hot, my heart was racing and my back in my upper shoulder blades started to ache. I went back to my OB/GYN and asked him to run some hormone tests, which all came back normal. He said that it could be my blood pressure. For some reason, it had gone up after the birth of my daughter. So he put me on a blood pressure pill. And so the pills began........ And so didn't the trips to my Primary Care Doctor. And from there....to Specialists who tell me that something is def. wrong, but that they are not the doctor for me. My PCP first went in the direction of my 'female' hormones because it happened right after the birth of my daughter. He sent me to another Gyno. and had testing done, but nothing showed. That was when the antidepressants were given to me. Yuck! Then my PCP went in the direction that "maybe" something happened when the Spinal/Epidural was trying to be given to me. He then sent me to a neurologist. There I had an MRI of my back and blood work. MRI showed mild arthritis (normal for my age) and blood work showed that my calcium was high (Hypercalimia). My PCP sent me to an Endocrynologist who tested my Calcium levels again and everything was normal. Also had a bone scan which was normal. Had a lot of chest pain and right sided abdominal pain during all of this. I kept telling my PCP that it was my gallbladder so he sent me for an ultrasound....normal. Sent me for a Hydascan...normal. Had a horrible gall bladder attack after eating a fish sandwhich and ended up in the ER talking to a surgeon. He did what they called the "gall bladder technique" where he shoved his hands up under my right lower rib cage. I about hit him. He said he def. wanted to go in with exploratory and look around. I had surgery the next day and sure enough...."I was right". He said it was the worst looking gall bladder he had ever seen. The chest pain and right sided pain vanished. But I still felt yucky. My heart raced; I was very sensitive to heat; my face would get hot and then go back to normal; I was gittery; real nervous; and agitated; forgetful; I was constipated; low grade fever; flu-like symptoms; my back ached; my headaches became daily. My PCP tested my Thyroid levels again and again. He kept telling me I was a textbook for hyperthyroid. My levels kept coming back .1 away from being hyperthyroid. Also had an ultrasound done of my thyroid which showed a nodule about 1 cm. We thought we had hit the jackpot...Hot nodule producing too much hormone. But a Thyroid Uptake Scan showed it to be a cold nodule producing nothing. This Uptake came back at 29%. 30% is diagnosed as hyperthyroid. My PCP also sent me to have allergy testing done. I have difficulty breathing and my heart races very easily; even resting. He thought maybe I was allergic to something. Everything came back normal. I flunked my Pulmonary Testing, and diagnosed with mild asthma. I was given an inhaler (which I dont' think helps anything). My PCP also sent me to a Cardiologist for my rapid heart rate. I had a Stress test (fine); wore a heart monitor (just showed a rapid heart rate); had EKG's which were fine; had an Echo done to test for leakage of the valve (my dad has this)...mine was a tiny bit but nothing to cause these symptoms. The cardiologist told me that he felt that in his opinion with my rapid heart rate and the other symptoms that it was hypyerthyroidism. He put me on Lopressor to slow my heart rate down. It has helped. Went back to my PCP and told him what the heart dr. said about the hyper. and so he sent me to another ENDO. This dr. tested other things as well as my throid hormones. He believed that it was adrenaline related. He tested my adrenal glands and my corisol levels. Everything was normal. Including my thyroid levels. So my PCP sent me away from this area to a University Hospital to see another ENDO for a third opinion. This guy seemed very convinced just by examining me that it was hyperthyroidism. My reflexes were very exaggerated. Bad hand tremor. But when my blood levels came back in the "normal range" he sent me away. After this visit, my low grade fever became a little higher. The nurse at work kept track of it. It ran daily around 100 to 102. They also called from the University Hospital and explained that something did show abnormal on my blood work but had nothing to do with them. For the first time ever, a SED Rate was ran and it came back as 32. I called my PCP but he seemed to blow me off. I think that he was actually getting sick of me at this point. I called a friend who was a nurse of the surgeon who took my gall bladder out and she said that if it was her, she would go to an Infectious Disease Dr. So there I went. He looked at my blood work and he said I looked very healthy. Except for the SED Rate...which meant really nothing to him. Upon examination, he pushed in on my right side, which hurt terribly. He asked me how long it had been hurting and I said for a few years, but that I had just chalked it up to being constipated. He said that in his opinion I had Chronic Appendicitis. I called the surgeon's nurse and she made an appointment for me to see the surgeon. He said that it was very unlikely that I had Chronic Appendicitis because if it was, it would have burst by now, but that if I agreed, he would go in and take a look around. I had surgery the next day....and guess what? I was almost on the right track. I had two appendix. Only 2% of the population has this. It is a birth defect where the imbilical cord from my mother to me should have dissolved, but instead, it formed another appendix behind my "good" appendix. So when I would have a belly CT, they would see my "good" appendix and send me on my merry way. The surgeon sent me on my way and said that he was almost 99% sure that this was my entire problem and that he didn't want to even test my blood for two months. He wanted to wait for the poison to get out of my system. It has been 3 1/2 months and I just had my levels tested again. MY SED Rate was 46. So what the heck is going on??? I dont' feel better. The only thing that is gone are the fevers and my right side does not hurt anymore. I still think it has something to do with my thyroid. My heart is still racing; I'm nervous even with zanax and Lopressor. Oh....and the constipation is totally gone. The surgeon says that the second appendix was blocking my bowels which was causing the constipation. Now all I have is diaherraha. Another symptom of Hyperthyroid. I'm not sure that I should push this thyroid issue anymore or not. I know it is so hard to diagnose. But I have been right two times in my life now about what was wrong with me. Even when the tests said otherwise. And I am so sick and depressed of feeling like this. I've been finding myself crying all the time now. And all these doctors want to do is give me another pill to try to "fix" or "mask" a symptom I have. I don't want to do that. I feel that something is "causing" me to feel the way I am. I don't want another pill. I want to know what is wrong. Is that so much to ask. Obviously a SED RAte of 46 is showing something is going on. My PCP Dr. wants to send me to a Rhematoidologist next. But he did a general panel and all my RH and ANA was normal. I'm so lost and dont' know what to do. I know that this is so long and if you have taken the time to read the entire thing, could you please respond. Or even email me at dgreenlee11@sbcglobal.net. I am desperate and slowly sinking into this depressive state that I am very scared of. Thank you. DanielleDanielle---my heart goes out to you!! Hang in there sweetie!! My recommendation to you is to seek some natural remedies. My brother is a DR and I LOVE him to death.....but I would still recommend you search the natural route. I had gallbladder prob's when my fourth child was four months old. It was horrendous. I should have gone to the Dr but instead I read PRESCRIPTIONS for NATURAL HEALING. I ONLY used recommendations or foods/herbs I KNEW to be safe(BE VERY CAUTIOUS HERE)--but it helped me tremendously!! I know I still need my gallbladder out. My daughter is now four but I watch the fatty foods, changed my diet but did some emergency measures--a cleansing with olive oil (1 tablespoon YUCK!) in apple cider and apple cider in apple juice to ease the symptoms.....which it did. I take supplements it recommended of things I consider normal==like garlic tablets.....and steered clear to a certain degree from the bad stuff. I had gallbladder attacks-its a wonder it was okay--knock on wood!! But, I would recommend that and looking into natural meds through talking to people at nat foods stores. I had a friend who went to one and the guy "read her eyes" and could tell that she had a problem with her liver. She had to drastically change her diet (normal, just better, and she did not eat that badly.....before)....and it helped her quite a bit.Hope this is helpful to you.Good luck to you.
    Anonymous 42789 Replies
    • September 15, 2008
    • 06:01 AM
    • 0
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