Discussions By Condition: Medical Errors

Misdiagnosed with MDR TB

Posted In: Medical Errors 0 Replies
  • Posted By: kansasii
  • November 18, 2008
  • 04:37 PM

A year and a half ago I was diagnosed with a lung infection called mycobaterium kansasii. I was on a terrible drug regime for more than a year at which time I was to have a sputum test to see if I was clear. For the entire year all the signs, including xray, ct scans, blood tests, said I was well. So I was looking forward to the test, to get off the drugs. The test came back and I was informed that I had multiple drug resistant tuberculosis - terrifying news. I was subsequently put in isolation and put on an even worse drug regime that left me unconscious for much of the day and vomiting for the rest. The doctors also wanted to perform surgery, to remove part of my lung. I refused that wanting to wait as I had no clinical symptoms whatsoever. The rules required that I was isolated and that more sputum tests were done. We did five tests to be absolutely sure, and numerous ct scans and xrays to see if there was disease. After 6 heart wrenching weeks in isolation and terrible pain caused by the medication I was told everything was clear that I had no disease at all. It came out that the initial test was done using some kind of DNA sampling which has a relatively high false positive rate. They were supposed to culture the sample, but for some reason didn't. It was a traumatic experience and I am still getting over the medication they gave me. I am finding it very hard to move on from this experience. Take care if you ever do a sputum test. Don't use a DNA test but insist on a culture sample.

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