Discussions By Condition: Medical Errors

Misdiagnosed with diabetes twice

Posted In: Medical Errors 12 Replies
  • Posted By: Anonymous
  • September 28, 2006
  • 02:21 AM

I was misdiagnosed twice with my diabetes. First, by an eye specialist, second by a general practioner.

The first symptom for which I sought treatment was waking up one morning and literally not being able to see. I had a massive change in my vision, like I was suddenly short-sighted. So I thought it was allergies or something, so I went to see an eye doctor (an opthamologist), they did an eye test, proclaimed that I had 20-20 vision, and sent me home with eye drops for allergies. With hindsight, I think they thought I was lying in order to get sick days off work. How their eye test went so wrong I have no idea. Unless I somehow fluked the correct letters through my blurred squinting vision. But they seemed skeptical of my story even before the test.

So the eye problems came and went, thinking it was allergies, but really going up and down with my sugars.

Eventually I saw a GP, and was diagnosed with diabetes. Type 2 diabetes, because I was about 30, so it couldn't be juvenile. I was sent home with diet instructions to avoid sugar (but carbs were ok!) and to check my sugars. I still had high sugars (surprise), and I had symptoms like nausea, so I was probably close to DKA.

A week later I finally saw an endocrinologist and was finally correctly diagnosed with Type 1 diabetes, given insulin, etc. He said I was days away from ending up in the ICU.

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12 Replies:

  • First off i'm glad you were diagnoised correctlly, and second what were your bs levels when and after you were diagnoised.
    Anonymous 42789 Replies
    • October 31, 2006
    • 02:46 AM
    • 0
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  • I know how you feel, I'm 21 years old and the doctor I am currently seeing has diagnosed me with diabetes, not caring to determine a type he has put me on type 2 meds, of course I still continue to have nauseas every single day, stomach pains, weight loss ... sometimes I can barely keep my food down, he still hasn't put me on a diet , he's seen I've had levels over 400 and still doesnt seem to care. I feel like a lab rat. I'm hoping to go see a specialist soon though.Type 1 can happen at any age, especially on people under 35-40, so you're still within range.
    the_one 39 Replies
    • November 8, 2006
    • 04:18 PM
    • 0
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  • It was the opposite for me. I had sustained a concussion and was sent to the hospital after a few days of numb limbs and vomiting. Without checking my concussion, I was only given a urine test and they diagnosed me with Type 1 Diabetes. I was sent home on insulin. After a horrible, drunken feeling two months of being told "Oh, you'll get used to the medication, it just takes time." I finally told my doctor that if until she ran another test not another drop of insulin will enter my body. The test came back inconclusive, and I haven't been on insulin since. I have been off for a year and a half and am, obviously, still breathing. I feel what you've gone through and are currently going through, and am definitely more aware of how idiotic doctors can be. Take care!
    Anonymous 42789 Replies
    • October 14, 2008
    • 00:19 AM
    • 0
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  • Never never trust doctors always double check and triple check with others. Also use the best doctor of all--the internet and check your symptoms.Doctors only want to make money.
    Anonymous 42789 Replies
    • November 5, 2008
    • 09:48 PM
    • 0
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  • It was the opposite for me. I had sustained a concussion and was sent to the hospital after a few days of numb limbs and vomiting. Without checking my concussion, I was only given a urine test and they diagnosed me with Type 1 Diabetes. I was sent home on insulin. After a horrible, drunken feeling two months of being told "Oh, you'll get used to the medication, it just takes time." I finally told my doctor that if until she ran another test not another drop of insulin will enter my body. The test came back inconclusive, and I haven't been on insulin since. I have been off for a year and a half and am, obviously, still breathing. I feel what you've gone through and are currently going through, and am definitely more aware of how idiotic doctors can be. Take care!I'm guessing they found ketones in your urine, which could indicate T1D or can also occur naturally from vomiting for several days!Even if you'd really had T1D, what you describe is malpractice to the extreme - your doctor could have killed you. Particularly troubling is you having to insist on another test before taking another drop of insulin. Standard protocol for T1D (at least in the 21st century; how old is your doctor?) involves testing blood glucose levels multiple times per day, and in particular, always testing before taking insulin. Seriously, you should report the hospital and your doctor, because if this is how they diagnose and treat diabetes, they're going to kill someone.
    viscero 1 Replies
    • November 16, 2008
    • 05:23 PM
    • 0
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  • i was diagnosed as type 2 while in the emergency room 3 years ago, i was 24, slightly over weight and i am african american. The doctor told me i had type 2 but was always going to be on insilin. I didnt feel like she gave enough information on why she came up with that conclusion so after 3days in the hospital i went to get a 2nd opinon. That doc gave me the actual test, she then agreed i had type 2 and i must have got it from my family, although no one has it. then she said it must be weight related. so i went on a diet, and she put me on pills and only taking insilin once a day. my insurance changed so i had to get a new doc she started out by switchin my pills without any real reason, she also put me on a no carb diet, i mean no carbs....that was a true testiment to strenghth. i was smelling bread in target as i was walking by the isle and they do not have a bakery. keep in mind my sugar levels were always out of control but she kept saying it was something i was doing. i lost over 40 pounds and having so many other small complications....needless to say i ended up going DKA, my kidneys shut down i was in the ICU for 3 days!!!...i needed 3 shots of morphine i was in so much pain, i was dying fast...i now see a endrocrinologist who said that she thinks i was type 1, she looked at my medical records and the hospital where i was in the ICU put i was type 1 as well. no one told me, they knew i was taking pills and the doc there advised me to keep doing what i was doing.....but as u know pills do nothing for type 1....doctors practice medicine, they are never sure but talk as if they do.....
    Anonymous 42789 Replies
    • August 22, 2009
    • 01:46 AM
    • 0
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  • Just remember this: You can't be diagnosed with diabetes without an A1-C test. I went to the VA because I kept getting fevers that wouldn't go away. I had a stupid India-transplant "doctor" diagnose me with diabetes without any tests and gave me pills. Good thing I made inquiries and didn't take the pills. Turns out that I was having an anemic reaction because I have G6PD deficiency and it was triggered by having a wisdom tooth pulled (don't ask me how). Oh, and my A1-C test came up normal. I asked the doctor who did the test (American-born) if G6PD deficiency could have an effect, and that was the big "AHA!" for him. And that information is on the first page of my medical file. And that idiot from India kept wanting me to take tests. He couldn't accept that he was wrong!
    Anonymous 42789 Replies Flag this Response
  • more importantly - every single one of you should have a c-peptide test. check out this site;http://www.diabetescasestudy.com/home.html
    Anonymous 42789 Replies Flag this Response
  • I know how you feel, I'm 21 years old and the doctor I am currently seeing has diagnosed me with diabetes, not caring to determine a type he has put me on type 2 meds, of course I still continue to have nauseas every single day, stomach pains, weight loss ... sometimes I can barely keep my food down, he still hasn't put me on a diet , he's seen I've had levels over 400 and still doesnt seem to care. I feel like a lab rat. I'm hoping to go see a specialist soon though.Type 1 can happen at any age, especially on people under 35-40, so you're still within range.AARGH! If you're losing weight, can't keep food down, AND you have stomach pains, you're probably IN, or at least CLOSE, to DKA! Go see another doc, rather, an endo, NOW! Before you end up in ICU, yourself.. Or worse.. ! I'm sorry if that scares you (I failed to look at the date this was posted, sorry. By now, I hope you've gotten a few vials of insulin and the correct dosage!) but I've been a type 1 for 14 years - since I was 16 (haha.. "sweet" 16, right? Bad joke... :P ) and have been in DKA and close to death way too many times. The doc's even told my parents to call a priest once :/ Oh dear. I hope you're OK. I can't believe that, with the technology and knowledge available today, doctors STILL misdiagnose their patients. And don't get me started on Type 2's and how they always want to compare themselves to Type 1's.... It makes me want to wretch! >:O
    Anonymous 42789 Replies
    • September 27, 2010
    • 01:19 PM
    • 0
    Flag this Response
  • Just remember this: You can't be diagnosed with diabetes without an A1-C test. I went to the VA because I kept getting fevers that wouldn't go away. I had a stupid India-transplant "doctor" diagnose me with diabetes without any tests and gave me pills. Good thing I made inquiries and didn't take the pills. Turns out that I was having an anemic reaction because I have G6PD deficiency and it was triggered by having a wisdom tooth pulled (don't ask me how). Oh, and my A1-C test came up normal. I asked the doctor who did the test (American-born) if G6PD deficiency could have an effect, and that was the big "AHA!" for him. And that information is on the first page of my medical file. And that idiot from India kept wanting me to take tests. He couldn't accept that he was wrong!That is NOT true! A1C is NOT the diagnostic test for diabetes. It does correlate with sugar levels in the blood over time. However, the diagnostic tests for DM are blood glucose studies. If there is uncertainty as to the type, insulin and c-peptide levels can be checked. A1c is ONLY for long term management issues.Also I know a lot of Ameriacn idiots and a lot of foreign-born Oslers. It really depends on the individual. As to the G6PD deficiency after having a wisdom tooth pulled, it was probably the anesthetic used during the procedure that forced the condition to light. Be glad you have a real diagnosis and thank the doc who was so on top of things.
    Anonymous 42789 Replies
    • October 23, 2010
    • 04:00 AM
    • 0
    Flag this Response
  • It was the opposite for me. I had sustained a concussion and was sent to the hospital after a few days of numb limbs and vomiting. Without checking my concussion, I was only given a urine test and they diagnosed me with Type 1 Diabetes. I was sent home on insulin. After a horrible, drunken feeling two months of being told "Oh, you'll get used to the medication, it just takes time." I finally told my doctor that if until she ran another test not another drop of insulin will enter my body. The test came back inconclusive, and I haven't been on insulin since. I have been off for a year and a half and am, obviously, still breathing. I feel what you've gone through and are currently going through, and am definitely more aware of how idiotic doctors can be. Take care!I am the same way. I am 18, diagnosed with Type 1 Diabetes at age 17 in Febuary 2010, and it is now December 2010. I used insulin until the end of May and then I noticed my blood sugar going low a lot. I assumed it was the honeymoon phase and was able to control my glucose levels through diet. It now seems that my honeymoon phase is over, yet I am still able to control my glucose levels through diet alone. Of course this baffled my doctors when I told them I hadn't taken insulin in 5 months and my a1c came back 5.1. I'm seeing an endocrinologist soon to see if I should be on some oral medication or something and to see if I need a different diagnosis. The insulin life is manageable, but lets be honest...it sucks compared to controlling blood glucose levels through diet. My levels will still rise if I eat too many carbs, but the easy solution to that is: DON'T EAT TOO MANY CARBS. I find I am okay if I stay under 40 grams of carbs per meal, and space out my eating times so my glucose levels have time to drop. Hydration and exercise is also important in maintaining glucose levels. If anyone has a similar story please let me know, as I am interested in alternative ways of management (anything but insulin injections). Thanks!
    Anonymous 42789 Replies
    • December 14, 2010
    • 09:55 PM
    • 0
    Flag this Response
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  • How are you doing now? We are curious because our son was diagnosed with Type 1 last week and he is 8. He is still not on insulin and his numbers are normal now that I changed his diet to a low-carb diet. Did you ever develop Type 1? Any suggestions for us?
    Anonymous 42789 Replies Flag this Response
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