Discussions By Condition: Medical Errors

Misdiagnosed Hypothyroid

Posted In: Medical Errors 9 Replies
  • Posted By: Anonymous
  • November 10, 2006
  • 00:28 PM

I'm a 45 yr old female. For years I was told I was depressed, but had all the symptoms of hypothyroidism. Every doctor told me I was normal in thyroid levels. Several put me on anti-depressents. Well, I got so sick, I thought if I would die at least I would find some relief. Some of my symptoms included: fast weight gain (went from an 8 to a 12 fast), headaches (daily), brain fog, inability to concentrate, overall unwell feeling, weakness, extreme fatique, inability to maintain an exercise program. I finally found a dr who put me on thyroid med. Then I faced a bout of extreme anemia due to heavy periods. I was almost at the transfusion point. I took iron to get back on track. I have been better, but here it is Years later I'm still weak, facing fatique, unable to maintain an exercise program, still have trouble concentrating and am a size 16. Doctors again said I was depressed (yet again) and put me on meds. Needless to say they do not work. I did go to a psyc and he said (after 6 visits) you're not depressed, but you are feeling depression around energy levels and inability to meet your goals.
I'm at a loss. Doctors are not helpful. I'm going for a neurological test later this month.. Any other suggestions... thanks.

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9 Replies:

  • Allergy serum blood panel, endoscopy (looking for intestinal damage). I'm no doctor, but I know what an undiagnosed food allergy/intolerence does to you and you just described it perfectly. (The weight gain could be caused by the body's inability to absorb nutrients. This leads the mind to believe that it is facing a period of famine and potential starvation so its stores as much fat as it possibly can. Ironic in a way, because the body is literally starving while you gain weight. Doctors tend to not understand this hypocrisy of the body and generally only look for food allergies and intolerences in underweight people; the latest reports however, suggest overweight people are more at risk - and the rapid weight gain is starting to be recognized as a dead give-away)
    Azaral 152 Replies
    • November 10, 2006
    • 10:06 PM
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  • My daughter felt sick for years and it got much worse after she went to college. I had taken her to Drs. for years. In a last ditch effort to find out what was wrong with her we took her to Mayo Clinic knowing our insurance would not cover the expenses. We left Mayo Clinic with no diagnosis and the dissapointing recommendation that my daughter should take a fiber product, antidepressents and see a psychiatrist. After all the years of feeling sick and told her sysmptoms could be in her head, she was very depressed and feeling increasingly worse physically month by month. She is also overweight, which I think makes a huge difference in how Drs. view a patient. VERY LONG STORY cut short, she cut any product with gluten out of her diet, expecting NOTHING and certainly not the results she got immediately. Within days she felt better than she could remember feeling in years with the multitude of symptoms completely dissappearing. She went from no quality of life, to having a full active life having enough energy to go to school, work full time and have a social life, none of which she could do before. Many Drs. will want you to go through the testing, others say go gluten free diet and see what happens. In all my research it sounds that even with testing celiac disease can be missed and it takes on average 15 years to get an accurate diagnosis. It would sure be worth a try, educate yourself on what does and does not have gluten because it is in everything from food to drugs to personal care products. It is confusing at first but very doable especially if you feel better. Don't let any Dr. tell you that because you are overweight you can't have celiac disease because they are now finding the typical old clinical picture of someone wasting away is not the norm, and more people with the problem are actually overweight not underweight. My daughters health has improved 100% and she has been gluten free for a year now. The results of a gluten free diet were nothing less than a miracle for her. Good luck.
    Anonymous 42789 Replies
    • December 1, 2006
    • 03:22 PM
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  • Why hello there, I'm enjoying some nice gluten-free rice & tapioca cookies right now. They taste so good I almost forget they aren't made from wheat. Well, until I think of the price I paid :) I am glad to hear about your daughter. Has anyone else in the family been tested or tried a gluten free diet? The condition is hereditary and there's a high rate of risk among close relatives. The tests are pretty restrictive, and some people who don't qualify for an official diagnosis can still benefit from a much improved quality of life with dietary therapy. To the OP: Gluten isn't the only suspect. I've heard that soy, corn, and milk intolerences can cause similar symptoms!
    Azaral 152 Replies
    • December 1, 2006
    • 05:35 PM
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  • To the original poster: Do you have copies of any of your thyroid tests? If not, get your thyroid levels retested, and then request a copy of the lab's results (if you're in the US, you have a legal right to copies of all your medical records). A huge percentage of doctors aren't up on the most recent thyroid literature, and so routinely dismiss hypothyroid TSH levels as "normal". The American Association of Clinical Endocrinologists (AACE, www.aace.com ) has recommended that "normal" TSH ranges be narrowed to 0.3 - 3.0, but most labs still have the upper limit at 5.0. A good endocrinologist will diagnose and treat you for hypothyroid if your TSH is 3.1, but the vast majority (I would guess about 95% of doctors who order thyroid tests) will see "normal" printed on the lab results, and immediately dismiss it, whether it's 3.1 or 4.9. Once you get ahold of your thyroid test results and if your TSH is above 3.0, you should be able to take those test results and literature from the AACE to a good endocrinologist for diagnosis and treatment. Don't give up on the hypothyroid hypothesis until you have your test results in your own hands. ~Ryot
    Anonymous 42789 Replies
    • December 2, 2006
    • 02:29 AM
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  • I would seek another doctor. Maybe a nateropathic doctor. Adrenal fatigue also carries a lot of the same symptoms as thyroid disease, and so can celiac disease. Find another doctor and get some better testing. General doctors are arogant and will often just "slap a bandaid" over you and call it good without really looking for the root cause.
    Anonymous 42789 Replies Flag this Response
  • I just spent several months getting test after test and even a stay in the hospital only for an Endocrinologist to tell me everything is normal. When I looked at my labs I saw several hormones were too low to be even be tested, but were ignored by the endocrinologist. I then found an OBGYN who does saliva testing of hormone levels for much more. He just diagnosed me with adrenal failure and a Vitamin D deficiency. That was a shock because I live in South Texas, get plenty of sun and am light skinned. My suggestion is to look for an OBGYN who treats using bioidentical hormones. He/she may be able to help you. A compounding pharmacy may know of such a doctor in your area.
    halal37 96 Replies Flag this Response
  • You should read a book called "Hypothyroidism type 2" by Dr. Mark Starr. He talks about people that have normal thyroid blood tests, but clinically present with all the symptoms. Celiac Disease is often associated with hypothyroidism. In going forward, both you and your daughter would benefit from this as it is an inherited condition passed on from mother to children unless properly treated prior to pregnancy. Find yourself a good thyroid doctor from the internet who believes in natural dessicated thyroid and treats adrenals as well. Good luck.
    Anonymous 42789 Replies Flag this Response
  • I can understand how you feel. I am fighting right now to force my doctors to listen to me. I have been diagnoised with Lupus, Fibromyalgia, Depression, Panic Stress Disorder, you name it. I have seen an Endocrinologist and his only response was I need to watch my diet and my Vitamin D levels were too low. It is so annoying when you are simply dismissed as a nut case. I have a doctor's appointment tomorrow with a new doctor, I can only hope someone will listen to me. I am going armed with everything I know, I have read and can print. I wish you luck.I'm a 45 yr old female. For years I was told I was depressed, but had all the symptoms of hypothyroidism. Every doctor told me I was normal in thyroid levels. Several put me on anti-depressents. Well, I got so sick, I thought if I would die at least I would find some relief. Some of my symptoms included: fast weight gain (went from an 8 to a 12 fast), headaches (daily), brain fog, inability to concentrate, overall unwell feeling, weakness, extreme fatique, inability to maintain an exercise program. I finally found a dr who put me on thyroid med. Then I faced a bout of extreme anemia due to heavy periods. I was almost at the transfusion point. I took iron to get back on track. I have been better, but here it is Years later I'm still weak, facing fatique, unable to maintain an exercise program, still have trouble concentrating and am a size 16. Doctors again said I was depressed (yet again) and put me on meds. Needless to say they do not work. I did go to a psyc and he said (after 6 visits) you're not depressed, but you are feeling depression around energy levels and inability to meet your goals.I'm at a loss. Doctors are not helpful. I'm going for a neurological test later this month.. Any other suggestions... thanks.
    Anonymous 42789 Replies
    • December 28, 2009
    • 07:47 PM
    • 0
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  • I'm a 45 yr old female. For years I was told I was depressed, but had all the symptoms of hypothyroidism. Every doctor told me I was normal in thyroid levels. Several put me on anti-depressents. Well, I got so sick, I thought if I would die at least I would find some relief. Some of my symptoms included: fast weight gain (went from an 8 to a 12 fast), headaches (daily), brain fog, inability to concentrate, overall unwell feeling, weakness, extreme fatique, inability to maintain an exercise program. I finally found a dr who put me on thyroid med. Then I faced a bout of extreme anemia due to heavy periods. I was almost at the transfusion point. I took iron to get back on track. I have been better, but here it is Years later I'm still weak, facing fatique, unable to maintain an exercise program, still have trouble concentrating and am a size 16. Doctors again said I was depressed (yet again) and put me on meds. Needless to say they do not work. I did go to a psyc and he said (after 6 visits) you're not depressed, but you are feeling depression around energy levels and inability to meet your goals.I'm at a loss. Doctors are not helpful. I'm going for a neurological test later this month.. Any other suggestions... thanks.Well, i found i was hypothyroid because i couldn't concieve...3rd child came along and the doctors said my thyroid levels were fine. i had one more child after her. I was having trouble losing weight, dry skin, and being cold and kept asking the doctors to check my thyroid levels (as i was told i would have to be on meds for the rest of my life). i asked 3 different times, and they all came back "normal". 4 years after my last child, we wanted another baby, and months of trying unsuccessful. i pulled out an old phamplet i received when first diagnosed, and read through it...all these years i SHOULD have been asking for a FULL PANEL THYROID TEST. i am so greatful that i found that phamplet, we are expecting in september
    Anonymous 42789 Replies
    • February 1, 2010
    • 00:33 AM
    • 0
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