Discussions By Condition: Medical Errors

Misdiagnosed and still waiting for answers...

Posted In: Medical Errors 5 Replies
  • Posted By: Anonymous
  • January 23, 2007
  • 10:26 PM

I've had abdominal pain that has progressively gotten worse for over a year. It would come suddenly, at first once a month, then once a week, and be more a nuisance than anything. Then I started regurgitating whenever I was stressed or walking for a long period of time. About 8 months ago, the pain worsened and more symptoms appeared. Ontop of abdominal pain, I suffer from back pain, tenderness of the stomach, back and sides, nausea, vomiting, stool variations from pale and fatty to diarrhea to hard and dark, occasional blood in stool and water(bright red), occasional blood in vomit(bright red or black), irritability, globus sensation(the feeling of a lump in my throat that cannot be cleared), difficulty passing gas, heartburn and weight loss, as well as recently a tightness/pain in my chest(not heartburn) that makes it hard to breathe, as well as dizzy spells. Stress makes me flare up as well. At that time my pain was worse in the mornings and late at night. When I first went to the ER 8 months ago suffering from constant abdominal pain at 2am, they first believed I had appendicitis. The doctor sent me home saying to get some rest, and booked me for an ultrasound. A few days later the pain was more intense, so I returned to the ER and saw a different doctor, who couldn't believe the first doctor had said it was my appendix when I'd had this pain for over a year. He took blood tests and sent me home. I went to see my family doctor as soon as I could, and found out they had lost my ultrasound results. I was booked for more tests, a gallium scan and a celiac screening. I found out I was anemic, and eventually that I had tested positive for celiac disease, which is an autoimmune disease and a digestive disorder that means I'm gluten-intolerant. My doctor booked me an appointment with a gastroenterologist, but I'd have to wait about 8 months so see him. I went on the gluten-free diet, but my pain was still there. When my doctor found out that I had dropped from about 145 to 105, he contacted the gastroenterologist, who told him that I was to go back on a regular diet. This was rather shocking. I'm a 17 year old, living on my own with my boyfriend. Gluten is found in anything with wheat, rye, and barley, and also used as a preservant. I had to read the ingredients of everything I bought and get used to not eating what everyone around me was eating. Finding out that I might not have celiac disease turned my world upside-down, AGAIN. There's also the fact that the celiac screening costs $125 and isn't covered by any insurance. Surprisingly when I ate gluten, I felt better. I wasn't sure if it was because whatever I have 'flares up', but gluten didn't seem to be the problem. The gastroenterologist had me come in for a gastroscopy. I called my doctor's office for 4 days in a row and got the machine, and they'd never called back. Annoyed with their disorganized system, I found out the gastroenterologist's number, called and found out that I have a sliding hiatus hernia. When I went to see my doctor he said that I also have barrett esophagus, which basically meant that my esophagus was very burnt and scarred from the stomach acid when vomiting. He gave me Nexium 40 and apo-domperidone to help with the pain, nausea and vomiting. The latter worked for a bit, then didn't make any difference. The Nexium also didn't seem to be making any difference. I finally got in to see the gastroenterologist, told him my old and newer symptoms, and he believes I have something else going on. After finding out that my Uncle has chron's disease, he booked me for a colonoscopy. I myself doubt that it's chron's, for I don't feel the symptoms really match up. He gave me some antispasmodics, seeing as I can't take actual painkillers for fear of worsening the hernia. They're slightly more effective, but still don't offer much relief. I hate the fact that I have to go for a colonoscopy, it's rather embarassing and just not a process I'm comfortable with. I also hate that my doctors have taken so long to do testing and find anything out. I last weighed in at 102 pounds, and look really skinny and sickly. I've missed my period, which is a first. I've had to drop out of school for this year, and recently had to go on sick leave from work. I've been in too much pain to work for a long time, but kept going just on willpower. Now I'm out of that, I am in nearly constant pain, I have no energy to go on like this. I just want answers, and to go on with my life. Whatever I have is messing up my education's future, and making it harder to pay bills. I feel alone in this, and I can't go anywhere. I spend my days on the couch watching tv or surfing the 'net for answers, which isn't as fun as it sounds. I feel like a failure, can hardly do chores, and suffer from depression and anxiety, not at all helped by all this.

If anyone has a similar story, or knows anything helpful, please reply or feel free to email me at clumsy_every1sajunkie@hotmail.com. Thanks.

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5 Replies:

  • hey sounds like me but 8 yrs later were now working on diagnosing me with endometriosis but i also have that same hernia same syptoms and have had lots of colonoscopies ,have them sedate you and research this endometriosis you never know . but i know what ur going through i left school as a straight a student and was also on my own the best advice i can give is dont let it consume you 24/7 no matter what find a ritual of relaxation its helped me for 8 yrs its very important to find time to be with urself,for example my best way of coping with the painful reality is candlelit,music bath time i really wish i had something else better to say but if u want u can also email me bridgetrkimball@yahoo.com
    renee19 1 Replies
    • January 24, 2007
    • 00:22 AM
    • 0
    Flag this Response
  • Thanks. I have had menstrual symptoms; late/skipped periods, which is rare for me, and they've been lighter and lasted 3-4 days rather than my usual 5-6 days. Also experiencing pain/discomfort during intercourse.
    Anonymous 42,789 Replies
    • January 29, 2007
    • 06:55 AM
    • 0
    Flag this Response
  • Hi from the symptoms your having sounds like endometriosis. i have been recently dignosed with it and u sound like what im going through. sadly the only dignosis is a laproscopic, they say its a small op but no it hurts like ***l for about two weeks after. my pain has got worse after the op but im still glad i got it done cause endometriosis can make u infertile so i know now i have few years left that i have a chance to have kids cause if i never knew i would have waited too long to have kids. the best cure is to get pregnant cos it can stop the endometriosis growth for up to ten years.i havent started any treatments yet as the 3 offers i was given were a joke. i researched them and talked to other sufferers and they all seemed to give bad side affects, like facial hair yuk and loads of other crazy things . im just goin to wait a while and start a trying for a baby instead because the only side affect is getting what i want anyways which is a family :)
    Anonymous 42,789 Replies
    • February 1, 2007
    • 03:43 AM
    • 0
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  • Thanks to everyone who replied. I got my colonoscopy results, and was mildly surprised to find out that it's chron's after all. It's a relief that all that testing and waiting is over, but it's still gonna be life-altering...
    Anonymous 42,789 Replies
    • February 2, 2007
    • 05:53 AM
    • 0
    Flag this Response
  • STOP SUFFERING!!! Think...If you were not born with the problem, the only thing that destroys our body is what invades it: germs, bacteria, parasites, toxins, bullet, knife, etc. And never forget, if you have a problem with your body, this is natural and what is called "life", that's life! not "Bypolar", "Crones", etc. (man's labels). The good Lord gave you a wonderful body that no one is born to know how to take care of, we go through life thinking we should be fine no matter what, but what comes into it is not what you were born with. So whatever the problem, it is what invaded your body! So, just get rid of it and purify your body back to new born healthy (only aged). Since "Death begins in the colon" as they say, get that Colon Cleansing done (simple, easy and tastes good stuff), detox your system (you will automatically loose unnecessary weight), get it only from DrNatura.com (the best products on the market), and to feel MORE on top of the world...get "Km" (from Matol Botanical International, Dr.Jurak) that keeps your body's immune system perfectly ("Best product on the market" ...the only product in the world to have ALL the nutrients known to science in one bottle, and in liquid form for quick digestion and no waste! Whatever your body is missing it will provide that nutrient) and you will feel absolutely awesome!!! and thank me for this forever! I PROMISE!!! THAT is a GUARANTEE!!! Everyone needs this and is 100% natural ingredients (these products are the very best "highest award winning" science has to offer) Check it out! You're welcome.
    Anonymous 42,789 Replies
    • February 3, 2007
    • 05:22 PM
    • 0
    Flag this Response
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