I am hoping to find some answers. 6 yrs ago my father was diagnosed with pulmonary fibrosis. He was given 3 yrs to live at that time. His breathing got progressively worse to the point last year at this time he couldn't walk at all. He was then hospitalized in the ICU with a pulse ox in the 50's. After several days his dr gave him the option of staying there or going home to die. There was nothing else they could do for him. My father spent several months in Hospice - where he started to get better. From there he went to a nursing home - he was still wheel chair bound, but was little by little walking more. Currently he is home and is getting around fine. He does need a walker when out, but no while at home. He has gone from 18 liters of oxygen to around 6.
This just doesn't make sense. From what I've read and what the dr/nurses have said, pulmonary fibrosis can progress fast or slow, but it does not get better. Could they have misdiagnosed him and he could have another - non-terminal - condition that can be treated/cured? He only had one biopsy -a puncture one. The pulmonary dr wanted to do one where they'd put him under and go in thru his side, but my father wouldn't do it. Maybe they didn't have enough to go on. Him being that close to death and now being better than he has been in years just doesn't sound like they had the right thing.
Can it be something else??????
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